Hi
I have a high grade 20mm dcis with .02mm microinvasion and a lumpectomy was performed where 23mm was removed however they did not get clear margins. Now have a second lumpectomy on the 3rd have been told no nodes are being tested and no testing for hormone sensitivity. Is this normal should I ask to have it tested? also will I have radiotherapy if they get clear margins this time and if so what will be involved.
Hi lee774,
Thanks for posting. It’s understandable you have questions about your treatment plan following your lumpectomy for DCIS, and are now awaiting further surgery.
The best people to talk to about any further treatment or tests are your treatment team, including your breast care nurse. Decisions about treatment are made by a MDT (multidisciplinary team), and the reason for these should be communicated to you. Treatment plans can change as more information becomes available. Do ask them about why they haven’t recommended testing for hormone receptors.
You may find it helpful to know that lymph node (gland) removal is not usually recommended for people with DCIS having a lumpectomy, unless they are at high risk of invasive breast cancer.
Radiotherapy may be recommended after your second surgery, and the decision about whether this is required will be discussed with you once your post operative results are available. You can read about what is involved when having radiotherapy in the link.
You may be interested in reading guidance about treatment for breast cancer. These guidelines include information about DCIS and its treatment.
We offer a range of free supportive services which you may be interested in. They include face to face and online courses and events.
Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen, talk things through and signpost you to additional support and information if necessary. Your call will be confidential, and the number is free from UK landlines and all mobile networks.
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Best wishes,
Carolyn
Breast Care Nurse
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