Hi,ladies,just a quick question. Are we entitled to get copies of all oncologist letters?
I’ve never had a copy of a letter from my onc. (The ones he sends to )I mentioned it at hospital as I had signed to say I would like them,they said its because he’s from another hospital. I told him I’d like them he said he’d sort lol.that was 6 months ago!!
I’ve just rang his secretary and she said we don’t send out copies of letters!! Is it just me and my cra@@y treatment or do others not get them?
Huge hugs,Helen xxxxx
Hi Helen
At first I didn’t realise any letters were sent out but when I did I requested copies and my onc secretary now sends me copies. I’m sure we have a right to see them? I like to know what he saying about me!!
Charlotte
Hi 2catlady.
the advice from nice says we are entitled to recieve copies of all letters. I requested mine again and again. Finally got everything from the surgical dept after months. Didn’t get the first oncology dept so I got a copy from my GP’s. Now I get copies when they are sent out.
it has been very useful. My pathology report in particular. No one told me I had three different types of bc. In fact I take the letters and report to doctor appointments and use it when discussing treatment with GP and nurse.
keep pushing if you want the letters you should have them
Keeks
Hi I don’t post that often , but do read most days . I too receive all copies of letters sent from my hospital to GP . I also have copies of all scan results . X
I have had copies of scans but I’ve never asked for copies of the doctor, Onc letters. I made a decision years ago that although I knew I had many bone mets I wouldn’t ask for which exact bone etc. It sort of helps me live normally, if I read the letters I think I would feel more fragile, ill, sort of whoo better not do that, carry that.
Perhaps it is just head in the sand. :-/ I do know, ask every time, my tumour markers.
Hi,ladies,I’m still fighting with hospital. I’ll let you know what happens.
I want letters as I frankly just have no faith in onc or BCN . I ask for my markers every time too,Belinda, my onc said he looks for a three month trend in them going up HA HA! Mine when up for a year and he did nothing!!! Hence I don’t have any faith or trust!
I rang BCN today to say why can’t I get letters she said they don’t send them out . So I said well I want them.
Huge hugs,Helen xxxxxxxxx
Hi 2catlady
just noticed this thread. I used to be a medcal secretary and it is not normal policy to write to the patient, only the GP or other healthcare proffesional involved. If the patient wanted a copy of the letter though we would send one. You can contact the Medical records Dept at your hospital and they will send you a form. You will have to sent a copy of your passport or driving licence for proof of identity and often they will ask for £10 or sililar. For this you should receive all copies of data held by the hospital as everything goes onto a PACS system, letters, scan reports etc. Hope this helps