Thanks Mishy I really appreciate your message. Getting through any one of the things that has happened recently is an ordeal on its own but with chemo and shingles (and struggling with the chemo as well) makes it harder. We were also burgled the day my dad died too, you couldn’t write my life if you tried now. My next chemo is the day before my mums funeral, I have been so exhausted and short of breath and the gcsf injection pains make my legs want to crumble, I’m actually worried about how I’m even going to manage the walk behind her. I am strong and I will get through it all but right now I’m beginning to get emotional and that is what I have tried to avoid until this is all over. I don’t want to be in tears in front of everyone. I had this chat with my husband at the weekend, he has been amazing but it is clear everyone is waiting for me to go to pieces. Emotionally I don’t know what to deal with first. I am seeing a psychologist but I’m really bad at letting my guard down so not sure what I’m getting out of it.
I’m so sorry for your loss too…you know they say god gives his biggest battles to his strongest soldiers…that must be us. I’m not religious but it’s very apt.
Big hugs to you xxx
It certainly is just be careful i became neutropenic the day of dads funeral and had to go in hospital for a few days i can’t help but think that because of the emotional pain I was holding in i was a little more susceptible to the effects of chemo you should definitely speak to your onc about what is going on aside from the chemo he may want to keep an extra watchful eye on you my team were fantastic trouble is now im finished treatment im beginning to now deal with the aftermath if the whole experience my own bc dads cancer and fear of the unknown, it will get better in time but for now you have get through this take care ???
Mamadeacs, can u not delay your next chemo a couple of days so u can get thru ur mother’s funeral?
I’m sure if ur unit could re-arrange ur Onc wld be understanding
Because my unit was shut Xmas Day and Boxing Day, my 2nd chemo was delayed 2 days but no-one seemed to think it mattered.
Just a thought…
I hope those burglars get what is coming to them too absolute scumbags, look after yourself and i hope everything goes well at your mams funeral xx
Yeah camilla is right they were going to delay mine when my dad died for a week but I would have missed funeral so i just cracked on but i don’t think a couple of days will harm anything you won’t be strong enough the day after chemo to go through such an emotional day x
On my goodness girls, I’ve had friends over for the weekend and not checked in and you’re all having such awful times,
My Dad died 12 months ago and I don’t think I’ve really dealt with it even now. You are bound to be feeling sad and emotional you’re dealing with a really horrible time for your own health and the loss of close family who have always been there to hold your hand, cheerlead and advise is heartbreaking.
Be brave or cry how you handle it all is so personal and there are no rights or wrongs.
i send you all love, hugs courage and bravery for the difficult days and make sure you tray yourselves to something lovely even if it’s only a posh lip balm.
thinking of you all.
F xx
Fiona, It was September for me when i lost dad so not as fresh as with mamadeacs i just know what she is going through as my loss was during my chemo too, its awful at any time but I think your a bit more fragile when having treatment
Im sorry you are still feeling so sad but it was only 12 months and you are dealing with your bc on top of grief x
M
Mamadeacs id definitely see if you can push your chemo back a couple of days. Mine was delayed by 5 days during round 3 and they didn’t seem to be bothered by that. Will give your body a few extra days too…?
Chaffinch17 - I’m on Herceptin. I started it with my 1st round of chemo. I’m having 18 rounds of it I believe? Iv been told the side effects are pretty minimal in comparison to chemo. Although it currently gives me a sore runny nose. Will be able to tell more once the other drugs stop though!
Moijan- I have been suffering with nausea too. Every round has got worse and worse to the point where I ended up having an anti sickness injection today and some new tablets that dissolve in the mouth?? Really hope to god they work as nothing is touching it at the moment!!
Xx
Morning, how is everyone getting on?
Moijan, my fingers get very numb each cycle I have. I’m on a reduced dose too. I need to get some udder cream but at the moment ordinary hand cream has been fine. Many years ago, when I used to work night shifts, my hands would be sore & chapped. I used to use helping hands from lush which was the best hand cream. Not the best shop if you’re feeling nauseous though! I’m also feeling very nauseous this time. Not sure if it’s because I took the akynzeo & then the chemo didn’t happen until the next day. They said it lasts 5 days though. Metoclopramide not really helping this time.
Big hugs to you all xx
Good morning Ladies well today is the day I get my Hickman line fitted to be honest am a bit anxious about it.
My latest gift from chemo is conjunctivitis it like something new happens eavk session
Unicornmummy I have my next chemo tomorrow and they have given me emend to take this time for sickness so see how that goes .
The sun is shining here today look lovely from the inside of my house x
Morning all,
Hope all goes well for those having treatment today. May the side effects be kind.
Mishy - that’s what I meant I found it difficult and wasn’t going through chemo my heart goes out to the girls dealing with both their loss and chemo.
Here’s to a good day for all. x
Fiona you will also be feeling fragile too 12 months isn’t a long time when losing a parent especially after being diagnosed with bc so soon afterwards so take care of yourself too ? hoping all you ladies get through the rest of your treatments with minimal SE stay strong ?
Morning ladies…I started off ok yesterday then went downhill. Mostly fatigue that I can not shake and sore mouth and throat. Have been up two nights running with a sore throat. Temp is 37.9 this morning, come down to 37.4 with paracetamol so I’ll keep an eye on it for a couple of hours and phone in if it goes back up again.
Hope you are coping with SE’s today. Xxx
Morning ladies - SEs still lingering, mainly the lack of taste buds now. I’m a week post round 4 so hoping that tomorrow/Thursday is better. I was given some anti sickness to take before bed that make you drowsy… it was the best night sleep Iv had in months!! ?
Unicorn mummy - I started on Metoclopramide too (I’m still on it) but each cycle seems to be doing less and less and I was given some other new ones yesterday to take. Hoping they take the edge off for the next 2 cycles.
Kirsty - how are you doing? It must be your 5th cycle this week?!
Xx
Hey ladies, so sorry for all the awful losses and horrible times you are having, it must make things even harder
Well Sam, yes round 5 on Thursday but was a close call as ended up in hosp again last night with a high temp!! Just woke up on monday with it after being so fine on Sunday. My neutrophils up at 7.04 tho and no other sign of infection so they let mw home today with oral antibiotics and said treatment as planned for thursday unless anything changes. This docetaxol is not agreeing with me very well lol glad only 2 left xx
Oh no Kirsty!!! Fingers crossed you will be ok for the next 2 rounds. Is there anything they can give you to boost your immunity this time around? I can’t remember if you had the white blood count injection or not? Xx
Kirsty it’s one thing after another for you sorry to hear that you ended up in hospital . Fingers crossed for Thursday x
Thanks ladiea,Yeah this round has certainly been one thing after another 
my immunity is right back up now but on last trip it was rock bottom, I didnt get the injections but will see if my oncologist has prescribed them this time… id guess she probably will have xx
Kirsty so sorry to hear u were in hosp! Hope antibiotics kick in and keep u going for Thurs
I have been in the chemo unit all day changing to pertuzumab and herceptin, having to hang around 6 hrs in case a reaction, then back in tomorrow for docetaxel , then it’s 4 down 2 to go
I will be given 7 days worth of gcsf injections to take home.
Having had 8 steroid tablets today, actually had an appetite so had fish and chips tonight as husband away and cldnt be bothered to cook. Felt v guilty tho knowing nourishing food languishing in the fridge . .
Well, I wonder what new se’s will descend on me . …
Gd luck everyone another day got through!
For all those having chemo this week - hope it all goes well for you ladies wirhout too many S/E’s or hiccups! Also to those ladies having lines and ports fitted - hope those go well too.
Camilla - dont feel guilty about fish n chips - Ive had them twice every chemo session and loved them …nice and tasty ?
I had 4th EC on Friday and am on 5 GCSF injections each cycle now so thankfully last one tomorrow. New S/E for me this cycle - night sweats!!! Not sure if temporary menopause (Im 39) or GCSF injections…see if they stop after last injection tomorrow. They’re waking me up every hour so lucky if I get 5hrs sleep which is contributing to me being fatigued all day.
Stay strong ladies ??