Hello
I have just been diagnosed with widespread DCIS in my left breast and am due to have a mastectomy with reconstruction on the 16th of March.However both of my Dads sisters have had invasive breast cancer and I am worried about the family risk factors.I know everyone just says its a maternal side risk but I take after my dads side much more than my Mums.
To be honest its worrying me to death and I feel like I want a bilateral my children are young and I dont want this hanging over me am I being crazy or should I ask to see my consultant again
Holly
Hi Hollys
Welcome to the Breast Cancer Care discussion forums, where I’m sure you’ll get lots of support from the many informed users of this site.
While you are waiting for replies I have put for you below links to BCC publications regarding DCIS and BC in families and also the area of the web that talks about BC in families. Hope this is helpful.
BC in families:
breastcancercare.org.uk/healthcare-professionals/publications/quick-order-list/*/changeTemplate/PublicationDisplay/publicationId/70/
BC in families web page:
breastcancercare.org.uk/breast-cancer-breast-health/worried/breast-cancer-in-families/
Kind regards,
Jo, Facilitator
Holly
I have widespread, high grade dcsi in my left breast and having mx and recon on 19th March. Invasive bc runs on my dads side and like you, I was told not to worry about it and they would keep an eye on the other breast! I have asked several times and have been told that its hard emotionally to have one breast removed let alone two… I do wonder if these people that say these profound statements about it being hard emotionally have ever had the worry of waiting for tests results!!!
I wish you tons of luck and will be thinking of you.
deed xx
It’s not just the maternal side that’s important…do get your Oncologist or your GP to refer you for an appointment with your nearest genetics clinic. The geneticist will look at both sides of your family, the paternal side of your family is just as important. They will then be able to decide if you are a higher risk patient and you may be asked if you want your bloods tested for any of the faulty genes. Prostate and ovarian cancers in the family are also looked at as a link to some incidences of breast cancer occuring in some families. I’ve had great support, ongoing support from my genetics team. I was initially referred because my paternal grandmother had ovarian cancer and her sister had breast cancer.
Good Luck…Take Care…xx