I am on exactly the same - prostrap, letrozole and zolendronic acid every 6 months.
I am to start letrozole in 4 weeks.
1 Like
Yeah I start at the end of the month x
Iām having a lumpectomy at the beginning of May and either 1 or 3 weeks of radiotherapy about six weeks after surgery.
Nobody has currently told me when Iāll start on the hormones.
Then 12 cycles of something depending on pathology results slots back in after the radio I guess.
2 Likes
Oh and Iāve just been given an appointment to discuss genetic testing as well!!
2 Likes
I think something must have changed regarding genetic testing thereās a few of us being offered it towards the end of treatment, I was told at diagnosis I couldnāt have it x
1 Like
Yea I have 4 weeks of radiotherapy starting in May. So Iāll be starting letrozole mid way through
My genetic testing all came back negative.
4 Likes
Strange isnāt it. I wonder what the cost breakdown is, I canāt imagine that the blood test is much more complicated than everything theyāve already done diagnosing us.
Thereās the counselling element if they need to tell other family members I guess.
They mentioned potentially needing access to other family members medical records.
1 Like
Hey, Iām just popping over from the March thread to ask some adviceā¦ Iām due my 3rd EC on Tuesday, we think my daughter has got chicken pox! Rang the hotline and they checked I had no symptoms/temp etc but said to confirm with GP tomorrow it definitely is chicken pox and the go from thereā¦I just wondered if anybody else had been in this situation and if you were still allowed to go ahead?
Iāve had chicken pox has a child and my immunisation, my last void test they said was higher than expected so Iām hoping that goes in my favour but of course if itās safer to delay then so be it!!! Xxx
1 Like
Hi sorry very delayed response to your post. Iāve done the same 12 weeks PC and immunotherapy was manageable fatigue and rash face. Then moved to EC. Fatigue ramped up and I had nausea for about 9 days. I just took the anti sickness about 5 times a day and it got me through. If the tablets didnāt work for you ask for a different type there is loads they can try. I also found forcing a little something food wise in did help. I was like that in pregnancy too didnāt have morning sickness but at random times of day would feel sick and it would go away when I ate a little something. Might be helpful for your next one. X
1 Like
Wow gosh sorry glad youāre on the mend. Iāve just replied to your other post from two weeks ago. Obviously completely irrelevant now sorry. Hope the next dose goes better for you. This happened to a lady I know too and once she was reduced and they stopped immunotherapy for her she was fine with all her other ECās x
1 Like
Good luck with radiotherapy. Iām starting mine next month, then back on letrazole ( I hate it ! Everyone asks if Iām better now as chemotherapy is over and I feel like Iām expected to say yes but I feel very sorry for myself and there is such a long way to go. Hope your hair gets growing soon !
2 Likes
@awr Hello! Tell me more about the letrazole?
I had to take it before surgery and the hospital said I could have a break during chemo as ā they werenāt that cruel!ā It destroyed my sleep and gave me the most intense hot flushes ever . I still have the flushes without it but they are more bearable. I had a bone scan before I started taking it which unfortunately showed osteopenia so now I need zoledronic acid infusions to counteract the effects of the letrazole. Other friends have mentioned joint pain and vaginal dryness as well. I have to take it for ten years. But having said that , another friend is coming up to the ten year mark with no ill effects from letrazole at all. You just donāt know! The young. ( male) registrar breezily told me that ā almost half of women find the worst effects wear off after a yearā ā¦
Morning ladies just wondering how everyone is doing post chemo, anyone have any signs of hair?? Mines yet to start making an appearance x
1 Like
The casual dismissal of oh itās only bad for 6 months or 2 years when we need to do things like work to pay the bills or to parent! I do hope it settles for you a lot sooner than that. Like you Iām going to be on it for 10 years in theory by which time Iāll be 61. Thatās a decade I thought Iād be coming into my own and enjoying life a bit more but seems itās about to be the decade of breast cancer and health challenges.
So sorry youāve found it tough-Iām going to wait until after radio to start. Feeling a bit like Iāve had all the less than 10% risk side effects so far so letās see what letrozole has in store for me then. Will also be joining on a bio phosphate although been told I wonāt have a baseline bone scan.
1 Like
Good morning! Inflamed shoulder, swollen toes & numb fingers over here but otherwise telling my body no more chemo letās heal. Hairy bits have not received the memo! Pubic hair finally exited after holding on all this time! Eyelashes seemingly can still get in my eye to irritate me even when I donāt have any?! Iād like those back asap as fed up with swollen looking eyes. Each eyebrow has about 3 hairs left & my head has some basically invisible fluff on bits of it & lots of entirely bald patches. My scalp seems to be busy profusely sweating from the menopause hot sweats rather than growing hair! Over it!
Hope youāve been feeling good? X
1 Like
Hi, I have the numb fingers, strange feet if I go on a long walk they itch intensely after a while itās awful but stops when my feet cool down, no sign of hair which Iām now finding more upsetting. I have been back regularly to the gym, have a PT once a week and itās definitely like therapy. Iāve asked go about counselling and have been put in a waiting list, Iām also starting letrozole at the end of this month and zoldronic acid infusion every 6 months, not reading too much about side affects il just see what happens!
Letās hope we all start to feel a bit better each day x
Iāve got about a centimetre of darkish fuzz on top of head and a smooth covering at the back. I had last infusion in February. I shaved the top once over as it was looking too uneven. Might have to grin and bear it and accept there will be a āmessyā period.
Hair on top lip has also returned (boo) but the eye lashes and eyebrows still recede (double boo).
x
1 Like
So glad to hear you have some re growth Iām hoping to see something in the next week or so x
1 Like
Yes to feeling better & to the gym & PT being brilliant!
Iāve had 2 counselling chats although apparently Iām still on the waiting list for proper support (?) & itās been good just to offload & to have someone say it is horrendous & it is huge & no wonder you feel emotional as I think I at least have just ploughed through treatment without really accepting whatās happened. So yes sounds a good plan for you too-Iām such a huge believer in talking about the uncomfortable stuff xx
3 Likes