DCIS - 28 years old and scared

I am sure we are all the same with the worrying bit Michelle. I go along as normal then stop in my tracks and thing hang on!!! I wonder if I will ever feel normal again. I am having a cavity shave on Thursday- just as my breast has recovered from the WLE! I hope you get good advice re prosthesis xx

Hi Michelle, hope your surgery went to plan and you are OK…thinking of you x

Hi ya,
Thanks for all support. Surgery went as well as could be really pleased with what front looks like, side is a little sore with drain but on the mend now. Back next week then results following week so keeping fingers crossed and enjoying being spoilt hope everyone is well. Still not sure about reconstruction yet really want to feel someone’s lol x x x

You get feeling Michelle!! All I seem to say to people lately is ‘do you want to see my boob?’!! It was never in my daily sentences but you know we all go down different paths!! Glad your surgery went well. Take care xx

Hi Michelle, how’s it going?

Morning,

 

Doing really well, drain came out on Monday and that was the most pain I had, nurse said it was because I was so slim so taking that as a compliment they really pleased with how it is healing, feeling a little imbalanced and resenting the good boob but still early days. Still keeping fingers crossed for lymph results net Thursday but certainly staying positive as NHS and Breast Cancer Care have been fabulous.

 

How are you?

Xxx

Glad to hear you are doing well and yes NHS to be proud of. I am doing ok too thanks. Results of cavity shave next Wednesday and hoping the clear margin was achieved!!

Results good yesterday.All DCIS gone and clear margins achieved. Thank God. Just got to wait for apt in a couple of weeks to start radium to reduce the risk of recurrence.
Hope you are still doing well Michelle and praying for good results for you today xx

Glad to hear this. I have had 12 sessions now with no serious effects. ?

How did it go today Michelle?

Jas so glad to hear you are coping with radium. I wonder why you are having 25 sessions but I am having 15?

Hi, as always seems to be the way with me nothing ever as expected. Histology from mastectomy also showed 2 small areas of invasive cancer. My lymphs came back negative so they have sent my tissue away to be checked to see if would benefit from chemo and bee advised most likely. Also will start tamoxifen as soon as possible either after chemo if need it or from next appointment. All a bit strange as we were hoping to try for a family when I hit 30 but this thing will have a longer effect than we thought. Will hopefully find out in couple weeks exact treatment plan. I am just so grateful I had symptoms in august as could have been different story but staying really positive especially as sold our house and offered on another so hoping to move by Christmas. Anyone know much about tamoxifen x x x x

You definitely made the right choice having the mastectomy Michelle and you have got rid of the cancer. They will soon have a plan in place for you.
I was actually out with my friend today. She is 50 now but had breast cancer at 27. She had mastectomy, chemo, radium and reconstruction. Now 23 years later she has celebrated 24 years of marriage and has a 16 and 14 year old!!
Stay positive Michelle and excited for your new house xxx

Glad to hear you are staying positive Michelle. The getting back to normal is a craving I think we share. Wanting to get back to work and a ‘normal’ routine is a goal and resting is d8fficult when used to be so active. I am doing ok. Got good results last week as clear margins were achieved in my 2nd op. I have an appointment for doctor next week to organise the start of my 15 sessions of radium. Hoping it will all be done by Christmas. It’s a bit strange though because although I am so pleased and relieved I have all of these worries and ‘what ifs?’ In my head. What if they missed anything? What if this pain is something else? Etc etc. I guess this is normal from what people say. Staying positive though. You take care Michelle. Get watching box sets!! Hope your appointment comes soon and you know what your next step is. One step closer to the finish line!! Xxx

Hi michelle how are you? How are you healing? Did you get your apt with oncology yet?

Hi Michelle, glad you are OK. School advertising for a teacher takes the pressure off you thinking about going back so you can relax knowing your kids are looked after!!
I have apt with oncologist tomorrow so hoping he will tell me when the radiotherapy will start. I am hoping it will be next week and finished by Christmas but I really don’t know. I will let you know!
Hope you get you set soon and can get your treatment started. Did you move house?

Had apt with oncologist on wednesday and planning scanvand tattoos today. All ready to start radium in next 10 days. Such good care and lovely people every step of the way! Hope you are doing OK Michelle xx

So will you be done by Xmas? My consultant rang yesterday so say my results in and I wouldn’t benefit from chemo which is great news. Seeing her tomorrow to go through treatment plan which will be tamoxifen really want the other breast off as feeling imbalanced and want to get on with life and don’t want potential hiccups when we try for a family in 5 years hopefully…having a low day today. Last few days waking up with a lower sore back. Seems to always be something looking forward to seeing consultant so many questions. What do you mean having scan and tattoo?? Xxx

Hi Ali49 I was diagnosed with Dcis around March time following recall from a routine mammogram. I had a core assisted biopsy, a vacuum assisted biopsy and a Wire excision on right breast plus another 2 re-excisions before I finally got clear margins. Because a large area of DCIS, grade 2, it was thought best for me to have 15 sessions of radiotherapy which I finished in August. I found radiotherapy fairly easy, just a little sore which I was given medid honey for. I started moisturising my breasts twice daily prior to the radiotherapy and continued with this throughput the treatment. I used E45 intense recovery. Also I drank water at every opportunity. I found AllClear covered my travel insurance but not until 3 months post surgery. An awful lot of other companies wouldn’t cover me and if they would then they wanted to charge a fortune. I am 67 years of age and after disclosure of the cancer treatment it was under £300 for a couples European (including Spain) annual policy. I haven’t bothered taking out life insurance though.

Hi Michelle, glad you aren’t having chemo but sorry you are having a down day. I have been struggling with my back but as my gp said I am not as active as I usually am and have been through a stressful time. Got my dates for radiotherapy today - start on 7th Dec and finish on 30th - with a break for Christmas. So all done for new year and hopefully a return to work mid January. Hope your consultant gets you sorted soon and will do the other mastectomy for you. When do you move house?
Teresa thank you for telling me about your experience of radiotherapy and for reassurance. I am using aqueous cream at the moment so I’ll ask if that’s OK when I go. I hope you’ve recovered well xxx

The tattoos are 3 small dots on my skin to mark where the best or lasers (whatever they are) will go for my treatment. They are tiny but permanent so they will always know where I have had radium. I also had a ct scan of my chest, lying in the position I will be in for treatment. This helps them to know where the dots go! All quickly done by lovely ladies xx