Chemo Buddy Needed - Anyone Currently on Eribulin?

I will start mine on wed 16 Jan
I have MBC it has spread to both lungs now. It’s chemo drug no 7…

Hello! After 22 cycles of Capecitabine (which I tolerated mostly okay) it stopped working and I had further progression in my liver so I started Eribulin 14 Dec. That first infusion hit hard and while I felt completely fine (no nausea and only noticeably really tired on day 3) my neutrophils were slammed to below 1 so they gave up on that cycle while I had a power port fitted too. About half my hair fell out just after Christmas but then it stabilised. I’ve completed cycle 2 now and no sign of more hair loss (yet). Neutrophils were 3.6 before the 1st infusion and just 1.5 for the 2nd one, the cut off for delaying chemo. So I’m sure that will be an ongoing issue for me! I did look back at all the comments on Eribulin on the forum and can confirm it is definitely a tolerable chemo! I was straight to stage 4 with lobular BC multiple liver mets and a single bone met. This is my 4th chemo. I’m just coming up to the 5 year anniversary too.
But I’ve never felt ill from the cancer, treatment on the other hand not great! But I have regular equine therapy which is the best!

Hi, my partner Gill, has to go onto a course of Eribulin, as the chemo she is currently on has stopped working. She has terminal bone cancer, and cancer has spread in many parts of her body. Gill has had cancer for 4 years now and is at stage 4. 

 

The consultant has stated that the drug Eribulin can go either way. It can work and help to beat the cancer Gill has or it can make her worse than she is and shorten her life. 

 

Obviously hearing this has scared us both both as we don’t want her life to be shortened and then end! But at the same time I want it to work and for Gill to live on…

So we are both not sure how to approach this, as we have not met anyone or talked to anyone who has the same issue as Gill has right now.

 

So I have come to this forum asking for help and advise about this. 

 

I hope everyone on here is feeling well ?

 

thank you for reading 

Rod