Constant sour taste

Ive had my chemotherapy a year and half ago, but now I am constantly left with a sour taste in my mouth, as though ive just been eating lemons.
Some foods seem to switch; sugary foods or drinks taste of salt, and certain foods seem to burn my tongue.
Certain times of the day, this taste heightens, for no reason.
Everything ive read, says these changes are only for a short time after chemotherapy, but this doesn’t seem to be the case.
I have had SLE and been taking various steroids and medication over the past 3-18yrs, so are these ongoing medications now contributing to the taste because of the chemotherapy, or this is a single situation completely because of the chemotherapy.
Hoping to get some answers with this.

Thanks in advance :smiling_face:

Hello Concerned 75

Thank you for your message. It sounds as though you are having a difficult time with ongoing taste changes.

The length of time taste changes last after chemotherapy for breast cancer is variable, and although for many women this mostly resolves within a few months, for others it lasts much longer.

It is difficult to say if the other medications you take for SLE are also affecting your taste. Many medications have side effects which can affect taste and smell. If you have and SLE specialist, you might want to talk to them about this. Lupus UK may also offer some support and advice.

You may find it helpful to read some information on managing taste changes. There are some good suggestions of foods and other things to try.

A referral to a dietician might help you manage these symptoms. You could ask your GP about this. You might also want to go back to your breast cancer nurse or treatment team to discuss your ongoing symptoms . The Nutrition and Living with Cancer Helpline - World Cancer Research Fund (wcrf-uk.org) might also be a good source of information.

Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen, talk things through and signpost you to more support and information if necessary. Your call will be confidential, and the number is free from UK landlines and all mobile networks. The number is 0808 800 6000, (Relay UK -prefix 18001).

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Best wishes

Angela

Breast Care Nurse

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As we are unable to monitor for further replies, this thread will now be closed. If you have any additional questions or would like to provide feedback, please start a new thread, call our helpline, email us or request a call back.

You can also signpost to the new nutrition helpline The Nutrition and Living with Cancer Helpline - World Cancer Research Fund

Oh yes I had forgotten about that one. Will add it