Hi everyone
I’m new and was diagnosed in April had lumpectomy surgery have just been back for results today I’m I’ve been told I have to have chemo with is it herceptine? ?? Someone please please talk to me I’m soon scared and upset the information didn’t really go in …I feel so alone xxxx
Hi I was diagnosed in April too I have already had my surgery too and was told I need chemo haven’t a bloody clue What type mind but yeah it’s a scary upsetting time lots of info to take in and feeling left in limbo till next app comes in post I still don’t have a date for onc app yet and I’m 3 weeks post op! Xx
Hello Louise
I’m so sorry to hear you are scared and alone and hope I can offer some reassurance. This is a really tough time between diagnosis and treatment. I will say as I’m sure many other will echo to jog google and to get all your info from this site and Macmillan as most of the info you will find is outdated. You say you’re alone, do you have support at home or a breast nurse to talk to especially regarding the chemo you’re unsure about ? I’m not sure but it sounds like you mean Herceptin which is given with chemo, usually FEC-T regimen - herceptin is for Her2 positive csncer and if you are also hormone positive you will have tamoxifen. I am just going through treatment myself for this (her2) and it’s tough but doable and Herceptin really is a wonder drug that really targets the cancer and there are many more drugs in the pipeline so the outlook is very positive. I’m 44 and was diagnosed in March after having a mastectomy. I’m sending you a big hug and am here if you want to ask questions. There are a lot of lovely and wonderful ladies on here who I’m sure will soon be in touch to give support too xxx
Hi thank you for reply you are the same as me then
I’m 3 weeks post lumpectomy only found out today regarding chemo … still shaking and feel cold I’m also waiting for my appointment oncology …
Where are you in the country I’m in Nottm…
Not sure how to prepare really just in a daze xx
I’m in Newcastle, It’s quite a thing we have all been through both physical and physiological xx it sometimes helps me to read posts of people a little further on than us to see they are coping really well with the whole process I’ve been fine since seeing my surgeon at last week’s post op appointment but woke up today feeling really anxious and worried about the chemo dates app etc xx hope it helps to know your not the only one feeling like this x x
Yes it really does help also have a friend who is younger who had a full mastectomy chemo asking how she prepared …cutting hair semi perm eyebrows all help il probably wait till oncology appointment did they tell you how many visits I’ve been told 6 visits 3 weeks apart …then I assume radiotherapy. …xx
Hi they probably did I can’t remember I don’t know anyone who has had BC I too had the lumpectomy with some lymph nodes removed (5) with one having cancer in it, but the whole hair thing eyebrow stuff is stress me out… I know it grows back but still!! I think I need 5 or 6 lots and rads but won’t know everything till I see onc doc, I. Bored stiff too not being at work and a good long while off yet! I work in a care home for dementia which is very Rewarding but also long days sometimes no breaks and v stressful at times, plus infection risk! So unfortunately I’m just going to have to stay off till I’m through chemo 
I envy some of the ladies on here who are still able to work through it!
I’m self employed so have managed to sort my work out …I’m sure because of the work you do you will be entitled to benefits of some sort check this out …
Yeah at first I was hoping that it would just rad therapy but that’s changed me too 6 then rad but with injections of herceptin …you are feeling probably just like me feel lost upset angry scared I just want to run away and hide I feel as if I’m never going to be happy or live without fear again or just live xxxxx
Hi thanks for your reply
I’m not alone I have a husband some great friends just feel because of my situation
Min sounds like yours hounds like you have started chemo what did you do to prepare ?
Xx
My boss has been great! I may be able to do some admin once ssp runs out I have made a claim on my ins critical illness, don’t know if it will be successful but worth a try!!! My family hubby and friends have been very supportive, but yeah I’m going through all the emotions you described!! But onwards and upwards we will get there and come out stronger on the other side of this I. I’m sure xx I’ll keep you updated!!!, take care for now x
Haven’t Started chemo yet waiting for appointment forgot to mention that before just waiting for app x
Hi Louise. I had lumpectomy 5 weeks ago and waiting to start chemo have appointment on the 19th June! I need 6 lots every 3rd week of chemo then 18 lots of herceptin once every 3 weeks so in total a good year of having it plus radio and another small operation! It’s a long winded process but one that Is good really in the outcome! We are all here to help and support each other xxx
Queenbee!
My oncology appt is on the 19 th June also!
We could be on the chemo thread together!
Sandra x
Hi queenbee
Thanks for your reply and all others it’s what I needed only been told today about Chemo …I feel it’s set me back a bit as I was feeling great and positive but you guys have really helped …I’m giving myself today to digest and gather my thoughts and strength … feel a bit useless …thanks all xxx
We all get like that. I need another operation… it’s not bad it’s just too get more tissue but it’s a Ser back when you plan in your head the time scale of things… I am all cancer free now but still need the treatment which is a bit poo really but they want to give me it all… digest and gather as much as you need… you need it as it’s such a rubbish thing to go through but with each other’s support we can all get through it! X
Sandrasussex hopefully I’ll have a chemo buddy then xx
Queenbee
I will hold your hand if you hold mine! Even if virtually!
Sandra x
Isn’t it good to know that we can get support from each other on here when we are going through this we all seem to be going to start treatment at the backend of June xx
As you say Mishy
It’s essential to have support from everyone you know family friends …but only people who are going through this or have been through can understand share and help with your inner thoughts and feeling talking about every really terrifying thing those goes through your head …I was so terrified earlier today but you lot have all helped me let’s all share our experiences as you say looks like we are going to start chemo together …in going to need all your lots help to get me through this …and il try and do the same xxxx
Thanks hun, ad I could help, this forum has been a Godsend for me I’m the type who keeps real feelings in so I don’t worry my kids hubby mam etc! Sometimes I feel great but sometimes I feel like a wreck x so yeah we can all give each other some much needed morale xxx