I have been recently diagnosed with DCIS which was picked up through a 35mm cluster micro-calcifications on mammogram. It wasn’t my scheduled screening one as I had gone to my GP complaining of breast pain and fortunately she acted on it and sent me for tests.
The first biopsy came back as benign but with an advisory to check for atypia. After vacuum assisted biopsy this was upgraded to high grade DCIS. This is the only information which I have been given. Has anybody else been given more details than this, for example, architectural/morphology type, presence of necrosis, etc. after just biopsy?
The consultant has suggested a WLE with some form of reconstruction. However, I am nervous of this because they seem to be ignoring the recurrence rates that may come with a high grade diagnosis. I feel that I am being forced into making a decision with only half the facts due to lack of biopsy information. Is there anybody else who has had to resolve this conundrum? Am I missing anything which I should take into account in deciding on what surgery?
Hi I was diagnosed with high grade dcis seven weeks ago and was told it’s not graded until it’s removed had a lumpectomy a week later no problems recieved results two weeks after started tamoxifen last week no problems so far just waiting to start 15 sessions of radiotherapy you can ask for all copies of reports that have been sent to your GP the oncologist explained all my results to me surgeon removed dcis wle gave me result but it was the oncologist that explained all results and what my treatment plan would be hope this helps x
As Sean says, the final results do not come through until the tumour has been excised after surgery & examined in the lab, so what you’re describing sounds quite usual. The initial biopsy only gives a preliminary diagnosis.
I had a WLE for a small invasive bc & the surgeon was always quite clear that additional surgery maybe needed depending on the results. As it turned out, nothing more was needed.
Do post in ‘ask our nurses’ or ring the helpline here if you feel you need to talk things through.
I had an appointment with my consultant late last week and am going for a skin sparing mastectomy. I eventually did a lot of research in coming to my decision and whilst some people say steer clear of Dr. Google, I found it very useful. I worked out that a WLE would remove circa 18 to 20% of my boob and thus necessitating considerable reconstruction with Licap/mastoplexy. I too came to the conclusion that I might as well go the whole hog and reduce the likelihood of re-excisions and the risk of a local recurrence with a mastectomy. I appreciate for some, they may not understand my logic but having prioritised the issues, peace of mind that I had done everything possible to beat this thing came top.
Hi.I received my diagnosis of DCIS 2 weeks ago today. I was told only a 4 mm lesion that would require a lumpectomy followed by 3 weeks of radiotherapy.
Would seem to be non invasive. I have been very upbeat but my appointment with my surgeon is coming up on Monday and a bit of trepidation is creeping in.
The hospital letter I have says expect to be in the department for 3 hours. This is just a pre-op appt. Worries are circling in my head about what is likely to happen in that 3 hours.
What are other people’s experience of this first appointment? I have been told I will have surgery within 2 weeks of that appt. How long did others wait between surgery and Radiotherapy commencing.
I just so desperately want to get on now. I have no criticism of the hospital at all but it feels very much like a hurry up and wait process.