Thanks Pammy. I managed to eat a creamy mild curry last night, and I had forgotten to take the gastro pulls that stop indigestion too. Luckily had no effects as it was very mild. So tasty though. I agree with you that nadz needs to eat what she wants. I was 9 stone at my op in October. I have dropped to just above 8 with all this so who cares what size you are now or anything as the weight can come off with this. It is important to listen to your body. Plenty of time to eat right and get enough exercise after treatment is done and you are stronger.
No know about anyone else but I can’t wait until the picc line comes out and I can go back to my swimming lessons. I miss my swimming.
Gillian my last fec is 29th. Will be thinking of you on the 2nd. It won’t be hard to remember as it’s my littlest man’s birthday. 8 hope it’s not too bad for you. Xx
I am doing well, my normal self again. I am having 3rd EC on Moday 1st Feb., according to the every 21 days rule it should have been on Friday 29th but for some reason the appt is for Monday. Unfortunately I will be having 4 so one more to go before I can join the rest of you in celebrating the half-way mark. Maybe I have to have 4 because I have triple negative, don´t know…
Am looking forward to this week feeling well and continuing sorting things out in my house (still decluttering, getting curtains, spring cleaning and doing paperwork etc etc). Interesting what you say Pam about your daughter, I have read that being unhappy/stressed etc contributes to us getting cancer. Not that I would consider myself to be unhappy with my life, but I was always stressed and so am using this time off work to sort everything in my life. Simplifying everything, even went to the bank to cancel bank cards I have and don´t need.
Tina I am right with you. I too am fretting over bloods and if they will be okay to have last fec friday. I have a cold, and my youngest has tonsillitis and is off school as of today. Wondering if side effects will be any worse again this time, and how t will affect me. Worried about the temperature dip and it going to low and getting hypothermia.
No purple nails here as yet. Hoping that doesn’t happen. I do have a funny purple mark a bit like a bruise on my thigh. I did notice on the steroid side effects that can happen though so guessing it’s them. Will tell them at mdcu tomorrow when get bloods done. Hoping they will change them.
Tv girl how about juicing vegetables and fruit if you can’t face eating them.
Thanks Tina. My Aunt has heard of them. I asked at my unit the 1st cycle and they hadn’t heard of them. Maybe it’s on trial at some units. I think they use them in America, but then they pay for their treatment privately.
Bloods this afternoon.
Hugs xx
Fredflowerpot, my arm is not bad after bloods…used to be a blood done until this cancer s**t rained down on me, so I was fairly good at having blood taken. But my forearm feels very bruised now (nothing visible) which started about a week after FEC 2. You should phone the help line if it gets any worse.
Hi everyone, just popping in from October to say that yes FEC does a real number on your veins and I had a couple of weeks when my arm was really sore and one of the veins was visably red through the skin which was a bit alarming. But, as a veteran of two Ts so far (last one tomorrow - hooray), I am happy to report that things do improve and the T is far kinder to your veins.
Ooooh Ruth, your last one tomorrow…that’s great! I take it you veins protested but held up all the way though? I have one more FEC then it’s onto T, and I really hope nothing holds me up! Thanks for popping in and giving us that information, it’s hard to know if you should be alarmed by some symptoms or they are just par for the course!
Yes, veins were painful on FEC and it was alarming the first time because I didn’t know what it was (the hyperchondriac in me was imagining blood clots etc) but once I knew what it was I felt I could put up with it. Thankfully they have held up and improved hugely on T.
Yes, can’t believe it’s my last one tomorrow. Still have a bit more surgery in March but good to have almost finished the chemo. I’ve been lucky I think that it hasn’t affected me too badly. I’m just very tired now but I expected that so again can cope with it. Fingers crossed I’ve not cursed myself there and go downhill after T3!
Hope everything is going as well as it can be with you. From your posts you seem to be coping pretty well and doing great work supporting other people here. Look after yourself.
Hi all! Sorry I haven’t been around, still struggling but not as bad.
I’m also having problems with vein pain, stupid fec. My next one is next Friday, the final fec, then on to T!
I’m also losing a lot of hair. Have a wee bald patch on the crown of my head, don’t think the cold cap fitted me that well last time. Luckily I have very curly hair so it can hide it, but doubt I’ll be heading out any time soon.
Chemo brain has seriously kicked in, I forget what I’m talking about mid conversation or even zone out, can be rather amusing!
My temp hit 35.2 during the early days, I know someone was concerned about hypothermia (sorry I will reread it all later to get properly oriented). I didn’t even think that was bad, as my mum dismissed the temp due to taking it through the armpit.
Also suffered from leg numbness during he early days, my right leg was near frozen over a few days.I was doing circulation exercises throughout though.
Noticed everyone were saying where they are from? I’m living in Hampshire atm, incase anyone’s down this way?
My skin has broken out again but at the same time it’s great elsewhere, if not a bit dry.
Oh! I also found a load of parable, sulphates etc free products in superdrug. Dunno if anyone else is having this issue, but I’m hating the non smelly stuff, they still have a scent and it turns me every time I use it in the shower, or smell it on my hair. The new stuff I found in super drug has different scents and they aren’t that strong, my partner can barely smell them,but they are lovely. Can’t remember the name but will find out later if anyone’s interested? They don’t lather of course, due to being free from all that stuff, but a small drop lasts on a facecloth. And my skin feels great after. I also found this cleansing conditioner, by Palmers? Once again super drug. It’s a free from product, it’s for very curly hair and it’s olive oil, but I find, for those who are cold capping, it keeps the hair soft and to restricts the frizz. And you don’t need to massage it in either like other products. You just smear it on in sections and leave it with some water dampened on, continue with shower etc then let it run off under water when done. Only used it once but my hair is keeping it’s softness and even some shine longer than others, haven’t washed it in 3 days and it still smells and looks good enough!
Oh c**p oh c**p due next one 8:30 this morning. Feeling so anxious. Don’t want to do it. Don’t want to go in. My littlest still off with tonsillitis so he and Leo going to have to take me in. It’s my littlest birthday on Tuesday too and know I will still feel pants for that. Why is this happening to me? Sorry having a melt down and need to vent. Scared of all this sh** and frustrated by it. Just want to be me again.
I got home at 12 Tina. Feeling ok ish at the moment. Waiting for that wave to hit which I know it will. Went well although the cold cap felt really cold this time. Probably because hair is thinner.
Need to speak to dr about the steroids. They wanted me to take the same dose but twice a day instead of once. From 24hrs before tax. Definitely can’t cope with that. Need them changed and need to speak to him about a prescription for the dressings too as they always have to chance around for the iv3000. The hospital doesn’t use them any more but cheaper ones. They make my skin blister.
The nurse said the tax shouldn’t be as bad for se’s, but thats with the steroids. Cant take dextamrthasone at 2mg 4 tablets once a day for 3 days, let alone 4mg 4 tablets twice a day for 3 days. This is s**t
Hey Tina and vicky, I’m thinking of you guys today, I’m sure you won’t be on for a few days but hope the sickness passes quickly. I’m sure come Tuesday Vicky you will have found the strength for the birthday party, just take it super easy. I do wish none of us had to go through this. Though they do say it’s 1 in 3 people for breast cancer, and I have 2 sisters, so I’m glad I got it and not them.
Thinking of you Tina & Vicky. So wish they had kept to my Friday schedule instead of moving me to Monday.
Am hoping it’s going to be like number 2 and not too bad as I have booked a flight for Thurs to the Uk to visit my sister for 2 weeks. So looking forward to the trip.
xx
Fredflowerpot-I’ve just been making use of being more like myself, so have met up with a friend for a day of shopping and a manicure, went exploring in a new town with my partner and today is meant to be a pj day, but I’ve been tidying the house like mad. Going to do the bird survey in a bit. How about you?
Where you flying from Marina? I hope you are feeling well enough for the flight come Thursday xx
TV girl -I’m not on the same chemo tx as you but I vomit every time afterwards, despite the super strong drugs. It could just be a build up for you? Or did you do more afterwards chemo-like walk further or tidy etc?hope it has settled now with the steroids kicking in