Hi All, i was just looking some advice, i have been taking tamoxifen for 6 years, i was dignosed in June 2010 & the 1st year of taking the drug was unbearable, as im sure many of you know. I only turned 40 in June16 & because of my age & my cancer being ostergen positive the consultant wanted to trial me on the drug for 10 years, that was back in Feb16.
all the initial problems with tamoxifen had balanced themselves out, so i agreed to stay on the drug. But since April 16 everything has literally went downhill. I have always been gym bunny & kept myself in shape, my whole body shape has changed dramatically, people have actually asked me am i pregnant, which is embrassing. My joints are so painfull, i put it down to having lymphadema in my right arm due to lymph node removal, but that was ruled out yesterday by my physio. My left knee is constantly sore & have shoulder & neck pain everyday. I am training to be a yoga teacher & i am even struggling to hold & maintain some of the simplest poses :(.
I understand the importance of this drug, but the side effects i am feeling now i just dont think i can bare for another 4 years.
i have contacted my oncologist secretary yesterday to make an appointment to come of this drug & try an alternative.
However i am thinking of weaning myself of it now & keeping a journal of the progress.
i am new to the forum so apologies if i sound a bit long winded lol, im just looking information for others who have went through this.
God bless Debs xx