Hi everyone
Just had my result back ct-scan is clear, I am so relieved to say the least…
was dx nov 05 had the lot then had secondary (skin mets) nov06, started taxotere but that didn’t work, ended up in hospital x-mas day for 10 days. They then put me on carbo/gem which worked the treat. Anyway 5 weeks after I stopped chemo the skin mets were back. My onco is brilliant and we were holding on with the next chemo (xeloda) until now. My cancer is so aggressive that’s why I’m surprised it hasn’t spread further.
So I’m making the most of this good news while I can!!!
It is very interesting to see how other hospitals work, even so my cancer is aggressive I didn’t have a ct-scan until recently and I never had an MRI.
skin mets? i have them but hadn’t heard of them before? What are yours like (mine mainly on head)? Are they going away? what works for them? have no info re these as they are never mentioned - would appreciate any info!
susie
Hi angela,
Thats great news! I hate having CT scans, that injection is awful! Everybody seems to be treated differently, I’ve had two CT scans, bone scan and Ultrasound of liver but never had MRI so I suppose it depends where you are, it still is very much a postcode lottery.
Good luck with the Zeloda
Allie
So pleased your ct scan was good, we get so fed up of waiting for the bad news dont we, we forgot sometimes that it can be good too, so very pleased for you. Keep up the good work.
Angela that’s brilliant news, so pleased for you.
Love Jacquie x
ps. I had CT scan of liver for something else, and they found a secondary, then did an MRI to look at the tissues more closely (I think) and size it. Then a bone scan (all clear).
Allie … When i had my first ct-scan i was petrified but once I saw the machine i was ok, it feels like you weeing yourself when they give you the injection!!! Definitely don’t want an MRI as I’m claustrophobic ( they will have to put me out!)
Mabel … where are your skin mets ? Sorry I’m naive but what do mean by re staging?
My skin mets are on and around my mast scar. My first recurence was on the scar and was excised.
They stage your cancer when youare first dx.
Restaging means the stage of cancer now, so, in my case, they are checking if there has been any spread other than locally.
I was stage 2 at dx, had lymph nodes clearance one node was micro. involved… my previous onc really played it down and my breast care nurse said not to worry about it I was never told that I was stage 2! Had my op April 06 followed by radiotherapy. I did feel a lump under my arm afterwards and they did a fine needle aspiration but it came back inconclusive. To cut a long story short the lump turned out to be cancer and a month later I had about 3-4 spots on my chestwall. Had an op to remove the lump + spot and was told that I’m now stage 4 breast cancer, maybe I’m stage 4 as they couldn’t get a clear margin when they took the lump out.
Been on chemo since Dec and I’m just about to start another one as spots have came back again! Quite persistent little b…s!!!
I’ll be thinking of you on Mon , the waiting for results is horrible isn’t is it?
Seems we’re treading a similar path.
Yes they are subborn little b*****s aren’t they, I have 6, we think!
I was referred to the Marsden, saw Steve Johnston, and he ordered the scans.
I will be seeing him again on Monday for the results.
At the momnet the hormones alone (femera and zoladex) seem to be keeping any spread at bay, but it’s possible I will either have herceptin again or be eligible for the Tykerb trial if this stops working.
Hope you’re having a good day,
Will keep in touch,
Love
Mabel
xx