Cathsin, one of my oncologists makes mistakes like that, not just with me either! Sorry to hear that your friend is in the same boat ?
Kirsty, thank goodness for eyeliner is all I keep thinking! I have a 1cm nodule in my lung, it didn’t change size at all after chemo so they’re still unsure. I had another pet scan last week as they’re now talking about possible micro-ablation. I also need to have reconstruction but because I only finished radiotherapy last April I have to wait 18 months. Is your surgery next month? Xx
Cathsin people say the most stupid things to me as well . I just take a deep breath and try to smile at them
They have no idea what we are going through
My friend list has got a lot smaller since this has happened to.me
I only want the people who have supported me through this in my life now
Xx
Yes I’m sure you are getting nervous. You’ve had to go through all the chemo first so much longer to think about it. I had a sentinel node biopsy the day before my lumpectomy & it wasn’t as bad as I thought at all. I was more wit that they put a dressing under the arm & I thought how am I going to shower & use deodorant before the operation! Nor was the mastectomy, if anything they numb it so much, I didn’t need pain relief the whole time I was in hospital. Will you have imediate reconstruction? Xx
Karebear I know what you mean! I’ve even deleted my Facebook account! I had a recurrence very soon after my initial diagnosis. I was only back at work for 4 months before I had to go off sick again. When I went back to work last week a colleague said to me ‘nice to see you back, you almost made it back last time!’. I think people don’t know what to say!! Xx
Some people can be insensitive at times wirh their comments but sometimes I think its just a case of they dont know what to say.
I’ve had amazing support from family and friends especially those friends who have known me the longest and the little thoughtful gifts theyve sent me have perked me up on those down sometimes darker days. ?
There are also those who i will re-evaluate on my “friends” and “family” list who have pretty much disappeared since my breast cancer diagnosis and subsequent chemo treatment. I prefer to be surrounded by those who have offered support and love during these mad 6 months.
6th and final (hopefully) chemo done for me earlier today and I skipped out of the Oncology Day Unit…and yes I have video proof!! ?
That is good to hear then and hopefully wont ne too bad. Yeah I am getting immediate implant reconstruction to tey first although there is a cjance the rads could muck it up, but I dont have enough fat om back and they were unsure if enough on stomach plus i didnt want the long revovery, so fingers crossed the implant works.
That is so **bleep**ty having a reoccurance so soon after, so was it lumpectomy first then mastectomy when it reoccured? How did the reoccurance appear?
Yes some people just dont know wjat to say and are so insensitive! I am the same and really appreciated the wee thoughtfull gifts from the ones who jave really been there then there are the ofd few who have disappeared and have been pretty useless. Will always keep that in mind now xx
Well done on final one runawaygirl! Xx
Hello everyone! I’ve been scanning through the last few pages to see where everyone is and it looks like you’re all coming to the end of your chemo, which is just brilliant. You may remember that after my 6th chemo a couple of months ago there was concern that the tumour was not responding and I was going for a meeting with my oncologist to get the results of my lymph biopsy. Well a lot has happened since then! Feel free to grab popcorn ? if you can stomach it.
The news was devastating. Not only was it not responding, the tumour had grown and spread to my lymph. I’d had a supposed total lymph removal 20 years ago but I guess it’s hard to get them all. To know that I had gone through six cycles of chemo just to be left bald and poisoned and in a worse state than I was to begin with was very, very hard to accept and I’m afraid I just could not face the forum. I felt like I’d run 20 miles of a marathon with you ladies and suddenly I’d been told to stop running, I wasn’t going to finish the race and I wasn’t getting a medal.
My two remaining chemos were cancelled and I was booked in for a mastectomy three weeks later. As the priority was to get it out, I couldn’t have a reconstruction at the same time, which is something else I had not factored in. On 13 March I had a 96mm grade 3 tumour removed - it had tripled in size in just a month - and the cancerous lymph node. I went home the same day and have recovered well, my hair is even starting to grow back, although in the last two weeks I’ve lost most of my lashes and brows!
My CT scan came back clear and I have a bone scan on Tuesday which should be the last loose thread. On Friday I will begin a six-month course of oral chemo followed by radiotherapy to my armpit. As my cancer was so aggressive they are keeping a very close eye on me and this next lot of treatment is to blast anything not visible on the scans. Can’t believe I’m going head first into more chemo and another set of side effects, but I am happy that they have a plan.
Having had nearly two months chemo free I can tell you that you do get your life back, your energy returns, your tastebuds kickbin and so does your hair. So just keep going! I know some of you will be going on to have a mastectomy and it really isn’t too bad, chemo is much worse so if you can get through that, you can get through anything.
Take care all xxx
Well done runaway girl! Brilliant news!! ?
Yes Kirsty, a lumpectomy in September 2016, chemo & rads, then a mastectomy last October as where the tumour was, it started started as a pin prick around July but gradually got bigger & bigger. It wasn’t picked up on an ultrasound or an mri. I kept getting told it wasn’t cancer. It was a horrible, painful 4cm cavity by the end. When I had surgery to try & close it, and a VAC dressing applied, my surgeon took a biopsy (thankfully) which showed it was cancer again. They say I’m very unlucky! Xx
The men’s full.monty live is great as well as prostate cancer is connected with breast cancer
So anyone like me that has boys we need to.make them aware to check there (willys) as well
Xc
Oh dramaminx what a time you have been through recently! I had wondered how your meeting went, so sorry to hear the chemo wasnt working and it had grown, such a horrible crappy disease! So glad to hear they got you moved along to surgery quickly tho and you’ve had a clear CT scan. It’s strange that it moved into lymph nodes when you were supoosed to have had full clearance previously! Keeping everything crossed for your bone scan.
Sending hugs xx
Im a few weeks away from lymph node biospy then mastectomy and possibe clearance depending what they find, already know I have one positive nide but they will check some others
God scary that thet almost dismissed it runawaygirl,but thankfully they found it. Sometimes you really to push these things, so many mis diagnoses xx
I’ve been wondering how you are dramaminx. I’m not surprised you couldn’t face the forum. What a scary time for you. Thank goodness they have a plan for you & thank goodness your ct was clear. Fingers crossed for your bone scan on Tuesday ?and that things start going in the right direction now. Big hugs xx
Well dramaminx
you are such a strong woman ??? I’ve no words xxxxx
Sorry to hear of your news Dramaminx but glad to hear that the surgery has gone well and fingers crossed for your CT scan 
Stay strong ??
Jo xx
Dramaminx what a time you have had you are so strong . X
Dramaminx just reread your post had me in tears at what you have been through. Although I am a complete emotional wreck these days totallly different to the normal me . I do feel for you and what you have been through x
I go tomorrow for my final chemo I’ve mixed emotions not looking forward to S/E but looking forward to no more nausa and getting the picc line removed.
Good luck to anyone else finishing chemo this week xx ??
Good luck tomorrow karebear! Having the PICC out is just lovely!!
Good luck to everyone else in he dreaded chair & I hope everyone else is doing ok. Xx
Good luck karebear!
Hope everyone else doing on and close to final chemos
I am a couple days away from the end of the final 3 week cycle, finally! first herceptin injection in the leg on Saturday tho. Hoping no major side effects from that xx
Good luck everyone tomorrow I too am in the chair but with reduced docetaxel and first zoledronic acid infusion . Will be there from 9 til about 4 but will be ringing the bell to show the end of it … still got 12 heceptin jabs to have. But Defo ringing that bell . Operation booked in for 3 May sorry Karebear that you are in limbo as am sure you just want to crack on x