Thanks for the link Lemongrove - that does seem to be good news under the circumstances.
Grannypam - good luck with your chemo. I had good results with tax and my bone mets started healing, I hope yours will too. You’ll have a few days before the tax se’s really kick in - so hope you can enjoy the bank holiday w/e. You mention you are diabetic - is the diabetic drug Metformin an option for you? You may not be aware that it has shown promise as a treatment for breast cancer in addition to being a diabetic drug and reducing the risk of heart disease, so might be worth investigating.
Many thanks for this info Lemongrove - glad to know the NHS is progressing with looking at the stereostatic radiotherapy approaches and that this report seems a bit open to the idea that evidence is still emerging about its use in different cancers even though the current list is quite limited. This gives strength to appeals for funding I would hope.
Interesting to see the limited number of institutions represented on the commission - reflects how slowly use is developing in this country…
hi all, once again im asking you ladies for advice, for a couple of months ive been taking Anastrozole 1mg and Bonviva but in the last week or so ive noticed the heels on my feet seem to be aching and i just seem to feel a stiffness in my legs, i seem to rember reading about some of you ladies having probs with ur feet, thanks xx
Avril - I wonder if it could it be anything as simple as a change of footwear now that summer is almost here? I used to find flip flops gave me aching legs and feet (until I discover fit flops - ah the bliss!).
Hope the chemo works wonders for you Pam…xx
Avril I had lots of heel stiffness, pain on Arimidex, especially on getting out of bed in the morning…if this is the same side effect you have I found pulling toes up towards you for a few seconds before getting off the sofa, out of bed helped. xx
Hi again Avril, I found doing these stretches helped a little…just used to straighten legs and pull my toes up and hold them for a good few seconds…this seems to stretch the heel tendons…there have been other posts on the forums about hormonal problems causing heel pain and stiffness and ‘googling’ I found this exercise. Hope Anastrozole is working well for you. I had just over 3 and a half years with it so I hope you also get a nice long time with the little pills…xx
Finty and Frances, I think the fact that the NRIG Report suggests that SBRT should be commissioned for oligometastases is the thing that will be of most benefit for peeps with bone mets (and as you say Finty, spine mets as well).
For those with visceral mets, the report again recommends the commissioning of SBRT for lung mets.
The really positive aspect is that the report suggests that the list should be a starting point (so the govt clearly expect the use of stereotactic radiotherapy to become more widely used). It’s also encouraging that they encourage commissioners to see the wider picture - in terms of the savings that can be achieved by using SBRT, and not just the cost.
Yep Lemongrove- that positive sense of the report recognising the importance of SBRT for a range of cancers is important - and I did feel there was a strong awareness of this as a developing area with more evidence needing to gathered for a wider range of diseases - all very positive. Good to see MV Hospital well represented on the group alongside as other hospitals
xx
So nice to hear from someone in the same boat as myself. Unless they are this position people don’t fully understand how we feel. I see you have had this since 2003 that gives me hope I will reach retirement age in 4 years time. At the moment I have very little pain at the but every twinge is a reminder of what is going on. On a cheeria note off on holiday next Wednesday for the 2nd time this year. Going to Cyprus with the husband, daughter, son in law and the 2 grand children. Last year never went anywhere what with treaments and panic attacks. Trying to keep more positive now. By the way do you the table bondrat
or are you infusion. I am taking part in the Zice trial to see which one is best. Why I decided to go on it I get monitored every 3 months for the frist 2 years and then one a year.
Take care. Nice hearing from you.
Avril the other stretching exercise which is really good is to stand on a stair or step with your heels just hanging over the edge, and gently drop the heels down beneath the level of the step. Do this slowly about 10 times. You may also find it better not to wear really flat shoes.
Glad the stretches have helped a little Avril and the steps exercise is another I found helpful.
Have a great holiday Lyndyloo. I had infusions for the first few years but then my veins became difficult so I’ve been taking the tablets for a long while now.
I’ve just posted this on another thread, after a comment from Amber (thank you!) drawing attention to this really promising development in bone mets research - I thought it was worth repeating here. Having discovered a signalling pathway that allows bone mets to develop, there is now a drug in animal trials showing promise in treating bone mets:
Thanks for posting this info Finty.
Seems to me the scientists are making headway in their understanding of how cancer manipulates normal processes, to metastasise. I know the lovely Prof that treats me is leading research at Imperial College into how cancer manipulates micro-rna to spread round the body. The challenge seems to be how to stop the cancer manipulating normal processes, without interfering with the normal processes.