post deleted
Andie your OH needs to see it as part of the overall effect; it’s to go with the rest of the pretty lacy gear, right? Or is he just totally happy with the black lace… red ribbons are quite cheap…
Of coures if the rest of your intimate style is normally biking leathers, or denim overalls, I can see he might have some adjusting to do. Gonna stop right now befoe I incriminate myself LOL (or expose too much of my ignorance)
Edit: Sorry, correction, I’ve just been told it’s nothing to do with Valentine’s day being six months away, that red ribbons with black lace just are cheap and tacky, period. Well I didn’t know, sorry! I’m from the denim or plain white cotton brigade, with nobody but myself to please…
You really make me laugh. I am a lady of senior years and my days of red ribbon and black lace are but a distant memory. Poor old OH could have a heart attack if that became my attire of choice.
To be fair OH is a star amongst men and he would buy me the moon if he could. It’s more a case of my guilty conscience about buying something that I would like but don’t need.
We’ll see
Ah yes, but you do need for your psychological well-being. Whatever this wretched disease has done to us, we’re still women and we need to express that at times.
Go for it! Say you need a sleeve for best. Elinda x
The laughter is for your psychological well-being then, glad to raise a smile and I certainly didn’t mean to insult anyone’s personal choice. What does my fashion adviser from a new generation know anyway!! Too much skin, altogether waaay too much pink, I think Terry Pratchet did one on that.
And seasoned OH’s rock, you are very lucky!
post deleted
I think you should go for it too Andie! You are worth it! xxx
Hi andie
I talked my OH into the black lace sleeve from lymphadiva for my birthday. He tried very hard to find the same thing over here so he didn.t have to pay the tax and import duty!!!. I did worry it might look a bit Anne Summers but its more grey than black and looks pretty good. A great talking point as it looks a bit like I’ve had a full arm tattoo. I keep it for best. Courses and meetings at work. I teach so find the black ones most practical. The skin ones look grubby after about 5minutes using a white board. I’m lucky I manage the swelling pretty well and don’t have to wear sleeve ALL the time.
It is starting to fade a bit, so ready for a new one. Might ask my children to club together for next one for Xmas.
Definitley worth making an effort to get one.
Good luck
Chinook.
Aided and abeted by the gang members I have placed an order for my lymphadiva sleeve. When it came to the difficult decision, which one to have, I smiled to myself as I ordered the black lace looking one. In honour of all your help I may have to wear it with a red ribbon bracelet! What this space for a photo.
Thanks for all your input
Andie
post deleted
JEALOOOOOOOOOOOUS ! I want one ! I want one ! Hmm had a good day on the cake stall today, ah that’s justification enough, I’m away to have another look at the site.
Well done Andie! I will look forward to seeing the photo too. I know these things are expensive, but you really are worth it!!! xx
Hello wonderful lymphoedema gang!
I wanted to bring to your attention a thread started by Bubbletrouble called ‘Your input wanted! Fashionable clothes for women with BC’
This does include what us women with lymphodema have in terms of clothing needs. One that strikes me straight away is sleeves in shirts etc that aren’t so tight and can accommodate swollen arms and/or compression sleeves.
Please if you can spare a moment, would you respond to Bubbletrouble’s thread.
Have a great weekend all, Elinda x
Bumping this up as I was wondering if those with truncal or breast lymphodema have more specific clothing wants.
Elinda xx
Hi Gang!
Not been around for a while as life is back on track post treatment and I am now doing only 5hrs short of full time each week now!
However, today I have been told that the nasty rash I have on WLE boob and on my back are almost certainly shingles 
Although the rash is itchy (particularly on my back) I am not in any pain as yet, they seemed to think this may be down to the nerve damage following my op and that this was a good thing!
Anyway, my question is, do I need to be concerned about this spreading to my LD arm and is it OK to do SLD or will that spread the virus?
Any thoughts would be most welcome!
oooh, daisygirl, that sounds painful
& just as you’re so close to the full-time goal, too
no idea about the sld, but i think the general rule is: if in doubt, don’t fo it
one for your ld nurses or the bcc helpline, i think - i used the ‘ask a nurse’ email lasy week (thanks cackles!) & a bcc nurse who’s v experienced about ld phoned me back the nex day with some good ideas
meanwhile, does good old fashioned calamine lotion still exist? great for itching
hope you can get some reassurance from the experts & the shingles behaves itself & bu**ers off soon
Thanks Norberte! I am much better now, the anti viral stuff gave it short shift and stopped it spreading and once I had finished taking it I stopped feeling drowsy and went back to work. I have now agreed on a 4 day week 09:30 to 16:30 so I don’t get so tired, so not all bad!
I am so fed up with my LD arm, although the swelling is very slight I always know it is there because of the sleeve but if I leave it off the swelling soon increases, and I get this aching a bit like cording from time to time. I know I am lucky compared to you and you would probably swop with me in a jiff but I hope you don’t mind me having a bit of a moan to someone who understands!
Anyway, thanks again and I hope you are OK!
Daisy xx
Hi AndieT
Iv e had the black lace one for a year. I don’t wear it very much as I keep it for tidy. I have been thrilled with it. It isn’t quite as black as you expect (I did worry it might be a bit Anne Summers). People always semm to ask about it and it has been mistaken for a full arm tattoo often.
I do hope you like yours.
Regards Chinook
Hi Chinook
As you say more grey than black, and mine has been mistaken for a tattoo as well. I only wear it on high days and holidays. I persuaded my chemist to make up my last prescription with black sleeves and I definately prefer them to the strange ‘flesh colour’
Andie
glad to hear things are calming down, daisy girl, & there’s no ‘hierarchy of suffering’ in the lymphoedema gang, we’re all in it together - i guess we all read some posts & think ‘poor cow, how does she cope?’ & then v occasionally come across one & think ‘i know a spot on your nose isn’t nice, but in the greater scheme of things …’
but fact is we’ve all got ld, no-one asked if we wanted it & it’s a complete ****er, needs more managing than a small toddler
which is why we’ve got here to come & have a good moan & get cyber-hugs & good ideas - after all, we’re pretty much the ld experts between us, as well
now, anyone got any ideas for when the cellulitis is being stubborn? i’ve been on big lots of augmentin (& therefore mostly asleep) for 2 weeks & the rash is fading but the bruised feeling’s still there & i’m still spiking quite ridiculous temperatures
gp reckons another 3 weeks at least of antibi’s - but wouldn’t i be right in thinking that i should be eating lots of icecream???
despite feeling sh*t, it is lovely having a break from all the compression palaver though - how sad is that??