Hello everybody
Sorry I’ve been off line for so long but I’ve been trying to keep myself occupied sorting out the house and planning bits and bobs. I asked the medics to let me know as soon as they had any results and they agreed to but I didn’t hear anything and was booked in today for the standard clinic this afternoon. The results are that the two tumours are both positive for lobular breast cancer. The two was a bit of a shock but they said that’s not uncommon with lobular breast cancer. They’re in different parts of the breast too so it looks like a full mx and level 2 lymph clearance but they want to do chemo first. This is all so new to me so it’s alot to take in. They said likely to be FEC-D and have a meeting on Tuesday for them to do blood tests, etc and then it’ll probably be about 2 weeks after that unless there’s a cancellation sooner. They said it was unusally graded as 1 as lobular is generally a grade 2. I’m not sure what that really means but will no doubt get used to all the terminology with time. Very strongly positive for ER and PR (6/8 points) so will be on Tamoxifen going forward. They said the results as to whether it was HER2 positive would take about a further week so not sure about herceptin as yet.
She said the benefit of doing chemo first is that theey can monitor it’s effect and adjust if necessary. Again, I’m being guided by them and feel better somehow as I feel like at least everything is being zapped quickly but what do I know! It’s all a bit of a blur at the moment but at least I know now. 3 weeks of waiting and uncertainty have been hell and, it sounds really stupid because they’ve just told me I’ve definately got breast caner, but I feel a small sence of relief. I now have some kind of plan and feel I can now tell my mum. Am still dreading that conversation but at least I’ve got clear information to give her. Not sure I’ll tell her it’s two though!
I’ve started to sow the seeds with my little boy and all he said was 'will you still be able to go swimming? which I thought was a great reaction (like Mandymid). I was told today though that I wont so he wont be too impressed! The nurse is going to give me a copy of ‘Mummy’s lump’ which she said people have said is quite good. Loads of info fired at me today about long lines, temperatures, white cell counts, wigs, cold caps, etc. My mind’s a bit of a blur but at least I know there’s lots of people on here to ask questions of/learn from their experiences, etc. I can also stop speculating about this and that and focus now on what I know it is.
Thanks again to everyone for their responses. It’s been really helpful. Good luck to everyone else and take care.
Col xxx