Hi all got my ct results no more shrinkage but they sd that would prob happen bit disappointed as feel done 2 for nothing just having my 5 one she did say because I’ve a very amount of cancer in my body she didn’t no if having the 6th wld make all the difference unsure what to do any comments wkd be grateful very hard to know what to do
Hi,
really sorry to hear you have not had more shrinkage and I know that must be so disappointing after having all the extra doses of chemo. It is difficult to know exactly what to say without any more info about your dx and what stage of treatment you are at. Have you had surgery yet? You say they said to expect this. If it did what they expected then that means they have it under control and it is reacting as they expect and have planned for. How long do you have to wait to see someone? I think I would speak to the breast care nurse as you can usually talk to them quite quickly. I had 12 doses overall and they were unsure whether the later ones were necessary. They also didn’t know what would have happened without them. Side effects were making it hard for me to keep going but the trouble is you can’t go back and change your decision if you get it wrong, so I always just have everything they offer. Try to think you did your best and everything that you could. I have had all my treatment now and whilst some parts were crap I am really glad I didn’t give up early and regret it. Have they asked you to make a decision, you didn’t say?
Hugs and good luck
Lily x
Hi lily i was dx in 09 had fec/tax mx rads no nodes clear margins then in march 11 was dx with sec to lungs I’m on carboplatin /taxol the first 2 shrunk them by 80/50 percent but the next 2 have done
Nothing kp them stable onc sd she. cldnt say if num 6 wld benefit me and because I’ve been struggling with se I cld leave num 6 if I wanted as only small amount of cancer in me chemo nurse sd if was her she wld prob have it as I wld prob be thinking what if ive had num 5 so far just the thought of facing 2 lots of se anyway thanks for comments tc Laura
Hi - Ive had little shrinkage either , tumour 10cm lobular so my chemo was changed to tax from fec. I am due 5th one next , i personally agree with Lily, i am carrying on as i want and need to know i threw everything at this . Its hard as i am struggling now with side effects but in the grand scheme of things this is a small part of the story and i will look back and know i persevered .
Its a personal decision for you , and hard as all our circumstances are different .
Take Care
Lorna
Hi Laura,
I am sorry my post was not particularly relevant as I did not know you had already had more than your fair share of c…p with this. I think you have to think how many days did you struggle with the latest doses and weigh that number of days against ‘maybe this will help’ and the possibility of having to think later on, should I have had it? I think it is very personal and easy for me to say sitting here but I did actually forgot about what i went through really quickly. But knowing I did all of them is a reassuring little thought in moments of worry that I haven’t forgotten.
Big hugs whatever you decide, it will be right for you, just don’t look back afterwards, and sending you lots of luck with your future treatment
Lily x