@emilyxxx Need to reprogramme those leg hairs-to the head to the head!! I didn’t cold cap & quite a few hairs have hung on in there & are they’re stuck right up in the air so I truly resemble a half plucked chicken right now! As you say some short hair & caps & we’ll be good to go x
Yes I’m the same I also resemble a plucked chicken, more coverage would be just fabulous xx
@emilyxxx @whataloadof I’ve noticed some random hairs are refusing to leave me which isn’t a bad thing but I think it’s funny that some are clinging on! I keep patting my head as it feels like a sparse bristly brush and nothing has left my arms so far! It’s a joy having smooth legs and underarms not to mention the lack of general body maintenance now!
x
Hoorah for March
I should finish this month too ![]()
Love February, it whizzed by.
@evicting_00_squatter Friends were moaning that February went by in a flash & here’s me couldn’t be more pleased-as my dad used to say don’t wish your life away but I think he’d forgive me with this particular bit!
Hi everyone, happy Monday! It’s my final paxitaxol/carboplatin infusion today can’t believe I’ll have done 12, then starting 4 EC’s from next week which I’m very scared of but taking it one day at a time. I should have a mini celebration when I get back tonight.
However Neuropathy has finally come for me though the tingling is driving me mad, does anyone have any tips to alleviate it? And what are people putting on their shaved heads? I was thinking of coconut oil.
@dani_321 I am using coconut oil that is the one used for cooking. I buy it in Holland and Barrett and it is really cheap. It has worked a dream on my scalp. I also use it as a general body lotion. x
That’s great news-1 regime complete today!
On scalp I’m an eczema/dry skin prone one so I bought eucerin scalp stuff which is a liquid with urea in it so it’s super soothing-quite look forward to putting it on as feels really nice. I think my dog would lick me too much if I used coconut oil!
On neuropathy no easy answer-I keep doing a little limb shaking dance to get blood flowing & lots of finger & toe taps/scrunches just to keep moving
Neuropathy has hit me pretty hard on 2nd Docetaxel. Part numb part very painful heels. I had been doing all sorts of massaging, toe tapping and icing etc which feels like a good idea , and who knows , may have been worse without?!
I have been advised to let oncologist know asap so shall be doing that at my appointment tomorrow. I shall advise you same! Sending hugs xx
@nib32 yes I had it bad on first round and had a reduction in dose for round 2. I still had it, but it was way more manageable. Good luck. x
Thanks all! All went without any drama feeling relieved chemo stage one is done now for part two with the Red Devil
weekly chemo for 12 was very tiring. The doc said to go ahead as normal as it was my last one but to get back in touch of the neuropathy gets worse which wasn’t great but let’s see. Sometimes there is someone who does reflexology which helped the last time I had tingling but she wasn’t there today.
@Jaygo ive orders some Coconut oil which should come tomorrow.
@whataloadof dancing sounds like a great idea. Anything to bring joy at this point in life! And yes stage one done! EC, surgery and radiotheraphy to come. Can’t believe I’ve done 12 weekly sessions.
@nib32 the nurses spoke to my oncologist who said to go ahead as normal today which wasn’t great but it’s my last one before EC and to get back in touch if it doesn’t improve/gets worse. I’ve had reflexology previously which really helped with the neuropathy but the lady who does it wasn’t about today.
Hope you like the coconut oil. It definitely helped reduce the scale factor on my legs and arms, and gave me baby soft feet!
@Jaygo Mine got worse after dose 2 , which was a reduced dose! Not sure they can reduce more, but I’ll see what if anything they suggest today. @dani_321 my next one will be my last too, so I guess they may just tell me to push on anyway
. I’m going to make damn sure I get to use my ice packs next time, though. I’m thinking of going ahead alone to chemo and waiting to see if they actually have my chemo meds ready , and then asking OH to come over after with the Suzzipads. It may mean I hold them up a bit , but it’s important!!
Hoping your neuropathy doesn’t get worse @dani_321 , and wishing all the best with the red devil. My no 1 tip is not to skimp on the anti sickness meds, don’t wait to feel sick before you take it, keep ahead of it! Xx
Thanks for the tips! I’m super scared but once one is done I’ll know how my body responds.
Use the ice packs…take anything that can help. I had a little neuropathy after my second round but I had some reflexology afterwards which really helped xx
@dani_321 I’m on the same regime as you. 8/12 paxclitaxol today and 3/4 Carboplatin done. Moving onto 4 x EC when I’ve finished the 12. Started Bisphosphonates today.
How has it been going? Hope you’re ok x
How is everyone doing? I think we’re all going into our next round over the next few days? Tuesday for me which is round 5 of chemo & number 2 of Abraxane. Last but one so had a urgghhhh day yesterday feeling it’s close but still much to go through before its all done.
Consultant put all the bone pain down to the pegfilgrastim getting busy in my pelvis so I’ll grin & bear it next week because then only one more to go!
We are so close ladies!
@whataloadof i was prescribed codeine for round 6 (last Friday) my consultant thought it was the paclitaxel and it’s helped loads, I’ve just had appointment letter to start meds for 8th April and for radiotherapy planning scan and date for radiotherapy to start, 27th April for 3 weeks, crazy that the end is in sight! Xx
Two more rounds of chemo to go next one is a week tomorrow for me x
Hope everyone is keeping as well as can be x
@emilyxxx They’re getting you through it too! I was given the leaflet today for both radiotherapy & letrozole (not sure I’ve done much in my life for a decade!) & suggested radio will start 3 weeks after final chemo so very similar timing to you. We’ll keep going together! Thanks for heads up on codeine…I have some from my mastectomy if it gets really bad-didn’t even use it then but I can’t take any nurofen because of my blood thinners.
Yes sounds like will be similar timing my radiotherapy is an hour away so will be a long 3 weeks that’s for sure! Do you have far to travel? X