Keep positive about the cap ladies. I shed what seemed like masses of clumps after first fec and then no more! Combover and loose ponytail worked for me x
Iām also using the paxmam mishy. I invested in the paxmam shampoo and conditioner as well as apparently it stimulates hair growth. Whatever conditioner youāre using they advise you only need a coin size worth combed through your damp hair.
Although, Kathryn has been lathering hers and is having great success. ?
I really do think itās because your hair is so thick. After everything Iāve read Iād think the shedding will ease off for you soon. ???
If youāve got lovely thick hair, hopefully it should hide the loss.
I called sunderland hospital yesterday and theyāve added me to the look good waiting list. I just thought, if Iām having a dodgy day itās less for me to travel.
However, I almost feel like Iām tempting fate saying it, but this second dose has been even less nasty than the first (so far). I was doing some pretty heavy gardening by yesterday afternoon. Feeling extremely lucky, I really feel for those of us who it isnāt being so gentle on. Maybe itāll be the T that knocks me out ?
Angela x
Thatās brilliant I hope this one on Monday is fine Iām looking forward to having an easier time! Yeah I nearly gave in yesterday and got it all cut off but decided to hold off and have a bit of faith in my Barnet going to fill the rest of my good week in the garden and having a trip to the coast!
Yeah maybe itās better to avoid public transport if you can you should get someone to take you to maggies for a coffee itās really nice x
Hopefully the weather will fair up so I can do some gardening x
Thanks good to know, you know I have said I will persevere once more as you said you believe the cold cap helps with new regrowth which was what bothers me most, but I I will do the shave once bald patches appear as with thick hair it can be more visable at least I know the Fec is working as I will lose everything to prevent a recurring cancer x
Hair update no 3
Well my hair is abandoning me as a speak bald patches all over there are clumps strands keep failing Iām absolutely devastated tbought the cold cap was going to help me keep it, itās matted and needs a wash but I am literally scared to wash it incase more falls out having next treatment on Monday and donāt know whether or not I should go for the cap just once more for my follicles or whether I will have enough left 
I desperately wanted it to work in their eyes they will probably say well but you still have hair but what is the actual point when it looks like this x
I need to get my hair to the back of my mind so I can deal with my next chemo x
Sorry for the whine ladies I hope you do better with it than I have xxx
Hi thanks for understanding I think as my next treatment is Mon I might as well do it once more then have it shaved I canāt let my hair obsession hold me back in my treatment I need to be stronger than a gibbering hair wreck! So I think I will take your advice and go scarf shopping xxx
Awww sorry to hear this mishy. Such a shame when we u have went through the time and effort of the cold cap. I donāt really have any advice as but thinking of you. This part will never be easy so definitely go out and treat yourself and make yourself feel a bit better xxx
Iām gutted for you mishy. But as you say, the cap may help you in the long run. Hopefully the shed will slow down after this. ???
Ive lost probs 80 % of my hair today woke up with enough to make someone a toupee! I had a total melt down over it yesterday but this morning accept he fact that itās almost gone I would have shaved now but want to do one more cap for my follicles if the nurse will let me then when I get to week two itās coming off x
How are you doing today mishy? Have you lost anymore?
Iām sure I lost more hair than usual when I washed mine this morning and now Iāve got a mild pain across the top of my head. ?
Hoping this is not the beginning of a shed for me and itās just my hair paranoia. X
Hi I had to shave it off last night it was horrendous it looked awful just matted clumps of hair with lots of bald patches it was making me ill looking at it! My head was hurting too so I decided that was it I couldnāt disguise it as it was too bad x I hope you all have better luck with it than I have had got my second fec today so Iām hoping this one is better than the last x once mine started that was it so I hope you both have better luck I rang the chemo unit about it and they said as I have shaved it I canāt cold cap anymore as it will cause scalp burns but to be honest I think I wouldnāt have had enough to use it today anyway and the sight of it was causing me to have crying fits it just looked awful i filled a carrier bag on my last shed without what was hoovered up xx
Sorry youāve had to give up on the cap mishy. Iāve read for a lot of people hair starts to grow again on the T. So hopefully you wonāt be rocking the shaved look for long. To be honest, Iāve had mine cut so short in prep for a fall out I barely recognise myself anyway. Even though people say I suit it, every time I look in the mirror I just see a cancer cut.
The pain on the top of my head has stopped, so Iām hoping it was all in my mind.
The things we have to go through. ?
On my way home from last chemo a lorry drove past and written on the side it said āif youāre going through hell, keep goingā
I thought it was very poignant. We will make it through this and our hair will be back better than ever. ? X
Yeah back from number 2 feeling not to bad nurses said I did right thing shaving it off as probably couldnāt have cold cap with that much hair loss she says my first dose was really aggressive so she wasnāt too surprised Iām getting used to it now! I have my scarf like a retro turban from 40ās/50ās looks OK just need to wear make-up!
Aww Mishy so sorry it didnāt work for you. I was lucky, I canāt say I understand how you feel but Iām trying to. You sound very positive today, I think it just takes a bit of time to come to terms with it. Keep practising different scarf styles - thereās lots to play with.
Keep going, slap on the make up and make yourself look glam x
Hi mishy. I think youāre right, glam is the way forward. Some of the turbans are gorgeous.
Maybe if mine goes Iāll try to pull off the kylie look (wishful thinking).
Well done getting through round two. Xxx
Yeah the kylie look, I saw a girl in the unit and she had her scarf on lovely I want to avoid the Iām on chemo look if I can! So I think Iāll be hitting pinterst for some techniques, today I donāt feel too bad hope you girls are going to persevere with the cap if itās working I just hope as you have got this far with it wonāt start to let you down, I know you will probably feel like I did if it does start it took five days from start to finish to lose majority of it so fingers crossed for you all but if it does start donāt do what I did and torture yourself for an extra day looking at the very grim reflection in the mirror of it I should have probably done it that evening x but never mind I can say to you all that bald is def not as bad as the glum look I looked like I was dying!!!
Stay strong hair buddies xx
Well I took the plunge and collected my wig today. If you see this Kathryn, itās a long real hair one from tribeca. I absolutely love it. I feel like me for the first time since I had all of my hair cut off. I canāt believe how realistic it is and it was half the price I thought it would be.
I havenāt lost any hair yet, but definitely didnāt feel like myself with my extreme short cut.
Hoping I continue to have luck with the cap, then when my hair grows back to chin length I can have extensions next year.
Pleased you like your wig x something to give you back some self esteem I know what you mean about not looking like yourself any more x I have asked for a wig voucher to see what is available x but my mam has real hair wigs as she suffers alopecia has done for years so wouldnāt be without them x Iām sure my eyebrows are thinning too bloody fec itās ravishing us isnāt it!!
Mishy so glad your feeling better about your hair. I bet you look fabulous withoutā¦ whereas I would resemble a Spanish footballer. Angela could you send me a pic of the wig if you donāt mind. Did it take you long to actually get it from ordering? Iāve not ordered one yet as donāt want to tempt fate. Hairs still holding on but starting to get very dry so Iām putting cocunot oil on which then makes it really greasyā¦ but id rather that than have it snapping! I was due 3rd fec on Thursday but my daughter has a sickness bug now so theyve delayed treatment until next week. I think my body could do with the break after hospital etc but the longer I delay the more I donāt want to do anymore xx
Hi Kathryn. PM me your email address and Iāll send you a pic. Not sure how to upload one onto here from my iPhone.