Shi, yes I’m every 3 weeks. Onc did say he may have to change the dose x
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have you got injections to give yourself too? Some on our oct17 chemo gang didn’t have them so if you don’t might be worth asking about everything’s tailored specially for you they check your liver reading too during chemo as it can take a battering and if any of you get chemo delayed because of neutrophils or liver it has happened to many on the threads over the years, just keep focused you got this and bcn and everyone here 
has got each other 
Shi xx
Shi, I did filgrasim for 5 days. He did mutter something about maybe having more of that. Liver and kidney and all other bloods were ok. Just the neuts possibly a problem. Hopefully theyll be good at next bloods next Thursday. He didn’t offer any suggestions of what I could do before then, other than stay away from indoor crowds.
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I’m having then every 2 weeks for 8 weeks and then into pax for 12 weeks
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You can direct/ private message if you click on a name. A small message box appears.
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@mrsbee2 hope your treatment went well yesterday, how are you feeling?
I’ve felt surprisingly well so far, although wary that may change over the next few days once steroids stop. First Filgrastim injection for me today.
Hope you are resting up and taking things easy.
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Thinking of you lovely ladies having treatment over the Christmas period. I’ve just finished 12 weeks of Paclitaxel and cold capped ( 98%hair retained). I’m on the September (June, thought I was having chemo before surgery, then had lumpectomy first).
I’m here to answer any questions if I can. Reading previous chemo starters can be helpful aswell.
Take it easy over Christmas and delegate, put your feet up and be waited in. 
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Hi lovely, Same as you but aware can change! The whole process was very overwhelming especially the PICC line but I’m here, feeling ok apart from tingly hands (no idea what that is!)
One day at a time xxxxx
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Ahhh how lovely to jump on a few months in! I appreciate that as I’m sure others do! Great news on your hair, I’m hoping for the same! Not sure my cap was fitted properly though……
What’s next for you?
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Oh no, sorry to hear that……fingers crossed they come up xx
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Continuing with Herceptin. Radiotherapy 10 January and Letrozole for 5 years.
For scalp cooling look at https://coldcap.com/ and https://www.cancerhaircare.co.uk/ who will answer you individually questions and do the course on hair loss with https://lookgoodfeelbetter.co.uk/
The first website above is from Paxman the makers of the scalp cooling and have lots of tutorial videos you can watch how to fit them and speak to the nurse putting it on. I did as it was a different person each week and you want it to fit properly, some put the inner cap on at the same time as the outer and I had to ask for it to be removed and done separately.
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I need a bit of advice on two counts, or rather where to find help…I’m due to be starting my first round of chemo on the 27th - I’ve picked up my prescription yesterday for steroids which have instructions to take 4 tablets twice a day for three days but it doesn’t say what days! As in which days before, during, after treatment. I left a message yesterday with the breast cancer oncology team but I’ve not heard back. I’m guessing everyone is off now until the 27th?? Do I call the emergency line? Feels a bit dramatic but I’m not sure who else to call as all the other numbers are office hours.
Also, my little boy has come down with a stinker of a cold/cough and has a high temperature. He’s never ill typically but is completely knocked out by this. He’s only just come down with it yesterday so I’m hoping it will pass in the next couple of days. But I have now started to get a bit of a cough. Not bad at all but it’s there every so often. I feel fine in myself and I don’t have a temperature. I’m just not sure if they will/should delay my treatment but again I’m not sure who to call or ask?
Bloody Christmas holidays!!!
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You should definitely phone the 24/7 number about both. I was told off by the nurse flushing my picc line because I didn’t phone to report that I had a headache and swollen glands straight away, but I waited till next morning.
I was given a box of 3 apripitant anti sickness tablets. The printed prescription label on the box says to take higher dose 1 hour before the chemo session and the 1 lower dose on each of the following 2 days. Is any of this relevant to what you’ve been given? Then when I arrived at the hospital for my treatment they gave me another small pill of something plus 4 dexamethasone I think, to take there and then.
I have to do a covid test the morning of my sessions. Is that the same for you?
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I would call your helpline to clarify.
But from my own experience I had Dexamethasone 4 tablets 8 hours before chemotherapy (generally the night before as my chemo appointments differed each week), 4 tablets the day of chemotherapy (but the doctor stopped this as I had the dexamethasone via a drip before my infusion into day) and 4 tablets 8 hours after my infusion. This was all clearly labelled on my medication. If your is not, you need to check.
From my experience not all who have chemotherapy have premeds on the day like I did. ( Paclitaxel weekly)
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Thank you, I’ve now spoken to the helpline who were really helpful
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Great that you’ve got the information you need.
If in doubt call the helpline.
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Happy Christmas to me. Decided to wash my hair tonight as a treat. Most of it came out in the shower. Luckily put a plug strainer thing over the shower plug before I started as I was expecting it to happen. Hair was quite happy yo stick to my body, but not my head. I looked like an orang utan.
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By the sound of your message it was expected. I don’t t know how you feel as I was able to cold cap and managed to keep 98% of my hair, just two patches above my ears which are now covered with my hair growth. I’ve met so many ladies during my chemo who have just embraced their baldness, many decide to just accept it others wear scarves or turbans and some wear wigs. Did you decide what you wanted to do?
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I was offered cold cap. They said 50% success rate with EC and far less with Docetaxel, so I decided against it. Hair hax been coming out easily most of the week. It’s been driving me nuts all over the collars of my clothes, tickling my face on the pillow etc. Still a shock when it happens, and quite suddenly too. I decided from the start to go with hats as it’s winter, and scarves. I did go with a wig too but I don’t plan to use it much, so I have lots available.
It’s another step to remind me what is happening to me x
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Oh sorry to hear that. What day are you on post first chemo treatment?
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