December 2017 Chemo Starters

*brave face

I’m seeing as a reinvention if myself. Being bald is cold but apart from that, I think a bald head is actually quite a nice look. It accentuates your facial features and looks very fresh and no bad hair days! Takes so much less time to get washed and dressed too ?.
Have fun with new looks, scarves, hats and wigs and being the festive season the glitzier the better ?

I am also on day 14 so just waiting for it to go, my head feel ever so slightly tingly & a slight cold sensation today… maybe that’s is going to start? Nothing has came out so far. I have my wig, hats and scarfs at the ready tho and it will inevitably all be gone by Christmas but hey ho, we will just need to get on with it and sure will get used to it soon enough :slight_smile: x

I like the thought of turning into a butterfly. Kirsty you are right we do just have to get on with it, thankfully it is hat season. I had long hair cut into a bob too and neck chills took a bit of getting used too but I do quite like it. Xx

I’m with chaffinch, I am quite happy with my baldy head!!  It almost feels weird wearing a wig now.

 

Just before it all started falling out my hair really hurt, you know that feeling when you have been wearing a ponytail for too long.  Then it stopped hurting and thats when it started falling out.

 

I’d had my shoulder length hair cut into a pixie cut so less to lose, but as soon as I could pull a hand full out without any problem, I shaved it all off down to a long 1 … I can’t tell you how liberating it was!!  But I am a control freak and I wanted to get rid of my hair when I wanted it to happen … not for it just to abandon ship when it felt like it.

 

Legs and underarms are silky smooth, head hair is hanging on in patches… think rabid badger!  And lady garden is very patchy… too much information!!

 

If you shave your head, dont go down to nothing, your scalp will be delicate … it’s had a good covering for a number of years now,  invest in some good shampoo, try and get paraben free (I use Liz Earle) and you might find you need to use a moisturiser on your scalp too.

 

But embrace the new you - you are all gorgeous.

I don’t have my Look Good Feel better session until after chemo 6 … lets hope the eyebrows and eye lashes hold on in there til then!!

 

The hair doesn’t go completely until well into cycle 2 but I shaved mine on day 4 cycle 2. After 4 cycles I have a few odd hairs hanging on at the sides of my neck and by my ears. There is s theory that the ones that stay longer are the slower growing grey ones. Being blond I didn’t think that I had any grey my hairdresser kept commenting how lucky I was not to go grey but maybe I have closet pale grey ?

Hey Ladies - did anyone have a cannula for their chemo and have suffered with a very tender/swollen area just below the spot it was put into? I had my first round a week ago in the back of my hand and it’s still very sore to touch and feels slightly raised and swollen down towards my wrist and forearm.
I’m having a port fitted next week ready for round 2 but wanted to see if this was something anyone else experienced? Am I being over paranoid and worried?!? Xx

Hi Sam I had cannula chemo 1 on day 8 it became saw to the touch by day 13 I had a nice blue green bruise so I would say this is normal but if in doubt get it checked xx

I had a cannula and it didnt swell but after about a week it became bruised, a yellowish colour but it took around a wee for that to appear xx

This time I had swelling immediately around where it went in and it came out in an impressive bruise after a few days but now on day 8 it is fading and the swelling had gone down within a couple of days. Might be worth getting it looked at ring your unit and ask them

Well thats the hair started coming out today, day 15, when run hands through hair half a dozen strands end up in my hands each time. Think I will have the shave done on saturday night as I am out at the panto & for food in th afternoon, so may as well wait until after that :smileyfrustrated: x

Me too Kirsty also day 15. I didn’t want to wash it this morning. I have a stonking headache again today, not sure if connected. Xx

Aw so you are the same mamadeacs, it seems common to happen around days 14-16 from what I have read. I felt it coming with that tingling in my head yesterday but today was first time actual strands started to come out. No headache for me tho, so maybe its just another side effect of the chemo for you :frowning: Hope it passes soon for you x

Hey lovely ladies… sorry to hear that Kirsty - although if it’s any consolation I tried the scalp cooler last week and my hair feels very itchy already. I can’t imagine it’s going to stay for long and I’m only on day 8!
I checked in with the unit today - the swelling/tenderness if a damaged vein. Guessed it was but thank goodness for having a port fitted next week ready for round 2.
I’m still having stomach cramps and aches. Feels like period pains as they are low down and whenever I move anyway it feels like my lower back is throbbing. Anyone else has this side effect? Eurgh… it’s something new every day!! Xx

Evening Ladies 

A quick update as Rabbit was wondering how it would go on 12 wk Taxol and the Herceptin jabs. I had herceptin jab yesterday, they put some anti reaction drug through cannula first. Was fine to start with but came over most peculiar after 10mins or so, blood pressure had dropped but soon came up again. It all went fine but was knackered afterwards and slept on sofa most of afternoon, was in bed by 9.30pm, I’m normally a night owl! Only woke up for the never ending toilet visit this 2 litres a day is a pain, woke up this am fresh as a daisy ?.

Today was 1st Taxol, 4 attempts for cannula ? never had trouble before, May just have been that particular nurse but if it happens again next week I’m going to ask for a picc as weekly doesn’t give much time for veins to heal. Then had piriton, steroids and omeprazole, waited 30 mins then Taxol. All went well and I’m feeling fine long may it continue but who knows. It was far easier than my wild imagination had thought.

Hope all the lovely ladies that started earlier in the week are doing well, and that this info is useful for you Rabbit xxx

I had a mega dose of Filgrastim on my first day post chemo. They said bone pain was a side effect so I wonder if that’s the cause of the pelvic pain then! Argh! Xx

Lesley apparently grey hair is extra strong, extra wirey and extra stubborn ? you may be stuck with it
Pointer ???

Hi Sam I also get pelvic pain from my injections. I also get a tightening of all my leg joints but both go pretty soon after I finish the injections. I used ibuprofen to help ease the pain after checking with onc that I could. It has been quite severe on one cycle and required codeine but so far not so bad on this cycle (last injection tomorrow) :heart:?

Ladies bath with Epson saktscreally help aches and pains and I also found some liquid ibuprofens capsules by Anadin they are more expensive but work really quickly

My onc also said cocodamol but make sure you have took temperature first as anything containing paracetamol can lower temperature xx

My Onc has now prescribed Claritin alongside injections - I had no pain at all this time! Really helped!!