Sorry I haven’t been on since my appointment to get results from surgeon, I met oncologist last week for radiotherapy she said I will have 20 sessions total 4 weeks, she organised CT scan that was booked for today after I met other oncologist about chemo and tablet, CT didn’t go ahead as oncologist said she wants to do chemo 4 rounds of TC, even though my onco score was 17 giving a 5% chance of reoccurrence she said that it based on over 50 post menopausal, I am 52 premenopausal so my reoccurrence chance is higher, also my largest tumour of 37mm was made of lobular & pleomorphic. She said there could be a chance a piece could be anywhere else in my body which wouldn’t just give reoccurrence in my breast it could be anywhere in my body. I was very shocked that I’m having chemo because radiotherapy oncologist said she didn’t think it would be suggested. I totally get why they want to do it just need to get my head around it, will be starting next week. Again another surprise outcome from appointment
Hi Nancy,
Tried to reply to you earlier but my message got bounced. Just resending; hope it’s going well and you’re able to stay active or whatever makes you feel good.
Hi
I had a very similar profile but at 63 post menopause. Lobular not pleomorphic but in several lymph nodes. I got the 4 rounds of TC last year this time. Stayed pretty active throughout, including gym ( elliptical) a little running. It sucks but not as horrible as I expected. I did cold cap which was hard to sit through but saved some of my hair. If any questions or thoughts feel free. Sorry you have to deal with all this. I never anticipated chemo either.
Hi kaq thank you for replying, I am on day 7 after 1st chemo, from Thursday to yesterday was hard, the bone pain from the injection I received Wednesday to boost my blood cells they did say day 4-7 I would feel bad, did you feel like that? Also I have a pain in my chest which I am putting down to indigestion any suggestions on what to take for relief? I am drinking chamonile tea. Any tips would be great, thank you
Hi Nancy - sorry it’s been hard and I think that’s about right about those days 4-7 and you’ll start to feel better.
I didn’t have chest pain; I assume tea is good; I did drink tea; chamomile good.
I did feel icky and didn’t know what to eat. A friend with chemo experience brought me soup and sorbet a few days in that was a lifesaver. Able to eat and feel better. I think I ate oatmeal for breakfast.
Assume you might have these covered but did they give you dexamethasone days -1, 0, +1, helps counteract the chemo effects; And loratidine (allergy med) days following. Helps with bone pain?
Did you cold therapy your hands and feet during chemo? Helps reduce neuropathy. Have to have good ones.
My worst side effects were pounding and buzzing in my head and some neuropathy. And just icky otherwise. Staying active (exercise), foods I mentioned, drugs above helped most. Epsom salt baths also helped (another gift from my friend).
Also think the first is the worst.
K
I haven’t had any of those prescribed kaq, I am in Ireland maybe different here. The only thing prescribed for the bone pain was tramadol pain killers. I am on anti nausea tablets, tablet for my stomach & mouthwash, they are the ongoing meds. I wasn’t offered colding for feet or hands. All these things obviously worked for you. Glad you didn’t find your chemo too hard, hoping my next one will be a bit easier or do they get harder as they go on?
Dexamethasone is used to treat cancer, to decrease inflammation and sometimes used before and after chemotherapy to prevent or treat nausea and/or vomiting
(you should inquire; made huge difference I assume)
I ordered the cold things on Amazon if you get that in Ireland?
Be careful with anti nausea meds. I got REALLY constipated and hardly took any.
Loratadine is same as Claritin (over the counter) allergy med - 1 a day for 5 days following chemo.
Also rinse and brush teeth with baking soda.
I took weed gummies on my worst days.
Hope this helps - I’m Irish 
heritage 100%
Also I would absolutely inquire about chest pain. I don’t remember hearing that as side effect. My oncologist was very accessible. I hope it is the same for you.
Also, sorry I got back to you so late;
I am same with ILC. Wasn’t seen on mammogram & further tumour found on MRI although that was IDC. Had mastectomy but didn’t get full clearance. I won’t receive a scan now treatment completed to confirm all caught. Advised the same, yearly mammogram on healthy breast. I’m now considering private MRI. Has anyway had quotes for this & do you just have MRI on chest.
I got a quote for an MRI in Bristol at a Spire hospital. Was £750. Had mastectomy for multicentric lobular - 3 tumours not seen on mammogram or ultrasound. Found in routine screening because of microcalcifications. Worried might not be so lucky with my remaining boob. Seems harsh only to offer mammograms annually (although I understand the resource constraints).
I have extreme dense breast so they know mammograms more often don’t pick up, so seems bizarre why nothing more is offered. All about yearly budget rather than bigger picture (my view anyway 
).