HI all , have my2nd CMF on Wed , had one a week ago. (seven more to go) Soon as I got home had a panick attack But it only lasted three Days instead of five days with EPI. Am I doing this to myself or is it chemo. How can I stop it happening in first place if it is psychological. Has any one got any ideas or if you have suffered the same do you think it’s chemo pushing adrenalin up.The panics rise up one after another till I feel like going h ysterical. I am completely useless during this stage unable to get interested in anything.
Love Bobbie
I personally think its horses for courses, I saw the oncologist yesterday (proffessor Grieves, Coventry) and he said the chemo is the hardest thing you will ever do in your life, i remember not being able to step out of my front door alone, but why dont you phone the breast care nurse,
Anna
Hi Bobbie,
You may find it helpful to give the helpline a call and have a chat with one of the nurses here, hopefully they’ll be able to give you some help and advice. The lines are open from 9am this morning. The number to call is 0808 800 6000
Kind regards,
Jo, Facilitator
Hi Anna I am also under the care of Prof Grieves, MY friend Naomi mentioned you good to hear from you. I live in Rugby and see him at St Cross , he is a fantastic oncologist and I feel very lucky to be under his wing. Did you have panic attacks during post chemo stage??? I am going tomorrow to Arden Centre for 2nd Cmf , thenfinish tabs next Tues and have a two week break and have six more sessions to go . If I only I could control the panic attacks and of course the debilitating fear, I feel I could cope with all the other things better . I’m not fully convinced it’s all me because there is always a pattern to the panics. I did have anxiety and deppression Years ago and got agorophobic and I never want to go there again. BUT I can feel everything slipping away. WOULD love to hear from you and perhaps you would tell me what stage your at. Love BOBBIExxxx
HI Anna Hope you got on ok today ? I live in the Shakespeare Gdns area of Rugby Hope you radio is’nt going to be to long . How many are you having??? Is there a time set between finish of chemo and start of radio. You will have to tell me what happens as I only have knowledge of it through hubby , who had it last year (prostate cancer) speak to you soon love Bobbiexxxxxxxx
Hi Bobbie,
Went for my second cmf this morning only to be told my neutrophils not up to the job so I have to wait a week and go for another test -they are hopeful it will be okay then but I have to have a booster of some sort G something when I do. Didn’t really take in the gobbledigook as I am determined not to worry up front about that. So …looks like your now ahead of me! I always have Friday appointments…are yours regular Wednesdays?
Odd isn’t it the blood cells okay when I felt like c*** but now I feel better but a bit tired theyre not.
Aah well.
How are you doing? What are the tablets like?
love for now,
Kay x
HI Kay Had part two Cmf Wed, not feeling to bad except for absolute exhaustion.
Pills seem to be going ok , bowels a bit funny diarhoea, take imodium then have to have fybogel to get me going again. Definetly easier than EPI. Due for 2nd course 23rd April. Thank goodness a lot of the fear as gone Although I have six more CMF IV to go, Nurse refers to this as 3 courses , sounds better as well. Let me know how you get on , sorry your treatment is delayed BUT think of it as one more week thats all. Nothing really when you compare it with MONTHS of treatment (hope that makes sense ) Love BobbieXXXX
HI Bobbi & Anna
I am also under Prof Greives but at Coventry.
Just had my 3 Epi feeling sick and horrid taste par for the course they have trouble getting my veins.
Bobbie you mentioned that you went to the Arden centre I was there on Thursday getting mine
Would love to hear from you both
Sharon
x
HI Sharon I was at Arden centre WED . The Epi is a real pig, ARE you having CMF not half as bad as Epi but have more upset tummies. There is also Naomi and Jenny (on this site) who are attending Arden centre under Prof Grieves. He is a great guy
and If I have to have cancer I’m glad i’m under his wing. My onc nurse is Caroline but have also seen Julie, they are so caring. One more Epi to go EH!!!
Love Bobbiexx
hey guys… a Rugby/Cov/Prof Grieve and caroline fan club sub cluster forming???
… I am a wednesday person for treatment at arden and will be there this wednesday for last epi (apols to those who have read this elsewhere…) BUT YAYYYYYYYYYYYYYY. for some reason i always sit by the screens near the loos at the Arden Centre while waiting… maybe good to have coffee one day? assuming we can all find a day when we feel ok???
I go for blood tests at St Cross and feel such a heel when they say ‘just go thru’ and everyone looks at you!!
I live in Brownsover
TC
Jennifer
im at the arden centre on wed and at cov hosp on thursday, i would love to meet up with you all, and just to let you all know i am a fan of grieves i should see him this week so ill let him know of his little fan club!!! and i need to speak to caroline and i think she might actually cry if i told her the conversation on here. Did you all know that Kirsten who is the Rugby BCN is now back after maternity leave, ive met her once on a social occassion and she seems very nice, however i would not swap from either of my nurses at Cov. (SUE and Caroline)
Maybe we could all get Caroline a joint present when weve all finished our treatment, at least it would be a decent present and keep costs down!
Anna x x
HI Bobbie Anna and Jennifer
I will be having my last Epi in 3 weeks then on to CMF I usually go o Wednesday’s but it was my sons birthday last Wednesday so changed the day.
I havent seen Prof Greives yet only Abel due to see him shortly. I agree with Anna I wouldnt swop any of the nurses Caroline Judith or Sue for any one else they are very caring and answer any questions honestly as they can.
How does the CMF work I cant make head not tail of it? After the chemo has finished I will be having 15 rads and Hecpitin and then that tablet for 5 years. It still seems like a life time.
Anna I met Kirsten on Thursday I was due to have my back drained and she was with Sue but they wouldnt do it not in to much pain with it.
Hope you are all keeping your chins up
Sharon
xx
Hi guys…
reading this thread the thing that struck me is that we are all moving forward… we’re all getting the treatments and while they may make us feel grot for a bit… at least we’re doing something… i’m really glad the CMF has been easier - tho it sounds a bit like a bowel foxtrot going on!! Hope it continues to improve.
Hope things go well for you Kay and your bloods come back up to par.
jennifer