Hi all been havin problems for a while the breast Tht I had a lumpectomy on has been very swollen and uncomfortable even obvious to look at so much bigger thn Th other despite a lump taken out the breast unit hav been good it’s a year since i finished all treatment so they gave me a mammo n scan n thers no more nasties. Thank goodness but they think I need some physio I went a few months ago but the nurse didn’t really do much n was very gentle Now it’s worse it’s painful n uncomfortable but just wondering if it’s worthall tg hassle of Th hospital appointments n time n parking etc. Has anyone else had this Is ther a chancecit could get worse what should I expect. Any advice would be good x
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Has anyone else had breast lymphodemia ? Does it means I will get it in my arm as well cos it aches some times .x
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Hi Rozita
I was dx with arm lymphoedema 3 years after lumpectopmy and then last Marcg over 5 years since surgery it appeared in my breast!! NIghtmare!! I have been given some plastic knobbly stuff to wear in my bra and am going to physio for my arm as they think this will help breast. I think these things just control it really but lympoedema nurse said they should make it “go down” and be more manageable.
I know its another bloody thin to cope with but I just try to think it could be worse!
Take Care
Alise x
Hi I have breast lymphodemia and I am starting to have massage in novemver at the lymphodemia clinic I went last week spent over an hour chatting about it I really know nothing about this and she showed me the gentle massage that I will be getting which will take over one hour to do…was so gentle wonder if it really works… ive had a horrid 7months off work just got my self back to work now this twice a week ive worked it around work times having it done when ive finished my work…I have ti drive miles away to this clinic I really hope its worth my while has any one else had the same problem ? Just has I thought I was getting back to normal and feeling my self again now this…they have told me to get a big bra something like my mother would wear…is there anything I need to know and anything I can help myself with ? And does this massage really work and does it ever go away ? Or am I now stuck with this for life ? X
christine x