Bone mets - please join in (Part 1)

No results yet. Am on new anti nausea drug. Not doing a lot for my brain! Going camping to Cornwall on Wednesday. Husband decided to sell our campervan and had found a buyer but I said I wanted one last trip this year so I have got to go! Think I’ll turn off my phone. Might be no signal anyway. There are lots of places where I live (S Devon) with none.
Love to all Bon xx

Hi all
Have had an anxious and frustrating few weeks waiting to hear if I was eligible for trial - I wasn’t so another wait to start e/e and after lots of emails phone calls starting it Wednesday so hoping it has some effect as pleural fluid has increased a lot lately. On a happy note went to thailand a couple of weeks ago which was amazing and feel so happy and fortunate that I was able to fulfill that dream?with my family.
Enjoy your trip bon and hope the rain stops soon ff!!! . Hope everyone else is OK and managing with their treatments xx

Yes my coping mechanism is right let’s get busy and book a holiday - got to have rays of sunshine in between the clouds?. Good luck for your scan results and enjoy your hol distraction. I have really struggled with insurance due to having a pleural drain - one of the only companies that would insure me were MIA it cost £500 so not cheap but gave peace of mind I also used them to travel to USA xx

Yes I have to admit I too have just used my health card and took insurance excluding cover for my secondaries for trips to Europe as it was getting too costly at £200! Don’t know how much longer that will continue though with leaving the eu?. I purchased via MIA but the policy was good to go for thailand xx

Hey ho, scan results tomorrow. My GP has already told me I have progression. Previous bone scan was 17 months ago so plenty of scope. Last thorax and abdomen CT 3 years ago. Well at least I was able to enjoy the long hot summer undisturbed.
Hugs to all
Bin xx

Good luck bon… sending love and thinking of you. Xxxx

Good luck Bon, thinking of you.xx

Good luck Bon
Xx

All the best and hope there is a clear plan x

Sending you best wishes and luck for tomorrow bon xx

That’s great. I tend to agree with your oncologist. I’m on a clinical trial so as part of its protocol I am required to have a CT scan every 3 months and I must say I’m stressed and anxious from the scan til I get the results.
So far by God’s Grace it has been clear. But it’s scary

Encouraging news. Very pleased x

That’s good to hear bon.take care and enjoy your weekend. Xxx

Bon, that’s good news, as it goes. If the current drugs aren’t too tough, then it’s good to get the maximum time out of them. But I can’t help feeling how our perception of what counts as “good” news changes as time goes on ?
Hope everyone is doing ok.xx

Hope biopsy goes well. I wouldn’t read anything into when people post. You never know what’s going on in people’s lives. They could be away having a holiday! Good luck with everything x

Good luck with your biopsy Silver. Will think about you. Don’t worry about the thread, this forum changes its character all the time. Quite different from six months or a year ago. xx

Good luck with the biopsy silver.xxx

Silver, good luck with the biopsy. Hope everyone is ok, I haven’t been checking in very often but I still think about you guys. Had a long weekend in the campervan in Cambridgeshire, catching up with old friends and enjoying the fab sunshine. Chemo tomorrow. Oh well, at least my bloods made the grade this time!

All the best and will think good thoughts and prayers.

RIP Moijan… At peace… sending love to all the family xxx