Morning all, its been busy on here! I am just catching up with everyones news.
Blue/ scotty I hope the recovery is going well.
- I had full axillary clearance which was 12 nodes for me - I still have numbness and sensation change from just below my shoulder, through my armpit and round to the back over my shoulder blades. My surgergy was start of Dec. Its more annoying than troublesome, I tend to forget about it. My surgeon has said its unlikely that the sensation will return, but not unheard of, it can take up to two years. The main issues for me at time of surgery was the pain associated with the nerve ending re engaging, and seromas that needed draining a few times. Thankfully though both of these issues were relatively short lived and managable.
Scotty - think it might be path resuts today? Positive hugs x
Jackie- hope your three hour round trip is not driving you crackers, I an not surprised you are tired i am exhausted and I only had to go down the road! Hows Lulu?
Fen hen/Robin - my fingernails have all gone a milky white and I fear that they will start to fall off - I thought I had got away with this Se as last chemo was May 2nd! I also did the whole dark nail varnish thing.
Wtp - great that your team are being thorough, hope the biopsy goes smoothly tomorrow - will you have long to wait for the results? Its such a nerve wracking time isnt it, stay focused on the trip to Sweden. I realise its easy to say but hard for our minds to do this!
Egg, one more to go! yeah!!! Im still blue tooooo!
Esther/slowski - i am also still finding the nagging voice hard to silence. Some days are easier than others. I have had some counselling but I am not sure if it has really helped yet.
I have had a busy couple of weeks - Rads finished on Monday and I do feel tired. I am okay as long as i keep going but once i stop i just want to sleep, unfortunnately its never a restfull sleep. I really struggled with my first Iv zomera - the first 48hrs were similar to chemo, lots of pain/aches fluey, I even experienced some rigors. I have since had pins and needles in my hands consistently overnight, swelling in my hands that does ease off over the day. But all in all unpleasant I am sorry to report. Is anyone else getting this? I had wondered if i was developing lymphodema but its in both arms/hands so that wouldnt fit. Maybe its just delayed chemo se? I have raised with BC team who say if symtoms get worse then to call and they will see me.
I have been planning my return to work - not sure how i feel about this really. Back on the 3rd july with a couple of weeks leave. so first proper day 17th Jully Eeek! i have been off sionce start of Dec. Will need to go wardrobe shopping as nothing fits - still havent heard back from the leisure centre about the fitness course offered via macmillan either despite having left 5 message! Must chase up!
Went to Wembly last weeked for a gig and had the experience of having my head frisked as part of the security checks! Luckily I was able to laugh about it but my 13 year was so embarassed, a real kevin and perry moment!
I also signed up for a clinical trial - called add asprin, anyone else been offered this? Anyone taking part in any other studies?
I realise i have now written a small essay, so if anyone has managed to get this far, apologies for the length, love and hugs! Look forward to hearing how everyone else is getting on.
Take care
