Can any one explain this to me

Hi

I had a lumpectory in December for grade 1 cancer. Afterwards I (and my husband) understood from the consultant that he had a good margin around it and all was well except they found DCIS in a different area and needed to be removed at some stage. I also had chemotherapy for a micro cell in one of my lymph nodes (just finished it). Then I was referred to radiotherapy but when I got there they said the doc who referred me made a mistake and I need to have my op before radiotherapy. Then I saw surgeon yesterday and he is now telling me he didn’t get a good margin around it and that lab tests need to be done after and that if there is cancer cells they will have to think again with masectomy, he said this may not happen but he has to warn me. I am confused now and thinking about it I would of thought that if that was the case I would have had to operation before the chemotherapy. Can anyone explain this to me please, I tried to ask the nurse at my pre assessment today for the op on Friday and she said it’s more or less the same thing BUT the surgeon initially said he had a clear margin (or that was my understanding).

I would say that at the time the surgeon operated he thought the standard margin would be more than adequate however it would appear this was not the case. So they are having to do more surgery.

When they do a lumpectomy they always have to warn you that they may find that the margin is not enough and that they will have to do a mastectomy - it is a standard warning.

I would say that the surgeon after the op said “I THINK we got a good margin” They can never be sure about that until the lab results come in.

Sorry for the delay in replying to this thread but my mx and rebuild was on 29th and I have not been online until today.

I hope all is well.
Liz

Hi - is dcis invasive or non-invasive? I thought it was one of the good ones that doesn’t spread?

Hi, Totally Confused,

No, I think all breast cancer of the most common type starts off as DCIS. It is called DCIS when it is encapsulated and has not YET spread. It may never spread, but it probably will. If you catch it really early and leave a big margin around it when you cut it out, that means it may be the end of the story. But I seem to remember the percentage of people getting no recurrence in 5 years is not 100% but 98%.

DCIS is called “non-invasive” because it hasn’t spread beyond the milk duct into any normal surrounding breast tissue. DCIS isn’t life-threatening, but having DCIS can increase the risk of developing an invasive breast cancer later on.

_When you have had DCIS, you are at higher risk for the cancer coming back or for developing a new breast cancer than a person who has never had breast cancer before. Most recurrences happen within the 5 to 10 years after initial diagnosis. The chances of a recurrence are under 30%. _

The above are quotes from this site and can be found at DCIS (Ductal Carcinoma In Situ): Symptoms, Treatment, and Diagnosis