What one are you on now cathsin? Im dreading the next week on this final docetaxol herceptin and perjeta ? x
Runawaygirl - I could have written that post myself. Round 5 for me has been the worst. I feel like I have had every side effect this time and my body literally cannot take much more. I’m Day 9 post treatment and I’m still feeling rotten. No taste, no appetite, just all round meh!
I honestly don’t know how I’m going to drag myself to the last one to do it all over again???
Kirsty - well done for finally getting there!! Let us know how it goes and hope the meeting with the surgeon goes ok!! 
Xx
It’s horrible getting every side effect in the book isnt it! Cycle 5 was def the worst. Im hoping cycle 6 is not as bad but if it is then just need to get thru the 10 horrible days then hopefully come out the other side
Ill keep you updated with surgeon meeting tuesday
Hugs to everyone suffering xx
Kirsty had no 5 yesterday the same as you but carbaplatin as well x
Oh good luck, hope the side effects arent too bad for you xx
Well done Kirsty! You must be thrilled! Well, in about 10 days!!
Sorry you’re having such a rough time runaway girl. It’s exhausting & draining. I always felt so low when the side effects were at their worst, my mind would go into over drive. It feels like you’re never going to feel well again. You do miss your old care free life which didn’t consist of feeling hideous & didn’t revolve around hospital appointments. It’s utterly hideous, there’s nothing positive I can think of saying, except it will come to an end, it’s a hard slog but it will come to an end ?
It’ll be 4 weeks tomorrow since my last chemo. My arms & legs are still painful but I feel relatively back to normal.
Hope everyone is doing ok xx
Hi ladies, sorry have been absent, but had my port insertion on my week off. Was fine but a few days of discomfort since…hoping it will feel great by Thursday when I’m booked for third cycle…first treatment out of three.
i see you’ve all been having (or many of you) rotten side effects…so sorry. Yes this chemo lark can be the pits…and coupled with the big freeze again…very discouraging…but from all your posts…seems we are all on very powerful chemos…so fingers crossed they are doing what it says on the tin!.
i was first diagnosed in 2001…and then had some similar treatments to yours…am still here ladies after 17 years…and I had a huge tumour and 11/12 lymph nodes positive…with some cancer free years before it came back.
take heart???
hugs toyou all
Moijanxx.
I have a port Moijan and it’s great! It’s a good job I have it really as I had a cannula for my first round and in now have a case of phlebitis! Been given antibiotics this morning which is rubbish!!
Hope everyone’s side effects have been kind to them this weekend! I feel much more human now… it’s only taken 2 weeks!! All ready to go again next week…!! I think someone might have to drag me there and tie me down at this rate!! Dreading it already!!!
Xx
Sorry to hear that several people have been struggling, hope things have been better over the weekend.
Ive found rgis 5th cycle the toughest yet so far and my reduced dose hasnt really made any different. Throat and digestive tract still feels like it is “burnt” and still had ulcers. On day 11 now and still have nausea on and off so really think I am stuck with these effects now until the end of cycle 6. Speaking of which that is looming too and I have mixed feelings about it. On the one hand I think I should be happy as that is the 6th and final round when my body can start to heal itself and be gone with the chemo. But, on the other hand, the mere thought of the chair, cannula and EC chemo, steriods and GCSF injections gives me visible shivers and deep tum nausea ??
Have been extremely emotional this cycle but I think some of it is a) not expressing my emotions and b) my periods have now stopped so feeling very hormonal and PMT like without the menstrual release.
Hey ho…the chemo finishing line is coming into focus!
Hi ladies think we are all emotionally and physically exhausted with it all now . Had no 5 last wed luckily they went ahead with it as my red blood count was below acceptable levels so the did ablood transfusion on Friday after the treatment . Unfortunately I am now back in hospital high temp all a bit of a panic when I got here as blood pressure dropped low and I sparked out 3 times . Just got into a bed see how long I end up in here this time x
Oh no sorry to hear you are in hospital cathsin, hope they find out what it is and antibiotics kick in and make you feel better. I know all too well the high temperature hospital admissions 
It certainly seems like all of us have really struggled with cycle 5 emotionally and physically… it must be the months worth of this crap building up. I also had very mixed emotions for my final cycle, thought id be happy but kept crying a lot on the week leading up to it. Im on day 6 of cycle 6 now and I feel ao much better and more normal than last time round, no hospital yet, praying it continues but we will see. Surgeon meeting at 11 today.
Sending hugs to everyone struggling xx
Hope all goes well with surgeon Kirsty x
One week into cycle 5 & the heartburn was been hard to deal with and the stomach pains. I think it’ just a build up.of all the drugs that are being pumping into me.
At least there’s only 1 more chemo to go.
Xx
Oh no Cathsin! Sorry to hear you have been in hospital! Hope they let you go home pronto!!
It’s defin taking its toll - Karebear I also had terrible heartburn this time around and stomach pains… it was really hard to deal with and I struggled eating and drinking anything for fear it would make it 10x worse!!
I’m Day 15 and it’s subsided … but I’m still wary!!
Runawaygirl - I feel the same! My nausea lingered and I have just accepted that I will probably feel like that for round 6 now. The shear thought of chemo makes me feel really sick too!! I had to go to the ward yesterday for antibiotics for my arm and even the smell of the place made me feel sick!!! Arghh!!
We can do this though… right?! ???
Xx
Hi ladies, sorry to see that things aren’t improving ? So near to the end of the chemo hurdles though. That feeling of dread walking to the unit is awful isn’t it ? I dropped off some biscuits to my unit last week & had that feeling even though I was only dropping something off!
The good news is (& please don’t want to strangle me!!), my last chemo was just over 4 weeks ago & things are returning to normal each day. My muscles still don’t feel right but I managed a day of walking around London on Saturday which I wouldn’t have a few weeks ago. Back to work on Thursday, I’ve been off since September ?
Deep breaths, sending hugs ? xx
Hi ladies I have read many posts on here about neuts and was not really sure what is about … I do now mine are 0.1 so I not getting out of this hospital anytime soon I reckon . I can understand when some of you say the 5 o d is the worst we know there I only one more to go and there is joy for that but we are no experts in how we are going to feel and the prospect of that is not good . X
Great to hear unicorngirlmummy and good luck going back to work! Its lovely getting some normality back
Oh cathsin that was me too, my neuts were down at 0.1 and thats why they kept ke in for 5 nights untill they started going back up, they turned the corner on day 12 of my cycle and they let me home
So met surgeon yest! God the meeting goes so fast and you forgot to ask things lol so im still getting the mastectomy like planned as I have widespread calcifications/dcis so they need to remove the lot. Im booked in for a sentinel node biopsy operation on 12th April and then booked for the mastectomy 19th April ? where they will do a lymph nodr clearamve at same time if necessary, depening on the results from the sentinal node biopsy. had to decide there and then about reconstruction and didnt have a lot of options as I dont have enough fat to take from back and struggling on belly so wr are going to try immediate reconstruction with an implant, but im also getting radiotherapy so the inplant may fail but he said we can just remove then re look at the ofher options down the line. Hopefully everyone else still to get their surgery will hear plan and get dates soon. I feel glad to have been given dates so promptly as that will be bang on 4 weeks after last chemo.dose that we get started xx
I meant we are now experts … sorry x
I’ve been feeling very down cycles 4 & 5 I think it’s down to coping with all the S/E., And now am nearly coming to the end of chemo.
When the radiotherapy is over am going to go to counciling I think it will help me get on with life.
Have s look out for something called moving forward Karebear it’s a programme run by us in Wigan I am a bit too soon to get involved but will defo look at it when everything is done.
We are all foing amazing and counting down now
Unicorngirlmummy we don’t wa t to strangle you glad you are in the other side it will be the rest of us soon x