Hi Ladies,
Well, firstly shall I say talk about scared is not the words that come to mind…
Went along to Onc today my appt was 12.05 this afternoon. He came in and I told him I had been getting infrequent headaches together with sickness like a migraine. Got the headaches at bedtime and they last all night then sick then gone!!! - I must admit they have been bad. But he said right we will send you for a Brain scan - now really scared its gone to my Brain!!! but thought ok lets book in for scan he gave me my card and of I went to x.ray and ct scanner reception. They took my card from me and low and behold they fitted me in today at 2.30. Well how quick was that - Yes I know you will probably say thats great and yes it is good when that quick but what on earth did he write on the bloody card to get a Brain scan that quick!!!
Next Appt next Weds for results. Fingers crossed. and everything else. Have not told my youngest dont want to worry her unnecessarily if you know what I mean. Have any of you Ladies had a brain scan and it has come back ok. Please do let me know. He also done bloods today
FBC - full blood count
LFT’s - Liver function tests
CA - calcium.
This next week will be a long flippin week - don’t really know what else to say. No other symptoms so to speak.
Thanks Ladies
Tracey
xxxxx
Hi Tracey,
Yes I had a brain scan a few weeks ago and scared is not the word that came to mind either!!! Like you I had been getting the headaches. I had them for about 4 weeks I think, along with the nausea and bad at night as well as day. Painkillers werent making much difference - needed to take anti nausea pills too. I was due for a clinic check up and mentioned them to the onc and was sent immediately for CT, but they found i was allergic to contrast dye so had to go back first thing following morning for MRI. I was reasonably okish until she said i was to hang about until they had a consultant look at the scans and report on them. An hour later and I was still waiting and getting more scared by the minute - finally the onc told me they had to get another opinion as well and I was shown into their ‘Quiet Room’. You go hot and cold with the fear!!! She said to me they were puzzled - I hadn’t had bone mets in my skull had I!!! My skull had been riddled with it back in 2002 but with bone treatment that was the first area to respond. Of course they had no previous MRI of my brain to compare and were puzzled by the damage when the onc said I hadnt had bone mets there. I cannot tell you the relief I felt. The headaches and nausea eventually resolved and no one really knows what caused it. I do hope that this time next week you will be breathing a sigh of relief, because it’s a dark place to be isn’t it. Thinking of you Tracey.
Dawn
xxx
Hi Tracey,
thinking of you at this sh*t time. I too am waiting for results, following a scan to my right shoulder today after complaining to my onc earlier this week about a persistent ache in it. Waiting for results is just pants isn’t it!!
I really hope you get on ok next week and the scan shows nothing sinister at all. I know weds seems ages away but hopefully it’ll come round quickly.
Take care and let us know how you get on,
Kelly
-x-
Hi Tracey - just wanted to wish you the very best of luck - love FizBix xxxxxxxxx
Dear Dawn Kelly and Fizbix, well thankyou for your support. I knew I could rely on you. Nearly wednesday only two days to go !!! I will certainly let you know how I get on. Kelly, good luck with your results pls do let me know how you get on pls. I do hope and pray that I get a result like you did Dawn.
Thanks Ladies
Take care
Love
Tracey
xxxxxxx
Hello,
I can certainly empathise with all of you… the worst thing about these tests is the waiting for the results. I have a CT lung scan on Thursday but fortunately I only have to wait till the Friday for the result. There is nothing that can really be said to make us feel better but posts like DawnHC’s certainly help to make us realise that good results are possible.
Tracey and Kelly, hope your results are good, let us know.
Polly x
Tracey,
good luck today, thinking of you,
Take care,
Kelly
-x-
Dear Kelly,Dawn, Fizbix and polly,
Thank you all so much for your words of encouragement. It Was GOOD NEWS - the Brain scan was clear. Thank god I was soooooooooooo soooooooo worried. My bloods were also fine. I can’t tell you how relieved I feel. I am so HAPPY!!
All that showed up was something called sinusitas (not sure of the spelling) pls excuse) but he said that this could have caused the headaches etc.
I don’t have to see my Oncologist now for six months. This is the longest I have not seen my oncologist since diagnosis in Feb 06. DX - Full radical mastectomy, immediate reconstruction lat dorsi. Full ancillary clearance. 1 superclavicle sentinel node cancerous. 5 under the arm cancerous. Grade 3. Her2+ er+ pr-. 3cm tumor. My recon failed went necrotic had to go back to theatre with infection. chemo 4 x epirubicin 4 x cmf. 15 rads. 10 mths Herceptin. Never straight forward had a severe allergic reaction to Herceptin and Heart scan fell to 44% so withdrawn.
So feel I have certainly been through the mill. Just feel so lucky to be here - if you know what i mean.
Kelly please do let me know how you get on. I wish you all the very best and will be thinking of you.
Love
Tracey
xxxxx
Dear Polly,
Good luck with your CT scan on Thursday. I will be thinking of you. Pls do let me know how you get on.
Take Care
Love
Tracey
xxxxxx
Tracey I am sooooooo happy for you. I think just for once I can say I know ‘exactly’ how you feel. Normally I hate people saying that. You just want to cry with relief. I hadnt thought of sinusitis - because I have suffered with that for many years, but it didn’t feel like it to me.
I have also just had results of various scans because of back pains again and they too have come back with disease stable, and after almost 3 months of it the pain has gone. I guess we will never be free from the worries that come with the territory eh?
love Dawn
xxx
Tracy,
I am so please for you. Hopefully the headaches should go - sometimes the stress of BC can also freak u out and every pain becomes amplified X millions.
Take care.
Sukes
Hi Tracey,
congrats on your most awesome news, I’m well pleased for you. I’m still waiting for my results but am hoping the news for me is good too.
Take care and keep in touch,
Kelly
-x-
Hi Tracey,
thanks for your kind thoughts, i will let you know, not long to wait now!
Polly x
Hi Dawn,
I am so pleased for you that this cr** disease is not causing you too much pain and that your various scans have come back as stable. This is such great news. 3 months of pain - well what can I say!! , I am so glad the pain has gone. Even that in itself is fantastic news.
You are right though Dawn, - it does unfortunately come along with the territory.
I spoke to my Breast Nurse and she is also a Macmillan Nurse, yes she is fantastic but when she says to me no-one knows whats around the corner - you might get run over by a bus. Let’s put it this way I would certainly keep away from the bloody bus. The other day she also more or less informed me that I was LUCKY - yes lucky to have Breast cancer as at least it was not like other cancers that dont give you long but at least breast cancer does - do you know what i mean Dawn??
Anyway on a cheerier note I have spoke to you on previous occasions and you have given me sound advice.I have been on here since dx Feb 06. At least you know where I am coming from so to speak. You was diagnosed a long while ago wasn’t you?
Well I could ramble on and on so for now I will go but please do keep in touch. I am in Essex. Where are you from Dawn.
There are no profiles anymore - wish they would bring them back again at least you knew a little about that person from their profiles.
Well you take care now
Speak soon
Love
Tracey
xxxxx