Diagnosed DCIS then told its LCIS
Diagnosed DCIS then told its LCIS Has anyone been told that they have or have had DCIS after a biopsy, then found out afterwards that it was not and was actually LCIS after undergoing surgery?
This happend to me just before Christmas 2005, and I had a wide area excision, (quite high up on the top of one breast), then I was informed that after my piece of breast tissue had been analysed it was in fact LCIS. The consultant said it was high grade LCIS and needed to be taken out. There was also a discussion about me undergoing radiotherapy but then I was told this was a mistake. My consultant said that I would need to have a mammogram every year for life, but now the hospital are saying that they can only do this for five years.
I found some very good information on LCIS on the web, a couple of research papers written by doctors in the USA that had been presented at conferences and in them it said that there were three types pf LCIS; classic, florid and pleomorphic. The last two can both mimic DCIS and will only show up as LCIS when further tests are done. Both these types apparently have a strong disposition to someone developing invasive breast cancer.
If anyone has any further light on the subject of LCIS and their own experiences of it, and also anyone who has had something similar to me happen to them, then I would be very grateful to hear from you.
I’m so sorry you haven’t had any replies to your post, Loretta, especially with it being your first.
DCIS is (unfortunately) much more common than your condition, which is why you probably haven’t had any replies. Having had the former, with a small invasive element, I cannot help.
Perhaps you could ask for a second opinion from another oncologist.
Mcgle
PS I will have annual mammograms until I (hopefully) reach the five year mark. Thereafter, it’s back on the NHS van every three years. Not too happy about that.
Wrongly diagnosed with DCIS Hi Mcgle,
Thank you for replying to my first posting, it was really thoughtful of you to reply to me and for you to share some of your knowledge with me as well. Thanks for your suggestion of me getting a second opinion but to be honest I don’t want to do that as I didn’t have breast cancer. I will be going to my GP at some point soon to ask him to write to the hospital that I am under (St George’s), and ask why they are only going to monitor me for 5 yrs and not for life as their consultant said. Like you I don’t feel very happy about things at the moment.
I also was told recently from someone at the helpline at Breast Cancer Care, that LCIS is normally diagnosed by ultrasound, which was how mine was found, although of course at the time they thought it was DCIS. So even if I do have regular mammograms, it would be an ultrasound that will really pick anything up.
Glad to hear that you did well with your op and treatment and that you are ok now.
Loretta.
Thank you for your good wishes, Loretta.
I hope all works out well for you, too.
Mcgle