Hi All,
Some of you may remember me from a long time ago. My mum was diagnosed in 2007 with Breast Cancer then in 2010 it returned in her Liver and Rib Bones. She was having a trial drug at the Royal Marsden which involved TDM-1 was going extremely well but unfortunately the last CT Scan has shown multipe brain mets - I am so frightened i’m going to lose her. The Royal Marsden have explained about the options either Capecitabine & Lapatinib if funding gets agreed or radiothearpy to the whole brain.
Is any of you ladies in similar situations? Any advice?
Love to you all xxx
Dear Jen
I’m so sorry to read your news about your mum. I’m sure other members will soon be along to offer some support.
You could also talk to one of our Helpliners. They can offer you practical information and support. They are open from 9-5 on weekdays and 10-2 on Saturdays. The number is 0808 800 6000. Calls are free and confidential.
Very best wishes
Janet
BCC Moderator
Hi Jen sorry to hear about your mum. I too am on lapatinib/capecitabine because my mets have spread to lungs stomach bones and liver. I am having probs with se but there are a lot of ladies on this site who have been on capecitabine for many treatments and it is working, I hope this is the case for your mum. The lapatinib is supposed to work well on brain mets. Take care. pauline x
Hi Jen
I am in the same situation as your mum as I found out on Tuesday that I have a brain met and it has taken me a few days to come to terms with it and be able to talk without breaking down, although I still have to choose my moments!
I am currently on my second cycle of capecitabine and my onc is applying for funding for lapatanib as the combo works well together,especially for the brain. I am also waiting to hear if I can have surgery or if it will be radio - either treatment is not going to be pleasant but has to be done.
I can also understand how you must be feeling as my latest news has shocked my kids to the core even though they are 31 and 29 with their own families. They told me they feel so helpless but I just replied that as long as I know that I have their love and support then that’s all I ask for and I am sure that your mum feels the same.
There are also some good postings on the thread - undergoing treatment:radiotherapy and there is specifically one for brain mets which you will find helpful.
I can’t give you any advice, only my own situation but if you do feel like having a chat then please feel free to pm me.
Liz x