Following on from the “cooking in April/May thread”, is anybody out there starting their Rads in June ?
I am due to start on Monday 1st June for 20 sessions, followed by a further boost of 5 more - lucky me !
Because the hospital is a long journey, I shall be staying nearby in our campervan monday to friday and just coming home for the weekends, a sort of holiday !
Any more newbies to Rads ? Good luck to us all and have a great Bank Holiday weekend. Love Jan xx
Hi Jan
Not quite yet, I am just coming up to the end of chemo, first appointment 22nd June and start 15 sessions on 29th June. Not quite sure what to expect, thought it would be easy ride after chemo, but not so sure now. Onc says to be prepared for sores, bleedy etc, really cheered me up!!!
Where abouts have you got to go for your rads jan, sounds like a bit of an ordeal?
Have a great weekend yourself,and would love to know how you are getting on
Lynn x
I am starting mine on 11th June. I have 15 sessions followed up by 5 boosters. Have had planning appointment and got a couple of tiny tattoos. My current paranoia though is that the CT Scan is going to show up something else and I can’t seem to shake that from my head. I was told to use aqueous (sp?) cream so I need to go and get some. I forgot to ask whether they will be zapping just my breast or my underarm too although my lymph nodes were clear.
Hope it goes well for everyone. LooLoo x x
Hi all. I started rads last Wed - 15 sessions for me and I finish on 10 June. No problems so far, except the odd twinge. I’m slapping on the aqueous cream and going bra-less as much as possible, as instructed.
Lynn, I don’t think everyone gets sores etc. Lots of people seem to get just a bit of soreness. The onc is obviously preparing you for the worst case scenario.
Looloo, I’m sure they won’t zap your underarm if your nodes were clear.
Sal x
Good Morning All, its absolutely pouring down here, we must be the only place in the UK to have had a terrible wet weekend !
I have 7 days left till Rads start, feel I should be doing something whilst my time is still my own, but don’t know what !
Lynn - Hi, I live on the west coast of the Scottish Highlands in a tiny village, only 10 people, and travel to Inverness on the east coast for all my appointments which is 75 miles away ! Quiet a few miles along single track roads and quite bumpy and pot holey but also beautifully scenic ! I declined Chemo, just on the Tamoxifen at the moment. Whereabouts are you ?
Hope everyone has a good Bank Holiday Monday, Love Janet x
Hi All
I start 3 weeks of Rads tommorrow Tuesday 26thMay. I too have a 2 hour round trip each time. I have read lots of the posts on here and I thought I was prepared. Had a few days away last week and planned a quiet bank holiday at home so I would be as relaxed and ready as possible. Then Wham on Friday got a bad head cold which has now progressed to a chesty cough.
My question is will my treatment still be able to go ahead as planned? (I do feel better this morning but I dread having a coughing fit when I am supposed to be lying still) My sessions are 1st one 24mins followed my mostly 18mins, with a few only 12 mins long.
Any body else not been well from “normal” ailments and still been ok having their rads?
best wishes Wendy
Hi Wendy, Can’t help with your question just wanted to wish you lots of luck for tomorrow, keep us posted how you get on. Whereabouts in the country are you ? Have you started using your aquaeous cream yet ? I have got some ready but do not know if I should have started using it or wait until Rads begins. Hope you are feeling better and sending a big HUG for tuesday. Love Janet xx
Hi guys
I start rads on Weds and am dreading it. Just the thought of hospital everyday for 6 weeks does my head in. Would have liked to spend some time away with my little one before he starts school, but feel my precious summer is disappearing! I’ve had a bad cough and cold too this week and am worried about having a coughing fit!! Do feel very lucky (??) that I am only a short bus ride away after hearing about some of the journeys people take though.
What with the heat of rads and my new hot flushes…will be like a little heat bomb!
Gxx
Hi Janet Thanks for the support. I am in Somerset and have to go to BRI in Bristol. Cold much better today but still worrying about a coughing fit. Yes I have started the cream, the last 2 days, not sure how much to use etc will have to ask today. Just waiting now for my lift to fetch me at 8am for a 9.46 appointment, nail biting will let you know how it goes later.
Gemdancer I thought 3 weeks was bad enough but 6!!! originally mine was supposed to be 4 weeks but they have changed it again to just the 3. I have been having hot flushes for 10 years and was expecting them to stop anytime soon then got put on the Tamoxifen so no chance. I was having between 16 & 20 a day so I hope it does not get any worse like they suggest. Have just ordered a Chillow pillow after reading good reports about them so hope that will help in bed.
love to all Wendy xx
Hi,
They tell me I will only be in there for about 6 minutes (f everythign works)…so I guess I am having little and often!!!
Wendy - Like the sound of your pillow. I am getting very hot at night. Will investigate. I don’t have too many flushes yet, but am finding nights particularly uncomfortable. Good luck with your first dose!! let us know how it goes.
I know I’m having rads to chest (after mast), armpit area and throat area…they want to be sure of lymph nodes as I had a big nasty and 1 lymph node positive at the end.
Have creams and was appying to mast area anyway, but forgot about other areas. Now it is here, feel like I shoudl have done more to prep myself!!!
GXX
HI,Gemdancer i have been trying to talk to people with similar problem like main ,i have got litlle boy 2 years old and i had my diagnosis 31.03 had lumpectomy 20.04 and need it another op to clear some more margins the rezoults i will have tomm-app with doctor…so that will tell me more about my further treatment…
Dear krisid,
I read your post and wondered if it might be helpful for you to talk to someone on our Helpline. They can offer advice and support and tell you about some of our other services. They are open now. It’s a freephone number:
0808 800 6000
Kindest regards
Janet
Facilitator
Hi all. Had my 1st rad treatment today. All went ok didnt take very long and felt nothing. Having a cold/cough makes no difference they said and if I needed to, just cough.I was told to use plenty of the cream even if no sign of discomfort so I am taking no chances!! trowelling it on and rubbing well in.
Gemdancer yours was much bigger than mine and my lymph nodes were all clear but I did have to have 2 ops like you Krisid as my margins were not clear the 1st time.
Good luck to you all Wendy xx
Hi all,
Just had my first one too. Found it very uncomfortable to have my arms up for so long…especially after the mast!! Must get back on those exercises. Only 24 more to go!! EEk!!
About to ladle cream on too!
Krisid - I’m sure you will get lots of help and advice if you need it from the women on these forums. There are also people who have been through similar treatment experiences, who can offer support. Don’t know what I would have done without it!
Gx
I was in and out in no time today. Very welcome after yesterday when they were running 1 hour late. So that’s 5 down, 10 to go. I’m starting to go pink and the boob is swelling slightly, but otherwise it’s fine.
Hi Girls
Just jumped in here from the April/May rads thread. I know! I know! nosey or what. I have finished my rads now and thought I may be able to help. I am now 6 days past the end and have been using E45 morning and evening.My skin went pink after a few days and now it looks suntanned. It feels tight and there is some swelling and hardness which I am told will subside. BUT I just wanted to say not everyone is unlucky and has major problems.
One thing my rads team told me and I don’t see any of you mentioning - where the rads zap from the front there is an exit site on our backs and they advised me to put the cream on there as well. I started by putting on too much cream and was in danger of making my skin too wet. They told me to be careful and not overdoo it.
Good luck all of you. Happy Cooking
Andie
Hi,
I started rads last week. Andie you mention rads zap from the front has an exit site on our backs, I notice my back felt hot and when I mention this to the team they said it’s not the rads!!!all I can say is I never had a hot spot there before. 8 down and 15 to go.
Regards Kate
Hi All
So far so good. Had a long day on Weds as had 2 other patients in the car with me and we had to wait until we had all been “fried” but no major hold ups. (I am on hospital transport so have to be ready 1½hrs -2hrs before treatment depending on the driver, the journey is just about 1 hr 15 mins)
Andie thanks for the tip I will cream my back as well just in case. Glad yours is all over and I hope you stay well forever.
Only thing I have noticed so far is a sort of hard feeling which seems to come and go and a few pins and needles here and there.
Must say I am glad mine is in the breast not anywhere in my neck/head. After meeting 2 people with “it” in those areas the poor souls have to wear a face mask which is secured to the bed while they had their rads, so they cannot see or speak, clostrophobic or what!! As they say there are always folk worse off.
Arms up girls and think of England it does not last long.
love to all Wendy xxx
Hi All,
Glad it seems to be going well Wendy, I am having my first session tomorrow at 9.40 am. Its a 2 hour drive and parking at the hospital is a nightmare so will be setting off at 7.00 am and then staying over near Inverness for the week. I am all packed and ready to go and feeling a bit nervous !
Hope everyone has had a great sunny weekend, its been sooooo hot up here !
Good luck to all. Love and Best Wishes, Janet xx
That’s 12 down, 3 to go and the skin is holding up well. Appointments are almost always on time, so it’s pretty painless really, I’m glad to say. My throat is feeling strange the last couple of days and I’m told that’s quite common.
Hope you’re all cooking nicely:)
Sal