brief history… breast cancer 1999 chemo radio tamoxifen 5 years letrozole 5 years.
Dec 2014 extensive bone mets had Radiotherapy and been on exemestane sine then with monthly Denosumab. I scored 8 on estrogen level. Recent MRI has show new lesions the only thing my oncologist can offer is chemo!!! I asked about Faslodex she said it’s not funded by the hospital ( Dudley) or ( Wolverhampton) she will ask for funding but isn’t hopeful. Ibrance also not funded which I think is the case for many. She will look for any trials that might be suitable.
I asked if I should revisit Letrozole but she said if Exemestane has stopped working, and it’s the same category as Letrozole but stronger, then Letrozole unlikely to work.
She is at the mercy of funding I know but can the ladies on here give me anything from experience… is there anything else? Would you think Faslodex should be my next ammunition? Would you have expected Exemestane to have worked for longer? I really wanted chemo to be the last resort.
Thanks for listening and you are all awesome, sorry I have rambled on a bit.
Hi mermaid. I’ve only just started this journey myself so can’t advise you on meds, but I’m sure someone will be along soon with advice.
Silver, don’t apologise for the guardian story. I don’t even think it’s those sorts of stats that stress people out. It’s more the ones that relate to their particular situations.
I just came across the median isn’t the message yesterday and found it very interesting. I thought that maybe others might find it interesting too. Especially those who enjoy reading about stats.
Positivity to you too. Hoping it’s not too hot for you. We’ve had a fair amount of cloud for the past few days making it very close and sticky. Not great coupled with my medically induced hot flushes. ?
Hello mermaid007.
I can’t advise on meds as I am no expert yet. I too am been treated at Wolverhampton. I hope you get some help and advice. I think it’s awful when certain treatments come down to funding it makes me so angry. Take care Sending love.xxx
I’ve thought long and hard about posting this but as I’ve been a regular here since October 2015 …I thought I could be honest.
I saw my oncologist today with scan results and they are not what I wanted to hear. Over the years we have shared laughter, tears and good advice here but it’s now time I said goodbye and focused on my family etc.
I wish you all the very best with your treatments and stay strong. …remember my primary was 2004 and I have been living with secondaries for nearly 3 years so I have had a good innings …
Hi hope no one minds me jumping on post ,am looking for advice and scared tbh …i was dx with tn in jan 17 had ec and pacs mx node clerance 7/12 ,rads ,to 3 places and 8 rounds of capcitabine which ended in march …had clear ct and bone scan 5 weeks ago .i was wondering if any ladies have mets to there back or hips and if so how did you know .ive had slight back pain for few days, on monday night i turned over and felt like back had gone all fine tuesday morning then in afternoon i got this awful pain across my back hips and pelvis .i have quite high pain tolerance but this has floored me and had me in tears…today its a dull ache but mainly in hips area …sorry for long post but does this sound bone met familiar any advice appriciated .would it be best to see gp or contact bcn im seeing onc in 2 weeks time .would this fall under the wait 2 weeks regime of wait snd see .thank you ladies
I am so very sorry to hear this. I wish you strength as you del with this. You have offered advice and support to others. Thank you. Brace to share your news and I hope you receive good support
So very sorry to hear this carolyn - I do not know you but as others have said your humorous posts have put a smile on my face. I hope you take comfort from the love and support of those close to you .
Sarah x
Carolyn, you have been so supportive and given so much, all I can say is thank you. Sending love and hugs to you and your loved ones. Perhaps it will help them, and you, to know that you have really made a difference to this little community. Go in peace.xx
Dearest Carolyn, I can’t say any more than Nicky’s words, thank you to the funniest, most upbeat and caring person on the forum, you and your family will be in my thoughts and prayers xxxx
Hello Silverlining
Breast nurse rang yesterday to say bone scan was clear so op will go ahead on Monday 30th July. I’m so relieved. I’ll definitely have radiotherapy because I didn’t have that first time round but unsure about chemo. I’ll cross that bridge if and when I have too.thank you hope your doing ok.xx
I know we are in and out before you know it…
we haven’t had rain yet but the wind has picked up and rain is forecast today but it is a little cooler thank God! Take care silver.xx
It’s lovely to read the kind messages to Carolyn in this thread. Sending you our best wishes too Carolyn.
A few earlier posts in the thread went against our Forum guidelines.These guidelines aim to keep the Breast Cancer Care forum a friendly, welcoming, supportive space for people affected by breast cancer.
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Great that your forever garden is bouncing back. ?
I’m off to the chemo ward to pick up the first batch of my new drug palbociclib. Can’t wait to get started.
Maybe I’ll do a bit of weeding when I get back. I absolutely love my garden. It’s enormous so can be a bit overwhelming but it’s a great place to forget your troubles. X
Hi ladies, I’ve not been on the forum for a good few weeks but I have to say I have truly missed my regular catch ups and info we all give to each other.
I was maybe a little “touchy” in my last post and I apologise if I offended anyone!!
Just want to say to Carolyn I am really sorry to hear that your last scan results weren’t too good, you take care my “cyber friend” and always know that we are all holding your hand.
FF, absolutely fantastic news for you, I bet you’re on cloud 9!!
Hugs to all Janette xx
Hi silver. Thank you I’ve had the op this morning I was first on the list I’m a bit sore but it’s doable. I’m stopping in overnight apparently I was incorrectly told at pre-op that I would be out on the same day. I’ve got 2 drains my breast nurse will see me in the morning…Take care.thanks again.xx