Hi Teri
Good luck to your daughter with eribulin today. It’s very quick, with saline flushes before and after I can be done in 50 mins. I am in the middle of cycle 19 and think eribulin is a breeze compared to docetaxel. Unfortunately it looks like it has stopped working for me as liver mets show progression but I have had a year on it.
My hair thinned just after cycle 1 but didn’t fall out completely. I lose my taste the day after chemo but it comes back on the day after that. I have suffered with peripheral neuropathy in the last couple of months however in all I would say I found it tolerable. Everyone is different though!
All the best to your daughter.
Helen x
Hello to fellow spongebobbers - hope you’re all ok.
Hi
I’m hoping to start eribulin next Tuesday. Can anyone tell me if you have to take steroids before the infusion?
Thanks
Px
Thanks Nicky and Lizard that’s very helpful
Xx
Thanks liz
…and apologies for the previous typo!
Predictive text can land you in all sorts of trouble!!
X
Hi Phoebe
How are you doing? I see you started eribulin this week, hope it helps you. I am about to start cycle 21, this is likely to be my last cycle as one of the liver tumours has grown slightly. I have a liver biopsy next week & then more scans before they decide a new treatment plan. In a strange way I will miss eribulin!
Good luck x
What other treatments have been discussed after eribulin it hasn’t worked for me 3 months and I was unwell thee whole time I had sepsis twice so I am looking forward to something new x
What treatment are you on now? x
Hello everyone,
‘’how are you getting on, on Eribulin?
iwas thinking, although I really found it easy as far as chemos go…I. Do recall myself. Withasmile. Helen acquarius and smarties finding that it made us get angry on our week off…,…mindyou…now I’d swap with any of you…you could have Paclitaxel and I could have Eribulin …
actually these 15 days-between Paclitaxel treatments have been more pleasant than on the first three cycles…which is a bit strange.
come on ladies tell us how it’s goingxxx
you know yesterday, I got frustrated with my phone and said S**t ! as one does…and Siri said
’I hope you don’t kiss your mother with that mouth’!
I ‘I did laugh. I hadn’t realised he’d. herd me!
anyway, let’s hear how everyone is going,
‘’love Moijanxx
Bumping up for Sarah73
Thank you x
Hi all. Today I started eribulin. Fingers crossed it does something drastic for me. Got all clear in June last year…But now the triple negative is back with a vengeance. It’s on brain…both lungs…breast again…liver and my various bones such as sternum…spine…pelvis…hip bone and lower back. The rate it’s spreading I need it to work immediately! Any one else been on this and what results did you have? I have been told that max i will have is 16 cycles…yet im sure ive seen others on here having more. It’s such a low dose it’s scary that it will do anything! Looking forward to hearing from you all. Sarah xx
Hello all you Spngebobsxx
How are everyone, I pmd you Withasmile a short while ago…but guess you might be away?
Moijanxx
Hi Spongebobbers
How is everyone getting on with eribulin? I do hope that it is helping you all. I have had to switch to weekly paclitaxel as after 23 cycles of eribulin a liver MRI showed multiple liver mets & the largest had grown several mm since Feb. Interesting that the liver MRI with gadolinium shows up much more than a CT with contrast - it did make me wonder why I hadn’t had one before now (had mets for 5 & a half years)…
Miss eribulin, it was tolerable for me and now dealing with paclitaxel. How are you getting on with the paclitaxel Moijan?
How did you manage to go back on eribulin Withasmile? Presume that funding wasn’t an issue? Hope you’re ok.
Take care of yourselves, Helen x
So sorry youve had to stop the Eribulin. Where are you from Helen? I’m only allowed 8 cycles of Eribulin if it keeps working I’ve been told so just curious. Hope your new one has positive results xx
Just found out that part of tiredness and the reason for my severe muscle spasms is because my magnesium is really low. Been put on sachets to see if helps. If not will have a transfusion. But at least it explains few things x
Hi all –
I’m new to the site and looking for eribulin buddies.
I’m in Boston and have had two doses, so far so good (or at least not bad!)
Hair is coming out now but I’m not sure if it’s just “thinning” or whether I’m headed for wig world.
Stats here in US indicate about 20% of patients have success with Eribulin. So far nothing has worked for me, so I figure I’m overdue. Staying hopeful!!
Laura
Hi all –
Chemo routine for Eribulin here in the US sounds the same (day 1,8,15)
I was disappointed not to get into the trial combining immunotherapy (Keytruda) with Eribulin, but excited to know it’s happening and hopefully with good outcomes! If results are positive they may open more slots. My oncologist thinks finding an immunotherapy and chemo drug that work together is the key to shrinking the tumors and progression free survival.
My tumor markers decreased after just two doses, so I’m encouraged 
I had the sensation of numbness in fingers of my left hand for a few days last week but thankfully that subsided. I know neuropathy is a side effect and hopefully won’t be problematic.
Hi everyone- I just had my 3rd dose today. 2 weeks on and 1 week off. Only thing I have noticed so far is a pretty heavy fatigue off and on. No neuropathy yet and no hair loss yet. I am sure the hair will come out. I have never kept it. I have ER+ metastatic breast cancer. Diag 1999; 1st Met to bones 2008; mulitie bone Mets since and 6/2018 meta to lungs. I have had most every chemo over the years, both Iv and pills. So far this is good and I am hopeful this works! You are all warriors. Fight the good fight
Hi everyone
A warm welcome to the new Spongebobbers on this thread. Just thought I’d share my eribulin experience if it’s any help.
My hair was shoulder length so had a short pixie cut, it thinned after 1st cycle but then started to grow and was back to shoulder length when I stopped eribulin after 23 cycles. I did have neuropathy which came & went with no real pattern and I did have the strange no feeling sensation that Withasmile talks about in calves and thighs. No nausea. Loss of taste on day 2 & day 9 only. Fatigue sporadically. All in all it was an ok Chemo, certainly better than paclitaxel which I am on now (no hair whatsoever!). I have bone & liver mets, dx straight to stage 4 in Dec 2012. The liver mets decided to multiply somewhat towards the end of eribulin treatment hence switch to paclitaxel.
I am on Isle of Wight with an oncologist from Southampton.
All the very best with your treatments lovely ladies.
Helen x