DCIS

Ten days ago I was going for a routine mammogram and last night I got the results of the biopsy. I have one small area just 8mm contained in one duct. Because I am being transferred from the screening unit to a more local hospital the cancer nurse could not say what my treatment plan will be (except it will involve surgery) … My appt is Christmas Eve … It’s just a year since my dad passed so it’s been a difficult time for the family plus my two siblings and I have all been diagnosed with cancer in just 3 years … (The others have a GIST and non-hodgkins lymphoma) … Seems awfully bad luck … Trying to be positive - it’s small it’s early and apparently it’s treatable.

Hi Lambykin, 

I am sorry to hear that you are going through this difficult time and I am sure some of our users will be offering their support soon. 

If you ever want to talk you can call our support line at 0808 800 6000 who will be able to offer a friendly ear.

Best wishes, 

Lizzy 

Digital Community Assistant 

You must be so worried with all that has gone on. I was diagnosed in October, lumpectomy Nov 5th and start rads next week. It was same as you and only 6mm so I just feel lucky that it was so small and they managed to get it all out with good margins. Good luck for Thursday xxx

Sorry to hear this. I am going through very similar situation. Diagnosed with DCIS last Thursday but then said may not be this but atypical cells. I have had more biopsies taken and will have to have surgery January 12th to remove area. Got appointment Xmas eve too for biopsy results if available. Chin up and let me know how you get on xx

Hope results are the best scenario they can be - finding it hard to focus on Christmas but we must try to be optimistic mustn’t we?

Hope the rads go ok - how long/often do you have to have sessions?

How are you dealing with anxiety? I m not sleeping, eating and just feel so alone ( despite having lovely friends and family). It s the waiting that I can t handle. Panic attacks overwhelming me.

To nickf

Thank you so much for your reassurance. It s been such a roller coaster of ride. Told last Thursday low grade DCIS and then phone call next day to say another pathologist had looked at results and said atypical cells and not DCIS. Consultant said there is a very fine line between the two. As a result she suggested more biopsies to try and identify size of area affected so that she could remove on 12 th Jan. I have appointment tomorrow morning but she did warn me results may not be back. I have two daughters and trying to hide this from them is difficult. Thank you all for your support.

Thank you Jan. Your words are comforting x

Hi all I hope that you all mana gaged to have a good Christmas despite the anxiety.  We met my surgeon on Thursday - he was very reassuring that the cancer is in it’s earliest stage and he is confident that if it’s treated now it won’t affect my long term health.  He hopes radiotherapy won’t be required as you only get one shot at it … I had not realised that.  My sugery is on 22nd Jan - longer than I had hoped but not to long.  I am trying (not suceesfully) to put it to the back of my mind …  

Hi all I hope that you all managed to have a good Christmas despite the anxiety. We met my surgeon on Thursday - he was very reassuring that the cancer is in it’s earliest stage and he is confident that if it’s treated now it won’t affect my long term health. He hopes radiotherapy won’t be required as you only get one shot at it … I had not realised that. My sugery is on 22nd Jan - longer than I had hoped but not to long. I am trying (not suceesfully) to put it to the back of my mind …

@Lambykin

Hi. Glad all looks good for you and it being in its early stages. I had some good news Thursday. Results of second lot of biopsies came in and the area around abnormal area was clear. Also pathologist said that the biopsy they took again from abnormal area are atypical cells. Three pathologists have looked at results. First said DCIS and the other two are saying atypical cells. Having op on the 13th Jan to remove abnormal area and then have to wait 2 weeks for results. Feel bit better but still having overwhelming moments of anxiety. Consultant said Couldn t say 100% not DCIS but positive cos two other pathologists said atypical cells. Please keep in touch and let me know how you get on. You re not alone with this xx

@Lambykin

Hi. Glad all looks good for you and it being in its early stages. I had some good news Thursday. Results of second lot of biopsies came in and the area around abnormal area was clear. Also pathologist said that the biopsy they took again from abnormal area are atypical cells. Three pathologists have looked at results. First said DCIS and the other two are saying atypical cells. Having op on the 13th Jan to remove abnormal area and then have to wait 2 weeks for results. Feel bit better but still having overwhelming moments of anxiety. Consultant said Couldn t say 100% not DCIS but positive cos two other pathologists said atypical cells. Please keep in touch and let me know how you get on. You re not alone with this xx

@julia1 that sounds positive - I am more anxious about the surgery than anything which probably sounds silly … But it’s not as if there is a choice really … It seems so long to wait but when I think about it it’s already been 25 days since the mammogram and 26 till the op so it will soon pass …

@Lambykin

Thanks for your comment. I have done some research on the op and it doesn’t appear to be too bad. Recovery seems to be quick too. I think the worst part will be waiting for results. I think whatever the outcome, we are lucky found so early and no aggressive treatment will be needed. I m just hoping that results from op will be ok. I suffer terribly from anxiety and always think on the worst side. We ll be ok and get through it together xxx

Two weeks today and I will be having the wide local excision for abnormal cells. Feeling anxious that results will confirm this and nothing else x

@Lanbykin

Just wanted to drop you a note to ask how you doing? X

Hi Julia1 not too bad trying not to dwell on things too much … Annoyed with hospital as they told me guide wire and op on 22 Jan and so rearranged my work diary and now they want to do guide wire on 21 Jan and op on 22 Jan ? Makes things difficult at work. Part of me also feels a sort of fraud when I know others are in a much worse position than me - daft aren’t I? Hope you are ok and not too anxious x

Hi Lambykin1. Glad to hear you re not doing too bad. I m the same with the guide wire. Having it done on the 12th and then op on 13th. Did they say you ll have to stay in once you ve had wire put in or can u come home? Still feeling a little anxious but am sleeping better. Keep in touch and let me know how everything goes xx

Yes go home then go back the following morning. Getting bit annoyed now as just had appt through to sign consent - I have already done that. The surgeon had said they would do the pre admission the same day I saw him but we got sent home after doing the consent and then realised not done so now got to go back on 12/1 and today get another letter saying got to do consent! I know it was Christmas Eve and bit chaotic but really this is third ‘admin error/misinformation’ the hospital have made. I know I shouldn’t get too het up but it makes me cross. Sorry for the ramble. Feel in limbo now just waiting can’t concentrate on much. Heart keeps racing. Then feel a fraud coz others have a much worse prognosis than me …