As you know, I have posted on here my doubts about having my ovaries and tubes removed. I shared my doubts with my breast surgeon and she has referred me back to genetics to disscuss risks etc. further and whether I can have HRT afterwards. I agree with you Jane and it is like we are the current guinea pigs, everyone has their opinions and theories but no concrete evidence to base our decision on.
Luan; I have never heard of a full hysterectomy done by keyhole, only vaginally, which is obviously less intrusive than abdominally. I have been advised to have ovaries and tubes removed, however, my mum was given full hysterectomy due to changes possibly caused by Tamoxifen.
Really worried now as off tomorrow to check into hospital for ovaries out on Wednesday - really worried about the side effects now and me not bolting before the Op
x
hi lisa i was like you too i was so scared when i was in theatre and needle was inserted i started crying i had been ok till then but i was scared of the unknown. what i was scared of also was i that i was putting myself through an op when there was no solid evidence to show i would get cancer and was merely preventative i also worried about side effects of menopause. so i went to sleep crying. but i can honestly say i was fine. and we will all be here for you when your out to offer loads of support and advice. take care mind let us know how u get on. love lainey xx
Hiya Lainey, thanks for your support, Im such a baby when comes to needles and its the thought of being in hospital so far away and waiting up to 24 hours for Op. Local hopsital dad’s a porter so nurses gave me my own room, let me go home for a few hours and really looked after me. Supposed its hopefully the last hurdle, just hope my viens havent totally disappeared after chemo!! Thanks for your support, much appreciated, hope to be back on line soon
xxx
lisa would you think that someone else was a baby if they were doing what u are. you wouldnt so your not a baby you are naturally scared and thats understandable. will be thinking about u tomorrow. speak soon xx
Thanks for comments - im back in the land of the living. kicked me out day after with paracetomal. Going to have some co-codamol today as have stabbing pains and ache around left side but then he got both ovaries and tubes out from left side. Waiting for symptoms to kick in. Thanks for your support. Its another big hurdle out of the way
xxx
hi lisa im glad all went okay for you and your right it is another big hurdle. probuably by weekend your symptoms will have kicked in, the tears will be flowing followed by the odd flush and night sweats then it gradually increases thats what happened to me anyway. im only 3 months post op and am dealing with it all really well. let me know how u get on love lainey xx
Hi Lisa
Just wishing you luck. My symptoms took a week or so to kick in - apparantly you have some hormones stored which last for a few days.
Take care
Jane
Looks like we are twinning on this one I’m afraid. Back from Genetics and yep I’m BRCA1. so oophrectomy early next year I think. Going to talk to the gynae first but because I got 2 lots of BC and I’m under 35 the chances of me getting ovarian are 30% upwards and the emphasis is on the upwards too.
But naturally the next thing I asked was is there a surgeon waiting outside for me, as in how fast do I need to do this, and explaining where I’m at re work, ie I need to do some FAST and want to get married, that it’s OK to take a few months to recover from everything and get life back under control and then have them removed.
But I should point out that there’s no known family history in my case, nothing that indicates BRCA but I’ve got a very patchy history ie don’t know about anyone’s status on my dads side of the family as it’s estranged.
I may even have just developed the mutation… very occasionally that can happen.
So forgive my self interest Lisa, but I *really* hope you’re not suffering too much or I’ll have to bring you strong chocolate (endorphines) to make you happy just so I can pretend it’ll be fine gulp.
anyway forgive my ranting… I’m in an odd mood, I think it’s being *so* close to the end of rads and more on the horizon and I know you know what that’s like… grrr.
I got advice via the National Hereditary Breast Cancer Helpline, (06629 813000, website breastcancergenetics.co.uk/)
They spoke to Prof Gareth Evans, Chair of NICE GDG who said that I should be fine with HRT because I had triple neg b c and that I should be around 38-40 when I think about having an oophrectomy (I’m currently 33).
Just an update Im booked in for my laparoscopy assisted vaginal hysterectomy on Tuesday and already dreading it. Thanks for everyones comments since I put the first post up- I really appreciate all the advice. I eventually found out why my gynae had a change of heart and thought it best for me to go ahead with surgery- my oncologist tells me its because in the last couple of months they have had a woman exactly same history as me- same age has had breast cancer and has BRCA1 etc- she wanted an oopherectomy and was advised by gynae to wait till 40. She went ahead with surgery and against their advice and when ovaries removed- cancer was there. All screening prior to this all ok. Any worries about whether I was doing the right thing or not was elimated after I heard this. Even my oncologist says if it was her she would do the same as me.
Will keep you all informed as to how Im getting on- I know its for the best and I have to be around for my 15 month son but still sometimes get angry although I always try and see the positive side of things.
Good for you, I just had ovaries removed, wouldnt offer more than that but Im sure you will be fine. I was a nervous wreck whilst waiting for results which came back clear. I personally think you are making the right decision but doing everything you can to stay around
x
Just wanted to post quickly- had laproscopic assisted total abdominal hysterectomy and BSO Tuesday 6th and all went well- gynae says everything looked good that was removed (outpatient app 26th Feb) for results. 2 small 2cm cuts 1 each side of belly button and then stitches in belly button as well. Nowhere near as bad as reconstructive surgery on boobs- felt great after op and was discharged on the Thursday lunchtime. Since then have picked up an internal and external infection so have felt rubbish since Sat but now feeling much better. The best thing is I feel relief!!!
Thanks to everyone for their posts and speak soon xxx