Thanks once again for your kind comments. Mam remains in hospital having her lung drained and is waiting to see if the pleuredisis has worked. The latest thing to be mentioned is mams unequal pupil sizes, the ward sister mentioned to me that it was unlikely to be due to her head injury and at the time of the conversation i couldnt bear to question further. Mam has decided not to have a brain scan and i support what she decides. I suppose im just hoping there is another explanation for this.
Hi Claire, Sorry to hear your mum is still so poorly. I don’t know what to say sweetheart except to let you know that I am thinking of you both and sending lots of love and hugs.
Keep in touch and let me know how she gets on. You can always pm me if you prefer.
Loads of love, Dianne xxxxxxxxx
Thank you. Im still trying to be positive about things as mam isnt too poorly in herself. If it has spread to her brain, then she doesnt appear to have any other symptoms at present. If they can get her a bit if relief from her lungs, she may be ok for a while longer. Mam seems quite calm about things, which were all trying to follow!
Hi Claire, Good for you hon and good for your mum that she is so calm. I do hope they get the lungs sorted out over the weekend. You take good care of yourselves, I’m thinking of you both and sending lots of love and hugs, especially to you sweetheart - you are a brilliant daughter.
Loads of love, Dianne xxxxxxxxxxxxxx
Hi Claire
Just to let you know Im thinking of you and your Mum. I have fluid on lungs too, had mine drained a few weeks ago and the relief afterwards was immense. Havent had the pleuradhesis but will do as its building up again. I hope Mum gets some relief this weekend from the lungs as that in itself will make her feel so much better. My 2 daughters are like you, worried to bits, but try to take a steer from me and be positive and calm. We try to keep things normal even though we never have been before! Keep strong.
Debs x
Hi. Thanks debs. Mam is home from hospital and still is a bit short of breath and has some pain, so were worried the pleuredesis hasnt worked,but hasnt sought any advice as she wants to see how she goes and doesnt want to go to hospital if she doesnt need to. She is weary today so weve spent the day eating chocs and watching tv, which is about normal for us!!! Hope u get further relief from the pleuredesis. Do u mind me asking if youre having any other treatment at the moment? Best wishes to your daughters, im one of 3 and we have all found ourselves taking on different roles.
Hi Claire, that sounds just the ticket chocs in front of the tv. Im so glad Mum is at home now, or Mam should I say, you must be North, we are originally from North East so mine was a Mam too. That shortness of breath and dry cough/pain on breathing in lasts a little while after anything has been done. Mine took a week or so to improve after the draining, at first I thought it hadnt worked but it did, they took 2 litres off so it was quite a bit and there was still some left in there. I am on more treatment as well. I was dx in Oct 08 and its triple negative so had FEC and tax then radiotherapy. Within weeks it had returned, even while I was on chemo a node came in axilla which they took out. Anyway I got a recurrence in neck/collar and went onto capecitabine. That seemed to keep things stableish for a few months but then it moved to lung pleural and the fluid started so I am now on carboplatin and gemcitabine, had my 2nd cycle yesterday and fingers crossed this is going to work. Its hard for you, I always think its harder for the people on the outside looking in than it is for us. You sound like a close family and can chat things through and decide on the best options between you. Thanks for the note to girls, they are so good and take it all on the chin, they are 16 and 18 so difficult ages for this to be happening but as we always say there are people in a worse boat than ours so lets count our blessings. Give my best wishes and support to your Mam and keep that strong spirit going Claire. Love Debs xx
Hi Claire, glad to see your mum is home from the hospital, hope she enjoyed the chocs and the telly. Sounds good to me. I’m also originally from the North East so Mam was always what we used as well. Hope the shortness of breath and the pain goes away sooner rather than later. Take good care of yourselves. Thinking of you both and sending love and hugs. Dianne xxxxxxxxxxxxxx