I sound like a right cow there. Don’t mean to!
No you didn’t Nadz. Don’t worry about it. It was insensitive of me to put that. I’m the one who should be sorry. Cancer sucks. It messes with your body and it screws up your mind too. Can’t wait for all the treatment to be over.
Had a call from the Royal Marsden yesterday. They are going to see me on 11th. Just hope my fiancé can come with me as I will still not be quite up to it on my own driving all that way and the train will take ages. Initially she says she will probably support the recommendation of my local hospital for rads but I don’t think she has all the information yet. Will have to have a chat. Even if she does maybe she will make more sense explaining everything to me so I can make my mind up easier. Although not easy to think about these things when you aren’t sleeping well.
Hugs xxx
No Vicky, you shouldn’t be sorry, I was being true when I said I’m happy that despite my inability due to this that others will be able too. It makes me feel better and hopeful xx
Good luck with the royal. I do hope something positive comes out of it for you.
Me too Nadz. Thanks hun.
I am really fed up with it all. With the rads too we would be talking finishing 20th May ish. This has all gone on for so long now. Just want my life back. I am finding it hard to do everything that needs doing at home with all this. I am so not working over the 6 week summer holidays! I need a break to be able to sort everything out at home. Got a shed to take down and trampoline to put up in the next few weeks. Then maybe the boys can make use of the garden. Everything has to be planned around the treatment. Its a right pain!
Sometimes you just have to rant! Phew feel a bit better now. Better go do something productive while I can before last cycle friday. Really don’t want to go to that either.
Xxx
I know what you mean, was just saying to a friend there that I feel like since diagnosis I have lost a bit of myself because it’s all been about treatment, there hasn’t been time for fun or a social life. I’ve struggled with chemo,rarely had good days, and now that it’s weekly I feel pressured to do what I can, housework wise, on the 2days that I feel good. I feel like I’ve just turned into this boring out of touch woman.hate it
It’s really ‘Life Interrupted’ isn’t it?! It just gets in the way of everything, you have to plan around when you think you might be feeling well and not at the worst immunity.
I’m due T 2 tomorrow, and at the same time as I’m glad to be going because it gets me closer to the end, I know it’s going to make me feel s**t again so don’t really want to go as well!
I reckon it will be nearly 11 months from my mammogram and ten-ish from when I was diagnosed before I’m done with rads and just left dealing with tamoxifen, it just has been so long!
Amanda x
Hope today went well Amanda! Good luck Tina for tomorrow!
My chemo has been cancelled tomorrow due to the infection I have in both big toes. On antibiotics now in the hope it goes away!
Oh Nadz sorry to hear that. Are you relieved its a bit longer break or are you annoyed at the delay?
Hope yesterday went well Amanda.
Gillian I will try to have that attitude when I go in today and not cry this time. I am finding the cold cap incredibly hard on this last half. I am struggling with it but have come so far I don’t want to quit at the last hurdle. Dreading it today.
Good luck today Tina and if I don’t get on before Tuesday good luck for starting rads Gillian. And please please keep us posted on how you are doing on them. I still haven’t made my mind up. Still have so many questions about it.
Big hugs ladies xxxx
Dropping in to say Good Luck today Tina and Red Robin - last one today for both of you?! Hope it all goes well and you can power through those side effects knowing that is it!! ?
Kim xxx
Hope you have got that last one under your belt now Tina, one last set of SE’s then it’s over!
Mine went fine yeaterday, a little tired today but that is probably down to Cleo (my cat) wanting ‘huggies’ from 5 - 7am!! The 21st of this month is when my last one is due, as long as no infections and bloods etc cooperate!
Good luck with your first radiotherapy on Tuesday, Gillian. There are some worries around that too, but what we all want is to put up the best fight we can and throw everything possible at it!
On that subject, when do you have to make your mind up Vicky? It’s a tough one, you need to get some figures/percentages as to the benefits for you. Once is was found I had ‘extra capsular spread’ in the sentinel node and micro mets in one other node, it was easy to go along with the advice for both chemo and rads.
Sorry to hear about your delay Nadz, what a nuisance! Sounds painful with you toenail. Maybe try gently massaging them with tea tree oil?
What stage are you at now Kim?
Amanda x
Congratulations Tina for getting through your chemo marathon.
Ruth xx
??Well done Tina!??
Xxx
Happy Birthday Tina!!
Like you I am so glad that it’s one last lot of side effects then the chemo is done.
I don’t know if there is a time limit to me making my mind up Amanda. See for me everything came back clear for nodes etc and the Radiologist wouldn’t give me the statistics I needed. I really don’t know much about rads either except what I have read. He wasn’t very forthcoming with information just like they weren’t forthcoming in telling me they thought I needed it. I have a meeting next Monday (11th) at the Royal Marsden to discuss radio. Hoping I might get some better answers so I can make an informed decision. I have put the planning ct scan on hold for the time being until I have made my mind up. You can’t say yes or no if you don’t have the facts.
I am writing down a list of questions to ask. If anyone thinks of any I could ask that might be helpful please let me know as I really don’t know a lot about rads.
Thanks ladies for all your support. It really helps.
Xxxx
Hi Red Robin, i found Rads totally fine and I worked every day and apart from a hot pink boob by the end has no side effects, its painless and only takes a few minutes, it does give good results against reaccurance and i was 100% happy to have it and never questioned it Xx
Happy Birthday Tina, two big milestones in one week!
Well Vicky, your meeting on Monday should be a very good opportunity to find out more about rads, I guess the question you want to ask would be about any possible permanent side effects and how common that is, most of us are prepared to put up with the temporary ones, but anything else needs more consideration against the benefits. When I was first diagnosed, they told me they planned a lumpectomy (WLE) and radiotherapy from the start. Of course the results of that surgery changed the plan in the end but I knew from the day I was told I had BC that rads was on the cards…it was the MX and the chemo that was ‘added on’!
You’re keeping up nicely Kim, I’ve lost two weeks so far, a bit frustrating as I should have been finishing on the 7th. When are you due to finish?
How are your toes doing, Nadz?
Amanda x
Happy Birthday Tina? Hope you managed to have a good day 
Amanda I’m due to have the last one on 3 May as long as there’s no hold ups! Then I’ll be having 15 sessions of radiotherapy. I’m most likely going to have to have more surgery as my implant doesn’t sit right but in all honesty I’m not worried about that at all - I’ll just be so pleased to have finished this chemotherapy!!!
Xxx
Well done Tina, and happy birthday for yesterday! Xx
Feeling emotional this morning. Last lot of steroids was yesterday thank god. Legs started feeling heavy yesterday and noticed I couldn’t go as far on my walk. Tried my best so the boys could get some exercise. Ended up stopping along the promenade in an area where they could scooter and skateboard and I could sit for a bit. Really didn’t sleep well last night. Legs felt so heavy and achy. Kept tossing and turning. Then flushing and getting sweaty then back to tossing and turning. Maybe a little sleep in between. Wasn’t a good night.
Feels good knowing it’s the last time going through this but apprehensive of what the Marsden may say next Monday.
Been trying to get hold of my onc to get him to tell IV team to take out my picc. Fed up of it being there. The way I sleep at night will be so much more comfortable without it and I am dying to get back to my swimming.
Tina we are much the same in se’s and hair. Although I have lost 70% easily. Maybe a little more looking at the bag and what’s left on my head. Just lucky I had a lot of hair to begin with so with bandannas I can just about cover and get away with it.
Hoping I can improve my mood today but there is so much I want to be able to do and can’t right now. Think that’s why I am so emotional. Can’t wait to start feeling well again. Xx
Gillian is it first rads today? Hope it all goes well xx
Yeah that’s true Tina. Guess I am just being a bit inpatient. We moved into this house October last year, 3 days before my operation. I think sitting around in here has just got me thinking about everything that needs doing. I have a list as long as my arm of things I want to do inside and in the garden. Will feel better once I have a few ticked off I think. Definitely not working at holiday club in the summer this year as too much to sort out and need time to relax too.
If I can get the garden sorted 1st and the boys trampoline up then they will be happy out there while I sort things indoors. Gets frustrating knowing there is so much to do and I can’t do it yet.
On a slightly different note does anyone know if swimming is ok when having rads? I am hoping to avoid them but if not I would love to at least be able to get back in the pool. I was having swimming lessons before all this kicked off. Haven’t been in a pool since last July.
Xx