Nice evening all,
May i ask someone please, Faslodex, 1 dose, 2 dose two weeks later and now monthly. Each time it was injected 250ml in bottom, and pain came always 5.6.7th day afterwods. And ONLY on right side, left is good. Any experience?
As us like you go fitness and you pull your muscles. I will check it up with onc , but it is only one week after injections and it last cca 3 days and only on right side. Keft side is goid after injection. The pain always sort out 1 tablet of common painkillers, so hope thats not something bad, anyway i am curious
Thank you Nicki and Marmeid, we try it, sides effects is also muscle pain, but funny is that is only on one side(injection both sides) and roughly week after injection for 3 days. I def check it up with onc and let you know.
Thank you all for replais, mean much and help much???
Thank you soooo much bonareinsis!!! I tried look internet, but i didnt manage to find so great picture.
Please, i have one more question. Do you know, why meta was not seen on normal lung RTG, but PET/CT show something on lungs?
Ooh Iām glad thread of this is here.Ā
Ā
As. Iāve. Recently. Had tough time. Xxx
Hello all,
I have not been around as 2 treatments have failed I was in hospital and now I am back home faced with a dilema what to do with my next line of treatment. I have read some of the posts and I am glad that I can still see some names I have met here initially, may God bless you and keep you all safe. I apologize in advance for my sad and negative post.
I am having some tough moments this year, namely having to deal with progression from bone metastasis to increased bone metastasis and liver ones. In June I had to start Fulvestrant and Abemaciclib, which did not work at all, started Capecitabine in October the beginning and ended up in A and E with Coronary spasm. Now, as the oncologist says I have run out of chormonal treatments and milder treatments she is offering me 2 types of chemo to choose from Docetaxel or Paclitaxel. The first one she says will be given every 3 weeks and second every week. She has explained that the second one has less severe SE, and that is why it is prescribed to patients who are not so fit as I am. I am very very sacred I do not want to end up in hospital again I feel so well when I am not on any medication I do not have any pain and I do not want to pull the devils tail and startĀ suffering because of treatment not because of the illness. I know that my tumor markers are rising and my liver function is worsening according to the latest blood tests but I simply want to have a good balance between SE and treating the illness. I am so scared. Please anyone who have been through either of these chemos share what sides effect you had, did it work for you when did they notice any resultsā¦I know that we are all different but I need to hear some stories in order to make up my mind. I just want some quality life, even if it is shorter than the SE one.
I know it is my decision I have read all the leaflets I have received about the side effects of both drugs but I need to hear real time stories probably, do not know. I am also concerned about losing my hair again and especially when I have read that with one of the drugs I can loose some if it for ever. Are there many such cases?I know this is not the most important thing but for me it matters a lot. I want to scream it is so so hard. I have not given up may be because I am so asymptomatic. I just want to delay the symptoms as much as I can! I want quality life. I do not want to stay in bed and wait for pains and aches and ā¦deathā¦Sorry for the negative post. I feel so aloneā¦
Please if anyone has been recently on one of these treatments could you share your experiences? I am also a bit confused as the oncologist said that I might have both them in the future anyway so it seems that it is just a matter of choosing which one to start with. I thought that they are from the same family and they are excluding each other. Please tell me your opinions about that too. Thank you
Thank you allXXXX
Morning iāve tried searching for info on fractures but unfortunately not only is bone mets new to me but so is forums 
Recent meeting with oncologist asked about doing yoga she said hmmm its in your ribs maybe a chance of cracking them when twisting. My brain almost went what theā¦and i didnāt have the heart to tell her the week before iād been helping the other half lift flags off the driveway.Ā I came away feeling like a glass doll as sheās putting me on denosumab and mentioned my jaw might fracture.Ā My concern is how fragile am i and maybe silly question but how would i know if iāve fractured something.
Ā
Brief history - I had mastectomy 12yrs ago started chest pains 5yrs ago but only found out i had secondary breast cancer end last yr (although now i know its been here at least 5yrs). Two ribs and sternum, maybe paranoia but feel same aches in other bones.Ā Stared Letrozole, zoladex & calcium/vitD will be starting ribociclib in next week and denosumab in Feb.
Hi finty, Iām new to this forum so have only just seen your post. I was dx with bone mets last January,Ā so a year in now. I havenāt asked for a prognosis as Iām too scared. Iād like to chat to others about this and gain knowledge and find out which meds theyāre on etc., and how they cope. I realise yours is an old post, Iām still trying work out how all this works and also how to communicate with other people. Iāll be very grateful if you can help me. Many thanks.Ā
Hello,
Thank you so much for sharing your message is a great source of confort. I was diagnose with spine mets July 2022. How can I join tis group?
Best Wishes
Hi I had radiotherapy on my shoulder after suffering a year nearly of intense shoulder and arm pain. After my few sessions my pain had completely gone. Itās only now after about 8 months that I have a bit of pain if Iāve been driving. X
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