Feeling glad they have said it is treatable, but now have to have MRI and bone scan as it is in the lymph nodes too. Trying to keep positive, just want to get going with treatment!
Hi Twizzy…welcome to the site. Sometimes new posts get lost as the site doesn’t prioritise them so unless you get a reply your post goes down the list and never gets on the current screen.Now I have answered it will have bumped it up to the top and others should see it when they log on. I look in ‘active posts’ on the left to see who has been ‘missed’ and often find someone languishing there awaiting a reply that may never come. They are fixing/revamping the site so hopefully new people won’t get ignored and give up posting before they have even started. The BCC team do look for all lost souls too but they don’t work 24/7.
Anyway, all that said… I’m glad it is treatable and you are able to focus on that. It must seem ages to have to wait for your treatment but at least by the time it gets cracking they will have all the information they need so making it better for them to target etc.
I’m sure there will be loads of others coming by to say Hi - call back whenever you feel the need.
Hi Twizzy,
Sorry you find yourself on these forums, but I hope you find them as helpful and comforting as I do. I am not much further down the road, having been diagnosed in early January, but I am currently waiting for post surginal pathology results, now only 5 days to wait!
Everyone here is so supportive, and sympathises with the long periods of waiting that are common during the initial period of diagnosis before treatment starts. I have found it useful to keep as full a diary as possible, seeing friends and family to help time pass. Oh yes, and lots of chocolate!
I haven’t had confirmation of my treatment yet, but suspect I will also be having MRI and bone scan as I have node involvement too.
I hope future tests are not troublesome. wishing you all the best for your treatment.
Cyber hugs, MM
Hi Twizzy,
I got my diagnosis on Thursday. They want to scan me on Tuesday to check my lymph nodes but so far they seem pretty positive it’s treatable.
Just wanted to say hello and wish you all the best with your treatment. Big hugs to you. xxx
Thanks, I have it in my lymph nodes so have to have bone scan and MRI, just want to know Howe bad it is and get moving with treatment, the waiting around is not good. Hope you get on ok. Hugs to you to x
Hi
I will be 5 years from dx in May, grade 3 with nodes involved. Had the full monte… surgery, chemo & rads. Hopefully you won’t need that.
It’s an awful time for you right now. Scary beyond words. The waiting really is the worst. BUT I can promise you that it does get better.
None of the treatment is pleasant but if you just mark it off on the calendar, keep your head down, don’t google, come on this site for advice etc, you will be fine.
A doctor said ‘give me a year and I’ll give you your life back’. That’s pretty much spot on, but a year can seem a long time when you’re at the beginning. It’s not. It will soon go.
Take care
HHi thank you so much, I am not able to think at the moment, but just keeping going. What will be will be, I am glad you are ok, they say I am in for the works too, but don’t mind as long as I get well, the waiting is the worse thing, but they are ringing tomorrow xx hugs to you and thank you x
Hi Ladies
On thursday its my 50th Birthday it is also the day I was DX with grade 3 IDC one year ago, I had 3/20 nodes affected so had Lumpectomy node clearance follwed by chemo, and 20 x rads, the surgeon & bcn told me on the day of dx it was treatable as I broke down big time, focus on those words ladies, its not fun going through chemo but its do-able pop on here whenever you need some help the people on here are fab and all know exactly what you are going through , great place for a rant & to let off steam
Good luck with your treatment , take strength from each other good vibes to all
XX