December 2017 Chemo Starters

Hi what are the injections for??
When were you told you needed them?xx

The injections are to kick start bloods after chemo, it differed from trust to trust, some get 5 done get 7 done don’t get given any. They will give you them after your chemo on fec and t this differs. You usually get given a antisickness tablet to take 1hoyr before chemo, at chemo you’ll be given steroids to take before they start if it’s fec and then more steroids antisickness and the jabs to take home for after, that’s what my trust has done. I don’t start t till next week as I’ve dobe 3 fec then I switch to 3 t. I’ve got steroids to start day before for the t but no antisickness meds yet and I know they are giving me 7 injections to take home afterwards. Hope that helps ??:sparkles::sparkles:shi cx

Thanks Shi it’s alot to take in.
sorry what’s Fec and T mean

Fec-t is the chemo I’m on, some people get just fec, some just t and some a fec-t, there are other chemo’s for bc too, so a community champion should be able to advise you what they are, think some of the nov thread are doing ec-t which doesn’t have the f drug bit of the fec. Do you know which one you’ve been advised you are on yet? And how many rounds of it you are to have? ??:sparkles::sparkles:shi xx

Karebear, don’t worry, it’ll be fine, just take one treatment at a time, the forums hear 24/7 to support, love and guide us all through this, we will all get each other through safely, you’ll never be alone, keep strong, keep positive and get your warrior pants on lovely ???:sparkles::sparkles:shi xx

Thanks Shi it means alot to have a group were you know there’s women who’ve been though this and can help others xx

The wonderful May, July and sept ladies are guiding us Oct girls through and we are passing things onto Nov and Dec threads, we are all in this together, through the ???you’ll soon be sharing ? tips and lady garden vanishing with your sisters on the Dec thread it’s all part of this journey, you’ll all be gone, hang on, love and support each other and ???and keep ???:sparkles::sparkles:shi xx

Typo should have said you are all on, not all be gone. So sorry :heart::heart:Shi xx

Morning all to you lovely december ladies

 

Day 3 of chemo 2 for me, I really struggled with chemo 1 with nausea and fatigue, but flagged it and I can’t believe the difference in this round!

Day 3 last time I was only out of bed for a few hours, this time I have been out and about and done a sneaky sainsburys shop for all the things I am craving.

 

Be kind to yourselves and listen to your bodies, we are all here for you and everyone will hold your hand thru it all.

 

Plenty of crappy christmas films on the telly for you to veg out to - drink plenty, nibble lots and rest.

 

 

Just as an aside … as Shi and Meeesh say, beware the internet shopping frenzy.

 

I now know most of the delivery drivers by name now!   But I must remember to put something on my head when I go to the door … I keep startling them with my bald bonce!!! 

 

Happy shopping girls!!

xx

 

Hello ladies…I’m day 2 of chemo 1 and feeling rubbish today. Worst hangover ever is the best description I can say. Headache and nausea that just won’t go… even though I got up and showered it wasnt long before I got back into bed. Hope everyone else coping ok. Big hugs xx

Thanks Sue…I think I was expecting it more either yesterday or Monday when steroids and anti sickness meds’ finish. I keep gulping as though I’m going to be sick but nothing there ?xx

Hello all, hope you’re doing ok. I’ve finally got my chemo start date for Thursday 7th. Just want to get started now and with all these winter colds about just praying I don’t pick up anything.

 

Has anyone had their amount of cycles changed? when I saw the oncologist she said I would have six cycles of TC + 18 x herception my copy of the letter to the consultant says four TC + 18 herceptin. I queried this yesterday with the chemo sister and she checked and said it says four.

 

I’m thinking was it a typing error and did the chemo sister just look at the same copy of the letter? xx

Hi Karebear, I’m on EC-T. 3 EC then 3 Docetaxal. My oncologist said they rarely give the F part any more in this trust. The E part is epirubicin which is bright red & turns your wee a red colour, and cyclophosphamide is the 2nd part. I will then switch to T for 3 treatment & also have Herceptin along side as I am ER positive.

Hi rabbit
I had 4 cycles of TC, so it is possible that that is correct. However, I was told this right from the start. Is it possible to query this, maybe with your bcn?
Sue xx

Hi Karebear, don’t worry about the injections, I’m having fecx6 (due chemo 4 on Tuesday) and I  haven’t had any injections. As Shi, says it seems to depend where you are and I think maybe what type if chemo you’re having as many of us ladies just having fec don’t seem to have the injections (I think only one out of 4 of us and she’s having private treatment). 

Mamadeacs, it might be worth calling your chemo team as they may be able to advise what to do about your nausea. They may suggest you take more meds or prescribe you something else. Don’t suffer in silence it might just mean they haven’t quite got your meds right.

Morning all…day 4 and I’ve woken not feeling anywhere near as bad. Yesterday was definitely horrible. This morning got up and had a banana and a coffee, my usual go to, and a bit of toast on the go. Hope you are all feeling ok today. It’s seriously dreary here but I know I need to get out for fresh air today and stop my joints aching from so much time laid down yesterday. One question - does the ‘hangover’ come back tomorrow when I’m off the steroids or can I assume the worst is over for this cycle?
Big hugs xx

Hi Sue…I’m really bad at the minute I feel a bit better I try and go back to normal so I will be careful. No injections to do. My treatment plan has changed a couple of times, it got really confusing. I opted for FECx6 followed by Herceptin because of the heart damage risk but then Maggies arranger for me to speak to the oncology pharmacist so she could explain what the different cocktails do and she said it is more usual for someone with a HER2+ diagnosis to have FECx3 then Docetaxel and herceptin. She said you don’t want to delay the herceptin. When I had pre chemo it looked as though that was what was selected for me anyway as she gave me paperwork for FEC-T and told me about injections. I spoke to Onc again and he said she shouldn’t have says what she did and he knew better so I’m in just FEC now. As if everything else doesn’t screw with your thought process they can’t agree amongst themselves! I’m still not sure if I’m doing the right thing, it does seem to vary trust to tryst and probably onc to onc. I do have to start antibiotics tomorrow though as I’ve had 8 UTIs since end of June, he doesn’t want to take the risk. Xx

Ha…some epic typos in my last message…trust to tryst! Sausage fingers on phone ?. Onc suggested he printed off 4 studies for me to read that proved his way of doing things was right which was a bit of a knobish thing to say given it would all be in medi-speak, I’m pretty sure someone else could print off 4 more proving the other way best too. I’m going to stick with what he has suggested as want him on side. You would think there was just one way.
Who would have thought a shower could wear you out…I’m ready for a nap again! Xx