@glitteryrainbow thank you.
When you say 2 more to go, did you have EC?
How has that been?
I had EC first, 4 rounds of it. Im now on Carboplatin and Paclitaxel. I found EC really difficult, i felt rotten for the first week after treatment but then the second week, felt normal. The steriods had a lot to do with me feeling rubbish, I have steriods now when I have carbo anf pac together and they make me feel really ill! But when I have pac by itself, its fine.
Is anyone still on here? Would be interesting to hear updates as I’m about to start this treatment.
Hiya @fried_eggs …. I started neoadjuvant treatment for Stage 2, Grade 3 TNBC at the beginning of March … the same treatment progression as these ladies, so Paclitaxel weekly for 12-weeks plus Carboplatin and Pembrolizumab (immunotherapy) every third week - that took me to the end of May ….. then started EC plus Pembrolizumab at the beginning of June with my final one during the first week of August if I carry on as scheduled ![]()
It’s heavy-going, I’m not going to lie … both mentally and physically …. but …. it’s doing a job, it’s vital …. and you’ll be amazed at your own resilience ![]()
Any questions ….feel free to ask - Kerry xx
Thank you @big for replying. I’m having bloods taken on Tuesday and hopefully starting treatment on Friday. Hopefully seems a weird thing to say, but the sooner I start the sooner I finish
they say it affects people differently so it’s just that not knowing feeling at the moment. What to expect, what I can do etc. Bit like when covid first started and it was the worst thing and you hear bad stories, but then I got it and it was similar to a cold/flu which I could handle.
Talk more soon. Bed is calling
Xx
Hey @fried_eggs
I’d recommend you join the July monthly chemo thread if you haven’t already as there are two other ladies on this regime there. I started on the same in May and have posted in the July thread about my experience also if you might find it useful. The link is below.
All the best. x
Morning @fried_eggs … I do understand because I was the same in that I was absolutely desperate to start treatment and as soon as I did, I felt more in control … you are right, the treatment affects everyone very differently … for example, whilst I’ve had side effects, I feel as if I’ve been lucky in that I’ve been able to manage them to a point! Yes, I’ve lost my hair, eyelashes, etc …. reoccurring sore mouth and tongue … I’m in the process of losing five fingernails, I’m in a medical menopause, my sleep is now rubbish, but … I’ve literally forced myself to eat well with lots of protein, drank lots of water, kept walking, kept working and living my life as I normally would … on a personal level, it’s got me through, it’s kept me positive and focused ….. all will be ok, you can do this and us TN ladies stick together ![]()
Definitely do as @mssteel suggests as the monthly chemotherapy threads are great … I am in the March one, but I also read January, February and April …. there are not many TN ladies are the threads, but they are there, genuinely ![]()
![]()
Hi all, im just about to start this regime. Im in the July chemo group but there aren’t many TNBC folks in there from what I can tell and so trying to find my people (hello again, @mssteel
)
Thank you. I will have a gander over there soon. It’s good to hear from real people in real time about their experiences and how they’re feeling.
I think I’ve accepted the hair loss and will probably feel more worried if it stays
it’s easy to say it now though as it’s not happened yet. I always tie it back so I’m hoping I see it as one less thing to do. Work have said to not worry about going in if I don’t feel up to it. I’d like to in order to keep the normality but I also have people telling me I need to put myself first and not overdo it so that’s going to be a bit of a conflict in my head at times!
It’s weird to think we have a different type of bc to most
Xx
When’s your last cycle @big? I think you’re close to the finish line now? x