Hi Camilla…,I’m so sorry you are having such a bad time. It’s funny what out taste buds change our taste too…yours being soap and mine is cardboard. I’m sympathise with you and ‘good time’ also…I have had two rounds of Docetaxel and I haven’t had a good day yet. It’s very wearing when you don’t get some respite.
Hi Kirsty…what a worrying time, especially when it isn’t expected. I had the same pain as you with chemo giving you pain then injections giving you more pain then I had shingles pain on top too. I didn’t know what to do with myself. Hospital put me on Zomorph, a long acting slow release morphine tablet and that is working. It’s mad the amount of tablets I am on. If your pain happens again it might be worth asking for Zomorph.
Thinking of you all…willing us all nearing the end of chemo and ready for Rads. Xxx
Good morning ladies hope you are doing ok.
A while ago we had a conversation regarding claiming PIP and I said I would update you on the result . Just to let you know that I have had been informed that I have been awarded the enhanced amount for both daily living and mobility . I was assisted in completing the form my the Macmillan benefits advisor at the cancer centre. It was backdated to the date of my first chemo . Reading some of the posts on here some of you have been as bad as if Not worse than I have through the treatments so maybe worth considering applying.
If you need any help pm me x
Oh Camilla I feel your pain. My taste has only just returned to normal and I’m back to it tomorrow for number 5.
Just got to keep ticking the days off and getting through one by one.
I’m dreading the nausea and indigestion like you wouldn’t. believe … but just trying to think that we are closer to the end of this cycle of treatment than the beginning ??.. easier said than done I know!!! Xxx
Thanks Camilla! All hooked up and ready to go now!! Been given a super duper anti sickness tablet… so really hoping that works this time around!!
Day 12 for me was the turning point too so hopefully onwards and upwards for you now!!
Xx
Karebear, I had the gene test. It’s just a blood test. The results took about 6 weeks though. I had a lovely lady who held the session. I got very emotional about the impact it would have on my sisters/nieces & daughter. Thankfully my results were negative. Good luck.
Thanks Unicorngirlmummy/ Camilla— I have been given a whole new set of anti sickness this time …, so I’m hoping they work and keep the nausea away!!!
Karebear - I had a genetics meeting about a month back. They talk about your family history etc. I had a blood test taken before my round of chemo this week and get my results in about 4 weeks time.
Thanks ladies. I’m on Akynzeo and cyclizine. Ok at the moment but feel totally spaced out and keep falling asleep. I’ll take it over feeling super sick… but I’m not with it at all!!
Anyone else been on these meds and felt the same? Xx
I’m also on the levomeprozamine too!! I take one at night and it absolutely knocks me out. Had no idea it was an anti psychotic though!!
The nausea is at bay at the moment… but I suffer with delayed nausea so can’t really tell how they are working until around day 4 of 5! Really hoping it works though as I have round 6 to go yet and each round seems to be getting worse… ?xx
Yes, the levomepromazine is an anti psychotic but very effective as an anti sickness. I had it with last years chemo but only at night. They give a very small dose, 1/4 of a tablet I remember taking. When I had AC chemo nothing totally took the nausea away.
Hope everyone is doing ok & that side effects aren’t too horrendous xx
Re Paclitaxel …doany of you get sore, aching muscles at all’? I find under my bra straps and along under my bra at the back is very tender.
also I get a reddish arm on the 3rd day which I thought could be cellulitis, but don’t think so now as it goes away…but my arm muscles hurt if I do too much.
Hi Unicorngirlmummy . I’m now 10 days post cycle 4 & finding it hellish . The T has really upset my stomach, so much that i’m taking max dose of loperamide & still food goes straight through me after an hour or so. Ended up in hospital on Thursday & put on drip. Also thrush in throat & phosphates low, Dr said this was why I was sleeping most of day/ night,what a surprise ! Now got phosphate tabs for 3 days , but do wonder the logic of this if bowels so bad. I’ve not been out of the house in 10 days which is not good , apart from putting on a pampers can’t see what else I can do?Any one else having this problem?
Hi ladies…have been absent for few days, last two lots of Docetaxel left me in hospital for more time than out with infections. Onc decided to dangerous to stay on it and Thursday had my first of six Paclitaxel plus my 2nd herceptin. It went ok, no anaphylactic reaction which was first plus. Friday Day 2 was my mums funeral and I coped ok. Today Day 3 I have slight nausea despite being on Emend and Ondansetron but not enough to put me off my food. Joint aches and fatigue today, I literally fell asleep sat up which haven’t done before. I know I have had a very stressful week but so far I am pleased with the change although I was disappointed that I have 5 more to go not 1 more but I’ll get over it. Keeping fingers firmly crossed I don’t get any infections or mucositis.
Much love to you all xxxx
Thanks all for the tips! Have my usual porridge in the morning ,plain & scrambled eggs at lunchtime & I manage 2.5 + litre of water through the day .I’m also taking codiene/paracetamol at bedtime,so think it’s just a waiting game. Keep trying not to think about cycle 5 & 6.
Just received some more sad sad news that is hard to process. When I was in hospital a couple of weeks ago I hit it off with another lady of similar and and very same sense of humour. We had a laugh despite our circumstances and planned to meet up when we were both feeling better. Today I had a message from her husband to say sadly she had gram negative sepsis and died in his arms on Sunday. She had acute myeloid leukaemia and was in her last chemo. This is the first person with cancer I have known to pass away. I am surrounded by death at the moment, my dad, my mum and now this lovely lady that I only knew a few days but was glad to call a friend.
Hey ladies - sorry to hear some of you have had bad news over the past few days ? hope your weekend has been as good as it can be though.
Moijan - I get aches and pains around my shoulders/back/collarbone for the first week of treatment. I was told it was the Docetaxel that was causing that. I think the Gscf injections can also cause pains too so it’s a double whammy!
I’m Day 5 of round 5 today and Iv been struggling this time. Not sure if it’s the cumulative effect but I feel like I have been hit by a train this time. Is anyone else feeling the same?
I’m worried that round 6 will be even worse ??
Xx
Sorry to the hear the bad news that a few of you have had in the last few days and I am sending a virtual hug to you
I am on day 3 of cycle 5 with my reduced EC chemo to 80% which is supposed to be to reduce mouth ulcers. They usually start around day 5 so will see if there is any difference.
Im also having more hot flushes this cycle than last cyxle and am waking every hour with a full on sweat for about 2 mins at a time so have ordered a pedestal fan today to see if that helps somewhat during the night. It also appears that my periods have finally stopped as it was due on Wednesday last week…not sure whether they will start again as I am due to start Tamoxifen after radiotherapy.
Im also on the 3rd cycle of having the GCSF injections and have found that I am getting achy back and groin this time around which I didnt really get too much of last time - they do make me very sleepy and a bit more nauseous so have the injections around 8.30pm which I find helps a bit.
