Called into the breast clinic after 3 years

Hi lovelies;

Not been on here for a very long time. Had a mastectomy for stage 1b Bca almost 3 years ago (pr/er positive her2- and no nodes) mastectomy due to being multifocal all tiny.

Everything been going ok - tamoxifen grew me a lovely uterine polyp which can’t be removed (they tried under hysteroscopy) due to stenosed cervix so ive had a few mri’s but it seems stable and not getting any bigger, stopped tamoxifen tried letrozole but the side effects were bad for me so oncologist supported me in stopping. All been fine until recently been getting a few headaches (silent migraines with aura) and sore muscles on shoulders and neck (which may be causing the headaches). Asked for a referral to physio and breast team happy to do that but the thing that’s spooked me is they have asked me to come into the one stop shop clinic and its really thrown me. Last time I was there a year ago they felt a node and sent me for an ultrasound turns out it was fine and just because I am on the slimmer side they felt it. I think I am just spooked because I mentioned headaches to my GP ad she said the threshold is very low for breast cancer - they will do a brain scan for headaches if you have a history of breast cancer. I am useless at scans - MRI’s I hate as I am slightly claustrophobic and don’t like the contrast. So I am hoping they don’t send me for a brain scan…. not sure why I am writing this I think it’s just because ive been a little spooked and am now thinking the headaches are because of other not nice reasons! and if they do a scan will it pick up all sorts of things like dementia! (I would not want to know). So I just thought I would share that and any reassuring comments gratefully received. Love as alway to you all xxxx

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And breathe!

They’re just being thorough and checking everything. It may be that before they can refer you they have to have seen you again. Close your eyes for the MRI/CT and request music you like. Imagine any noise is roadworks outside.

Get it checked so you can get it treated. Tension can also cause migraines so it might just be that.

Sending hugs

You are so right and thank you for responding. I need to look on it that I am so lucky and grateful that they do these checks. Headaches are easing almost away along with the shoulder pain so it’s pointing to that I think x

I am so over visiting hospitals. My routine bowel screening kit came through this week and I was loathe to do it as I really don’t want any more prodding and probing. I have been a good girl and sent it off though. I’ve lost all confidence in knowing if my body’s ok.

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I hear you! I just hate it and every fibre of my being wants to leg it out of the hospital! X

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