Diagnosed on friday..

I was diagnosed with breast cancer on Friday…
I found a lump a while ago but ignored it for a couple of months. … hoping it would disappear… but went to see my gp a month ago lots of tests and reassurances that it was all benign…then I was called in to hospital for the results of my biopsy … I figured it wasnt good news so my husband came with me. They said it was very unexpected but that I do have breast cancer.
… It seems to be contained Dr says the duct one… cant remember the abbreviation …with minimally invasive areas… I have to have an mri to see exact extent. … dr said I have done my self a massive favour finding it so early… although I dont quite believe them until I have all the results.

Does anyone know what sort of treatment I might be looking at? I am 40. Also are there any questions that might be helpful for me to ask when I next see the consultant of nurse?

I feel a bit in limbo… deep down I just cant imagine life being normal again. Also I am struggling to tell too many people as their reactions. … (which have only been amazing and supportive) are making me really upset…

Any info or tips are gratefully received x

Hi Dillyc

I’m sorry to hear that you have been diagnosed with BC, but I am sure you will get lots of good, honest support from the many informed users of this site who have a wealth of experience and knowledge between them.

To help you along I have put for you below links to some of BCC’s publications you might find helpful.  Also you talk about what questions to ask, if you give our helpline team here a ring and have a chat they’ll give you some pointers in what to ask your medical team.  Calls are free 0808 800 6000.

www2.breastcancercare.org.uk/publications/diagnosed-breast-cancer/breast-cancer-you-diagnosis-treatment-future-bcc44

www2.breastcancercare.org.uk/publications/diagnosed-breast-cancer/ductal-carcinoma-situ-dcis-bcc39

www2.breastcancercare.org.uk/publications/diagnosed-breast-cancer/resource-pack-primary-early-breast-cancer-bcc145

Take care,

Jo, Moderator

Hi Dilly C, sorry to hear your news! I have invasive lobular cancer stage 2, which I believe is different to yours so I am sorry but I cannot help you with any ideas on your treatment plan. I know this must be a very difficult time for you with the waiting for answers the hardest. I know I have found support by talking to friends and family and not putting myself under too much pressure to do anything, other than what I feel like doing!

I feel the same. I was diagnosed last Tues. Again unexpected they told me it was nothing then cell test showed cancer. I am 35. I actually text all my friends and told them that way because I didn’t want to explain it over and over. I also put on the text I was too upset to talk and I would ring when I know more about the type I have and what treatment.

Dilly I’ve tortured myself reading things on line wondering what type and what treatment. I wont find out til Thurs (MRI tomorrow). But the good thing is everyone text me back saying they had an aunt/sister/friend who had been through breast cancer young and were fine today. I have all those messages on my phone and any time i feel negative im reading them and its making me feel less scared.

I had no idea breast cancer in young people was as common as this.

Leesa

Good luck xxx

Hiya Dilly, is the abbreviation you’re thinking of DCIS?  If so, that means that it is precancerous and is contained

within the milk ducts and has not got the ability to spread elsewhere yet, so that is good news.

You did say that you have minimally invasive areas too though - I would ask what that means (minimally is a good word to hear though!) 

 

A week and a half ago, I was diagnosed with DCIS in 2 areas of my breast and also a small invasive lump (grade 2).

If you have also been diagnosed with an invasive cancer, then I would ask what grade it is and what size it is.

Grade 1 is slow growing , 2 is medium and 3 is fast growing. 

 

Because I have got 3 areas of precancerous or cancerous tissue in my breast (multifocal) I am going to have a mastectomy and they’ll take out some lymph nodes to investigate;  but if I had only 1 small slow growing lump, then I think I could’ve had a lumpectomy (WLE).  Ask how many different areas of your breast are affected and whether it is more likely that you will need a mastectomy and lumpectomy.

 

After surgery, I have heard that chemotherapy is quite likely no matter what they find; partly because of my age (40) and perhaps radiotherapy.  I will not find out until 2 weeks after the operation (ie a months time!).  This is because, cancers are complex and they need to gather as much info as they can in order to taylor treatment to suit each individual case.  

 

They will tell me then how big it really was and the stage that it’s at (ie whether or not it has spread to my lymph nodes and potentially further in the body).  I would ask whether you will be have a lymph node biopsy before surgery or at the same time as your surgery.  Also ask how long after surgery will it take for them to get the histo-pathology reports back and then tell you about which treatment they recommend. Unfortunately, until these reports are back we don’t know what all the subsequent treatment after surgery will be.  

 

Prior to surgery, you should be able to find out somefurther treatment info though.  I would also ask about the receptor status on your cells.  My cancer is ER positive (ER+), which means that

I will definitely be prescribed some sort of hormone therapy such as Tamoxifen  after my surgery.  This will hopefully, block my oestrogen from stimulating any rogue cancer cells that will be left in my body after treatment.  Also ask about Herceptin status too.

 

This last couple of weeks, like anyone else who has been diagnosed, I have had to rapidly get up to speed with so much  information about breast cancer.  Every case is different, but we all go through similar emotions.  I always feel a bit calmer when I get to understand what’s going on a bit more.   Unfortunately the docs can’t give us all the info straightaway.  Waiting is really hard!

 

I hope that that helps you.  Feel free to ask any questions or send me a personal message (PM).

Big hugs

 

 

Wow… thank you for all the responses!

Jo I have downloaded the leaflets and will def call and spk to someone re questions.

Looby I agree… I know my friends have and will be an amazing support… thanks for your advice… the waiting is def hard.

Leesa and Parky I did txt friends and explain that it was a bit difficult to discuss in person… i still got upset with their lovely replies.!! Am rubbish!
I was directed to this forum and website by the breast care nurse… (although I had already found it beforehand) she said it was a good support for all ages but that a lot of younger women found it good… so maybe we all migrate here!

I cant tell you how lovely it is to hear from you all… Thanks. … I wish everyone well with their treatment/waiting/results x

Parky… just saw you last post… thank you. … yes its dcis… I agree I’m not sure what minimally invasive areas means. I will be sure to check.
Unfortunately the consultant I saw first time was away when I was given the results so I saw someone new who I found a little patronising. So I have asked to see the first one again as she was the one who ordered the biopsy just to be on the safe side.
I will be asking alot I think… like you say everything can be quite overwhelming and I need to find out info on my situation rather than gathering info on everything.

Thanks again x

Leesa… I will be thinking of you tomorrow… thats good news that it seems to have been caught early I guess you just want to know what the mri shows to have a better idea.
7 biopsies. … thats a lot, I imagine it was a bit sore afterwards.
Keep us posted. … xxx

You have inspired me to call my nurse tomorrow to get some more details.

I am back at work tomorrow so hoping I dont get too emotional!
X