Hi
Just wondered what you think as I really value your opinion…
I went for a bone scan today (lovely)! The man carrying out the scan did the scan and then asked me to cross my arms as he wanted to take some pics of my side…So knew things were going on in my ribs… You can tell when there are issues can’t u. It’s a bit scary…
I have mets in my pelvis and right rib… What I find a bit puzzling is since all my chemo and herceptin my pelvis does not hurt… My rib is another story pain even worse with/after chemo!!! I could hear him talking to a young colleague about a hot spot, which I knew I had anyway in my rib…
My question is… I had 90% response to chemo in my breast, my pelvis gives me no pain… After treatment what do healing bones look like on a bone scan, do they ever go away?? are they still hot spots… I know I still have cancer in my rib because of the pain but it’s odd that this met doesn’t seem to have responded to treatment at all?
Any thoughts???
Xxxx
Hi,
Think we have ‘spoken’ on bone mets thread. Chemo shrank my tumours by about 75% and also reduced some bone mets. I have had scans approx every 6 months over the last 3 yrs or so and they have been stable most of the time and some improvement has taken place in my rib mets to the extent that they have almost gone. This occured even when my spine mets worsened a little bit necessitating a rads blast. They haven’t given me much pain at all.
It’s all so unpredictable and doesn’t behave in a uniform way. I’m on zometa, zoladex and arimidex by the way. Difficult but wait to see what your onc says about the scan results as your mind can work overtime. I judge the results by my onc’s attitude - usually she’s quite laid back about it (in a nice way) and never panics me!! There have been occasions when the radiographers have seemed cagey but everything has been stable, onc pleased, so you never can tell really.
Liz
Hi Mackers,
I can only speak for my experience with bone mets. They were dx in 2002 and were extensive. I have been on herceptin and bisphosphonates for them. I know that the ones in my skull cannot be seen on bone scans any more although the damage can be detected on mri and ct. A number of the other areas are nothing like as black as they were originally and they are all stable. Over the years I have had odd pains here and there and thought I had problems but the pains seem to go away. When it was in the spine & hip areas they zapped me for the pain but the mri’s never showed any progression. What bisphos. are you on? I was also, like you, asked to sit in odd positions for different shots 
Dawn
xx
Hi
Thx for ur replies… It’s just I try to keep myself logical normally… Not today!!! My husband said the same thing my minds working overtime…
Last time they wanted to focus on my pelvis…they didn’t want any additional pics of that area this time…just my ribs…
Didn’t realise that there is varying degrees of blackness… Rib is deff upto something… But may not be as bad as I am imagining !!! I suppose hot spots take a very long time to heal, if the are ever going to…
I think it was because I was out of my comfort zone as well had to go to a “really big serious hospital,” I know I don’t have to explain to you as u know exactly how I feel… but for some reason, today really upset me.
Just a bit of additional info I had a ct scan in jan and it said boney mets stable, which just adds to my confusion!!
Xx
Ps on a lighter note… The husband has gone out for a beer, son took himself of to his room to do his homework on his own!!! And even the dog is in his basket afraid to move !!!
PS - On one occasion, the scan man sent me for an immediate chest x-ray after bone scan. Aarrrrggghhhh!!! It was absolutely fine though so who knows why he asked for it… another little mystery in the story of this disease! Enjoy your peaceful evening.
Liz
Liz… Tnx very much for advice… I sent you a message via bone thread a couple of days ago, as I thought our stories were quite similar… I am from Manchester originally but now in berkshire… So don’t know hospitals etc but getting used to it…
Dawn… I’m on the bondronat routine. Also herceptin and tamoxifen . App 90% Er+ PR+ and her2. Story of my life never quite 100% !!! lol…
Txxx
Ps dog now ventured out of his basket… No sign of husband tho!!!
Hi, not sure if it’s helpful as it’s from a recent CT rather than bone scan but I was told my last CT scan showed thickening of bones, all areas. The Onc told me this was definitely good signs of healing as my mets, lesions, are lytic rather than blastic.
x