Cold Cap - did it help keep your hair?

Summer, I am exactly the same, I will be bald by weekend if this keeps up, hope it slows down

I was 47 when i had my treatment my hair has always been really thick,like you i was upset about the effect of chemo on my hair. I used the cold cap and kept all my hair,It went a little thin around the edges where the cold cap didnt cover but most people didnt even notice. i lost hair from everywhere else so without the cold cap i would have certainly lost that hair as well. I also looked after my hair using a really gentle shampoo and not washing it for a couple of days after treatments.If you can stand using the cap i would definately say use it

Hi Summer & Aml
I know the shedding seems neverending and for me it didnā€™t stop which was very worrying. Like you I thought that I would be completely bald by the next chemo but it is surprising how much hair you have. Everytime I combed my hair I was shocked at the amount that came out but as my earlier post said I did keep about 30%. If you can avoid touching and combing then I would but I know thatā€™s easier said than done. I have been wearing my wig since before my second chemo as I didnā€™t want to look any different to people and very few people have noticed even those that knew I was having treatment. Underneath the wig my hair was a real mess and maybe some would say why bother with the cc but for me it meant I was fighting to hold on to some kind of normality and a chance things would return to normal quicker which I believe they have. I will carry on with my wig until my hair is a bit longer and I am able to colour it. As I lost hair from everywhere else Iā€™m sure I would have been completely bald. My eyebrows and lashes started to thin by my third chemo so I started to use a conditioner from boots which I think is called mavala and costs about Ā£11. You brush it on every night and for me it worked and my eyebrows and lashes held on which was a real bonus.

i was told that because i was getting tax after the fec there would be no point in using the cold cap as tax makes your hair fall out.
i did not use the cold cap and just shaved all my hair off to a skin head but the hardest part was when i started the tax and my eyebrows and eyelashes came out, i feel that was worse than loosing your hair.
i would prefer to have no hot flushes than have my hair back to be honest as my hot flushes are a nightmare.
i dont know if this is true about the tax but thats what i was told at the hospital.

Hi All,
Iā€™ve been using the cold cap and so far had 3x docetaxel (T) and 2xFEC (still got 1 more to go).I have always had long thick wavy hair that I washed and straightened every day so the thought of losing it really upset me. Despite always feeling the cold normally I decided I had to try it and if it didnā€™t work at least Iā€™d had a go. Iā€™m pleased to say that I still have virtually all of my hair left although it has thinned at the back but this is under the longer lengths of hair and not noticable, I think this is because the cold cap doesnt reach that far down. There is also a very small area on the top that thinned very slightly after 2nd docetaxel but it was because the cap wasnā€™t on tight enough and that has started filling in and is about 3cm long now.
I had it cut into a shortish bob and dyed back to its natural colour before I started chemo. (I didnā€™t want to end up with dark roots).
I use Simple shampoo and conditioner which is ph neutral (quite cheap from Wilkinsons and Home Bargains).I was told by the nurse not to use baby shampoo as it is not ph neutral.
I wet my hair thoroughly in the sink at the hospital and also take a small spray bottle to wet any bits that arenā€™t completely wet then gently comb with a wide toothed comband then completely smother hair in conditioner. (I take my own conditioner).
I take a couple of paracetamol as soon as I arrive at the unit and take a flask with a hot drink to have ready as soon as they put the cap on. I also take a charged laptop so I can watch a favourite DVD (if you know the plot well you can dip in and out when the nurses come to talk/change drip/administer drugs etc without losing the thread of story). I busied myself setting this up in the first 15 mins of cold cap and concentrating on that helped to take my mind of the cold. This time is the worst but it does wear off and I it found bearable.
Because I always feel the cold I wear a thermal vest, skiing thermals under my jeans,thermal socks, a fleece jacket and take my own fleece blanket (some of the other ladies take fleecy dressing gowns) and a flask so I can have a hot drink whenever I want, rather than having to wait for the tea trolley to come round.
I take a hat to go home in and then wash my hair gently in tepid water after 48 hours. I use conditioner and dry it with the hair dryer on the cold setting. I use a round brush to hold the ends in place while I dry it but I donā€™t pull the brush through my hair often. (At first I just let it dry naturally but it just made me feel a mess, doing the above and treating it gently made me feel better and because it looked like normal, more determined to keep going with the CC). I use a silk pillowcase and only comb it once a day.
I wash it twice a week and hair does shed but when I washed it everyday pre chemo I always had a certain amount of hair coming out so I donā€™t worry too much as Iā€™m probably only losing a little bit more than normal.
When I saw my consultant she said as I had kept my hair through the docetaxel I would probably keep it through the est of my treatment. There are some statistics on the Paxman cold cap website showing the percentages of people who have kept their hair during FEC and docetaxel that I found useful.
Although I know it doesnā€™t work for everyone I thought it was worth a try. I went into it with an open mind. I prepared for losing my hair by getting a wig, hats and scarves, I also watched videos on utube of how to tie scarves and practised a bit.I prepared to lose my hair and thought that if I kept any that would be a bonus.
I hope that this might help a little bit and I know everyoneā€™s experience is different, even if it doesnā€™t work for you it will grow back afterwards. It might also help to look at the posts of the amazing people on the forums who have lost theirs or decided to not use the CC who are strong supportive people with positive attitudes.
I hope it works for you ,

Lots of good stories here! My hair started growing back after my 3 FEC and during my 3 Tax. I had heand that if you keep it for FEC then you should be ok on Tax. I lost all other hair over the course of chemo though, including eyebrows and eyelashes, though makeup could help with those.

For me the shedding was worst after my 2nd chemo and then kind of levelled off, so I shed hair throughout but not as much.

hope that makes sense! Good luck everyone!

Thanks all great advice Jus :wink:
I think the ā€˜keeping my hair focusā€™ itā€™s partly having something to think about other than the BC and I think itā€™s only when Iā€™m bald that it will hit home that I really am living with this decease so Iā€™ll keep shedding around theplace like my dog and she how it goes!
Definately less shedding today than last two days though and not bad SEā€™s off the fec so bring on round three.
Good luck ladies xxx
Lollo- is that malava conditioner especially for eye lashes/brows?

Hi Summer
The conditioner is for eyelashes and brows and I think it really helps. Iā€™m still using it but only every 2/3 days and my eyelashes have never been so long!! Wish I had used it from the start as one eyebrow is alot thinner than it used to be but at least its still there. I know you can buy other eyelash treatments but I thought this was a good price (Ā£11ish) and its lasted me since October.
Have a good weekend
Lol

Saturday now and hair still okay so pleased with CC - cant tell if Iā€™m shredding less but Iā€™m tying with a scrunchie to distract me;)
Thanks LOL in off to boots today xx

I recommend Faith in Nature - tea tree conditioner. It was recommended by the hospital and you should be able to get it in health shops or maybe Holland and Barrett. Itā€™s not a leave in conditioner, but it smells lovely and - so far so good - I donā€™t want to tempt fate! :wink: it has worked for me ! (Iā€™m 17 days post fec2 and havof still have a good head of hair).

Hi girls - just wanted to say that I think you are ALL amazing

Thanks for all the great advice and support that is being given x x x x

Hi all
may i join in and ask a quick question please.
I am on TC chemo regine and using the CC. Today is day 17 of my first cycle i know peoplw say day 18 serms to be the day you will reslly start loosing. Today and yesterday my scalp along back hairline and some of top of my head is sore and tingly. If i tug hair around hairline i can tug it out. Im really worried and would like to know did any of you whi kept some hair during Cc treatment get tingly too oris thus def game over for me?
Would love some feedback. THANK YOU X

Hi Lavendersun
I know my scalp has had tingly moments but not really painful but if you read on some of the forums some ladies have said it hurt when their hair fell out so fingers crossed for you that the pain isnā€™t too bad.
I think that the word tug and cold cap donā€™t go hand in hand;) if I tugged my hair it would pull out for sure - if Iā€™ve caught it in my scarf for example more does come out so just be really gentle- my chemo nurse said it would come out in clumps if the cc wasnā€™t working and atthat point she says shave it off! Sheā€™s very pro cc and recons itā€™s a 50/60 percent chance it will work. Iā€™m day six post fec2 and having been out and about today no one could tell the difference on my hair and I feel like the amount I have been shedding must mean Iā€™d have none left but just goes to show how much hair we haveā€¦ For now;) good luck xx

Hi lavendersun, my scalp got sore and tingly before I had my biggest shed of hair, but then that was it. It kept moulting throughout but the sore tingly feeling went away, and the moulting was much less (still hair fell out every day tho). I agree with summer71 - donā€™t pull it! I know itā€™s slightly addictive :wink: but try not to. Perhaps wear a hair band to keep it out of the way and stop yourself from just seeing how many hairs come out if you put your fingers through your hair.

By the way, even though Iā€™m talking about a big shed of hair, I kept most of it and people didnā€™t notice that I had lost any unless I pointed it out to them thanks to changing my parting around and wearing Alice bands etc.

Good luck!

I have had 3 tax and between week2-3 of first tax lost some round hairline but a few weeks later it Was growing back. My head is quite often painful and have thinned a bi but not hat noticeable to others.

hope this helps

Wendy

Oh ladies
Thank you so much for your answers. I was feeling down today but it looks like i may still have hope.
God knows why i am tugging my hair i just want to see if attached and then get upset if it does!!!Crazy i kniw!
Well my next chemo is Fri and i will persevere with CC as long as i have hair by then.
Thank you all soooo much xxxxx

Hi ladies, itā€™s my first time on here, hope your all well? Xx I am starting chemo next week, and wondered how successful it was with TAC??

Hi ladies, itā€™s my first time on here, hope your all well? Xx I am starting chemo next week, and wondered how successful it was with TAC??

Hi ladies, itā€™s my first time on here, hope your all well? Xx I am starting chemo next week, and wondered how successful it was with TAC??