December 2017 Chemo Starters

And well done for getting stuck into the wine Macadeacs, I haven’t fancied any and I usually love a glass of red.

I was going to lay off any alcohol until chemo finished but fancied one. I don’t drink that often generally so I don’t feel bad about it.

I have my first chemo tomorrow (FEC T) and feel as if I’m jumping off a cliff and not knowing how far down I have to go… 

Whenand what should I eat before chemo? Will I start having side-effects while  I am sitting having the chemo? When will ‘things start to happen?’’  Should I go to bed on getting home or does the body react gradually?

I feel so in the dark.

 

Hi Camilla…I can only speak for me and I’m only having the FEC part, no T. I ate a good meal before my first chemo (pesto pasta just because that’s what I fancied). I got a little bit spinny with the steroids but other than that I only had a faint bit of nausea on the day but the next day it was there as well as very little appetite. I did rest when I got home mainly because of the dizzy feeling. Chemo day itself is not scary, the oncology nurses are amazing and put you at ease and mine talked me through every step. Good luck with it, I have round 2 this Friday coming. Xx

Me too…we have had enough surprises xx

Hi camilla, I’m shi from Oct thread, I’ve done 3 fec and Just done first of 3 t. For both fec and t, take your meds as prescribed if antisickness doesn’t work phone the rapid response so your meds can be changed, nothing to worry about. Make sure you drink over 2l of fluids everyday. For fec, suck ice lollies while red one goes in (helps preserve mouth from sores) your pee will be pink for a few hours after as it flushed through. Keep a diary so you can track meds and side effects (se’s) and also keep track of your temp. If you pee starts to burn even with no temp phone rapid response it will be a uti. Always phone rapid response if you are not sure, best to check. Now be ?and take it one treatment at a time, the love and support and kindness on these forums will get you safely through this. We have a great chemo ?the Oct girls and we have been lucky to have ladies from earlier threads guiding and supporting us too. Sending you ???and these threads will give you 24/7 support lovely, you won’t do the journey on your own. ??:sparkles::sparkles::sparkles:shi xx

Hi camilla I’m also from oct thread have done 4 rounds of 6 fec. I think it depends on what time your treatment is, mine has been at 9:30am each time so far. I’ve had breakfast before I go with my steroids and I’m cold capping so normally there until lunchtime. I normally try to eat a good lunch too as I found the only cycle I didn’t I felt rough fir a week, but everyone is different. I wouldn’t eat your favourite food on chemo day as it puts you right off it, mind you last chemo day I ate chocolate muffins in an attempt to put me off cakes but it didn’t work ???

Haha meesh that made me laugh ?? didnt work then? Lol

I also ate proper lunch before my first FEC and was fine then went home after it and managed to eat normal dinner as well. They told me to eat as nor.al and drink plenty water befire it, luckily I dodnt suffer any nausea from FEC, but everyone is so different that you will never know how you will react until you get there ans have it, I prepared foe the absolute worst then was pleasantly surprised when wasnt as bad as i thought. Good luck xx

Hi camilla, I also think it depends on whether they get your antisickness meds right and would recommend taking the meds as they prescribe them don’t wait until you feel sick as they say it’s easier to prevent than stop it when it starts. I normally try and spread them out during the day. If you do find you’re suffering tell your team straight away don’t suffer as nausea and sickness is one of the SEs that is treatable.

 

Cycle 2 I got the munchies for sweet stuff and ended up eating whole packets of fig rolls and Jaffa cakes in one go! Hence trying to put myself off sweet stuff!

 

Good luck ???with your treatment hope it goes well for you and the chemo treats you kindly ???

Thought I had prepared myself for hair loss. Had a short hair cut in November, everyone said how much I suited it! Bought lots of hats, scarfs & a wig. Yesterday morning in the car on our way for a family day out the first hairs came out in my fingers. I have been so shocked this wkend by how traumatic the experience has been.
I went to my hairdresser yesterday afternoon as planned for a grade 2 cut. I was so tearful even with husband there for support. I needed a Gin & T to recover! Spent the whole evening mostly in tears & broke down again this morning when I met my sister for breakfast.
Hoping that I can pick myself back up tomorrow and try get things back into perspective. It’s just hair & it will grow back. So thankful it’s cold weather & lots of people out & about wearing hats too.

I’m in the same place as you Scooterbek :((x. I was going to get my husband to buzz cut it tonight as there isn’t much left now and chickened our. Tomorrow morning it has to be done then I can get my hat on and a scarf and get used to what I’m going to look like for a few months. Xx

Having a blip today. Scared that things will never be the same again and just keep thinking the worst thoughts :frowning: x

Sorry to hear that Sam, sending hugs. I know how you feel as I had one last night after going to visit my sister in laws new baby, then seeing new pregnancy announcements on my FB newsfeed, ended up crying for a couple of hours, this wasnt how it was supposed to go! but I am feeling better today though, so I hope your blip passes as well. It is such a rollercoaster between feeling positive and stong then breaking down over things x

Sam, this will pass, I promise!

I suffered with this on chemo 2 and felt awful, as you say it’s the feeling that things will never be the same and normality will never resume. 

It will!

A week after my couple of days feeling like this I was completely back to normal

 

I know it doesnt make you feel better at the mo, but knowing it will pass I hope is reassuring.

 

sending hugs???

Hi Sam, sorry to hear you’re having a low day. I also had some low days just after cycle 2, it is perfectly normal as this journey is really ???just let yourself feel what you need to. I know it’s hard but try to think about some positive things. I keep thinking that I would never have met the lovely ladies on the oct thread, they really are fabulous and have been my lifesavers. At the moment we’re plotting to tie a bloke, that was mean to Lovely Karen, to our ?  and drag behind so he can get a feel for what this journey is like! 

Home from 1st chemo went really well and feel fine. The calm before the storm?

I start mine tomorrow Camilla9
I hope I can get some sleep.tonight
I feel like am taking the cold

Well done camilla, rest up and make sure you drink plenty of water.

 

good luck for tomorrow karebear hope the chemomtreats you kindly ???

Well done Camilla - 1st one done, take it easy now.
Good luck Karebear for tomorrow, hope it goes smoothly.
Sam I’m sorry you are feeling rotten, hope you pick up soon…sending cyber hugs xx

I braved the shave today…it wasn’t nice but it wasn’t the worst thing either. Caught the train to Birmingham to have a look round the Christmas markets this afternoon, it’s odd getting used to no hair especially round my ears even with a chemo hat on. Headache is killing still and not helped by feeling so tired now. On the train back and looking forward to my bed! Xxx

Well done camilla for 1st one down :slight_smile:

And well done mamadeacs for now braving she shave! Glad it wasnt as bad as you thought. You can definitely feel the cold on the head though cant you lol I also keep forgetting ive done it when I touch my head and realise my hairs gone

Im off to the docs this morning for my first set of ore chemo bloods since startinf treatmebt, praying my white blood cells are ok for Thursday xx