i’m 3 weeks post op and had a mastectomy the surgon took 16 lymph nodes and 14 showed cancer , now waiting to see the oncologist to be given bone and body scan resaults and chemo start date ,stressed or what …
Hi Susan
Welcome to the Breast Cancer Care discussion forums, I hope you will find them a great source of support and information.
I’m sorry to hear that you are having a pretty worrying and difficult time at the moment. I’m sure the users of this site will be along to support you soon.
In the meantime maybe you would like to talk to a member of our helpline staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 600 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 9.00 to 2.00.
I hope this is helpful.
Best wishes Sam, BCC Facilitator
Hi Susan
It is certainly the proverbial rollercoaster!
I was diagnosed in Nov and started chemo in jan. I have the joy of a mx to look forward to and poss rads.
I have lobular cancer and so they did all of the tests on me as it is around long before people can notice it. The tests and the waiting for results is absolute hell and there is nothing i can say to make you feel better. However, once you know what’s what it WILL feel better and less stressful. Try to keep in mind that the tests are necessary in order for the best treatment to be given.
This forum is a godsend for advice and support. Keep posting and let me know how you get on. I’m sure there will be few more people following me soon to wish you well.
x
Hi Susan,
Sorry to be welcoming you here but you have come to the right place! You will find loads of support and helpful advice on the boards here. There are sadly many others in exactly your position, some a bit ahead and some a bit behind.
I am one of those a bit behind although was diagnosed in Jan and already had 2 lots of surgery WLE and SNB and now having to face a 3rd lot which could be another re-excision or a mx!!
I well know, as does virtually everyone here the agony of waiting for scans and results etc and then just dealing with and getting on with life with and after surgery and treatment.
Keep your chin up. You will find lots of care and support from everyone.
All the best
Wandyx
Hi Susan, well welcome to this site tho I wish we could all meet in different circumstances but you are definetely in the right place for tlc and support from everyone. I was dx in December last year and had a WLE and I know the waiting for the results is hell and nothing I can say will change that, but, Stay Calm and Carry On is so right, I did feel better when I got the results cos then you have a plan of action with your oncologist and give you the absolute tailored treatment plan for you. There will be lots of people on here who will read your post and there is always someone in tune with what are actually going through to offer advice and pearls of wisdom it really is a comfort being on her cos though we all our family and friends, I still used to feel isolated till I found this site cos the support you get is just different as these lovely ladies actually know how u feel. Good luck with the results, keep posting and keep positive, easy to say I know but it really is true.
Lots of Love Shar xxxx
Thank you all for your support, and although i mean it in a nice way its good to find people in the same position as me (THANK YOU),
I have decided I’m having a bad day mentally but it will pass I’m sure ,think I’m feeling a little down also as I have had to have my wound drained of (600ml) mind it never hurt I’m glad of that
Oh! and the breast nurse phoned to say the bone scan is clear, more good news to follow for the body scan I hope (fingers crossed)
SUSAN
thanks shar i’m trying to take it one day at a time …SUSAN
Hi Susan
I’m also 3 weeks post op, having a mastectomy and 7 nodes removed, 5 of which were infected.
I have been told that they going to be harsh with me, so going to have a CT scan on Thursday, followed by my treatment plan of Chemo, Radiotheraphy, Herceptin and Tomoxifen.
After being completely overwhelmed by it all and reading posts on the site my views have completely changed and I know that I’m going to have the optimum treatment available.
Just have to go with the flow and keep positive and happy.
It’s amazing how the positivity flows through the posts so you keep your chin up.
lots of love
Lisa xx
Hi Lisa, I just wondered if you’ve been offered total node clearance or if you’ve been told to just go with the chemo. I’m at the point where I’m having to decide which to go for.
Sending hugs
Maria
x
Hi Lisa, I just wondered if you’ve been offered total node clearance or if you’ve been told to just go with the chemo. I’m at the point where I’m having to decide which to go for.
Sending hugs
Maria
x
Hi Maria
Dont think they planning to take any more nodes due to 5 being affected and they have to take a couple above to be clear. So they won’t take any more.
Chemo and radiotheraphy is next for me as they throwing it at me as they think that is best for me.
Have they suggested what they think is best way for you?
Im glad I havnt been given a choice as I wouldnt know what to do in all honesty. Maybe a chat with your BCN to see what your team thinks is the best way. I suppose if you decide to go with Chemo your adding 5-6 months on to recovery time, but i really don’t know Maria.
Love Lisa xx
Thanks Lisa, not sure as my consultant has sort of left it open ended - he thinks rads and chemo will do it - but did say full node clearance was another option. Don’t know so will ask again. I’m in the awkward situation where I haven’t got a bcn as I’m told they need to work with their nhs patients - not sure where I stand on this. I’m having to find my own way and am seriously thinking about changing back to nhs. I only switched cos my hubby has a great policy through work so it made sense to use it. But it’s weird that I’ve lost any contact with a nurse. Never mind. I’m getting more and more positive by the day now and know that once i get all the scans etc. over with (presuming all is well) I will count my blessings and just crack on. take care
Maria#x
update–ok. I’m due to go to see visit the oncology unit on Friday as a new patent just for a look about,if i get ECG and heart scan done by the 21st _ish i’ll start chemo ,still taking one day at a time but i feel just fine 
But i have lots more knowledge because of this site and thank you.
i would advise anyone to keep reading the forum’s as they do help as others are going through what i’m about too …
susan